Action on Pain
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Roll me over.... Gennnnttlyyy

Hi anyone with chronic back pain get stuck if you're laying on your tummy when you wake up in the morning? If so what do you do if you're on your own? For me so far I have just had to stay there and beenbin tears of pain and loneliness and needing the bathroom. So far I've been diagnosed with renal calculi and also lower thoracic kyphosis loss previous scheurmanns disease. I'm waiting to see the musculoskeletal team and the gp they will send me for an MRI. I also have stage 2 kidney disease so I'm wondering what makes the pain so bad especially for a few hours on the morning where I'm scared to move if I'm on my belly as it feels like something will break. I've done it this morning and a pain shot up in my back through my spine to the back of my head. It was very scary. I just feel really tired now and that is normal. I have sciatic aches, all day and generally everything is hard to do but I don't want to lose my independence. Anyone in similar situation? What do you do? If someone is there with me I ask them to roll me over but my grown up children rarely visit my room and my boyfriend works a lot and is, a, single parent too, so I don't see him much. Also I've always been the carer of family and friends and I don't want the roles to reverse. I've had to come off diazeoam so I don't get addicted. But I do feel more anxious since being told to not take it anymore . I didn't do well on cognitive tests. I I think it may have been a, side effect. I'm having a head scan this month but only a CT so I don't think early cdementia like my father had is suspected or it would have been an MRI. Worried because the back of my head hurts too. Anyway just had to let that out guys sorry. Hope you're all as, well as you can be and the new year brings you renewed vitality , health and happiness for you and yours. X

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Hi Hun, I have a benign spinal tumour and if I do end up on my tummy it does take me a while to try and get up. I basically have to try and very very gently rock side to side to help me get into a comfortable enough position to finally get up. It’s incredibly frustrating but more importantly the pain is incredible both fibro and back related 😢. The more scared you are though the harder it’s going to be for you to move as your muscles tense up. You need to try and stay as mobile as you can, which I do appreciate is easier said than done but please do what you can Hun. I also have sciatica pain every day too. I also agree with you that I don’t want to be a burden to my children. I was saying it to them this weekend as like you I’ve always done things for them and everybody else. I do think you need to be seen by a specialist to find out exactly what’s going on and the right medication for you to help your pain. Please take care of yourself. I really do empathise with you Hun. It’s so hard when you’re on your own trying to cope with everything as I’m in the same boat 99% of the time. Love and gentle hugs lovely xx

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Thank you so much. This post made my day. To have someone who understands means a lot. Aww, I'm sorry to see you have the same problems maybe worse. It's good to know it's OK to move I think the fear was making it worse. Just out of interest do you find the sensation of the shower or the soothing of the bath helps most with your pain? Personally I find the shower jets help. On the days I can manage it I get in the shower and stay there supporting myself on the wall, it's very relieving. It hurts too much to lay down in the bath. Anyway I'm brightened by your advice and trying not to be a Debbie Downer he he. Much thanks. Healthy wishes to you. X

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Thank you for your lovely kind words Hun. It really does help when you find someone else in the same boat as you. Makes you realise you’re not completely mental lol. I don’t have a shower in my house, just a shower attachment on the taps. That definitely helps more, unless I’m having an extra sensitive skin day. Epsom salts bath also really helps, once or twice a week but it can then take a little while for me to get out of the bath lol. Please take care of yourself Hun and feel free to talk anytime you want to xx

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Yes Indeedy. I am still feeling brighter today, hope you do. I've got to do another repeat on protein test. Seems many pain problems ate due to inflammation and for some of us they can be worse with certain foods and even good groups, like carbs. I am sure if I could lose weight I would have less pain. It's the muscle fatigue and brain fog I can't cope with when I cut out a food group though.

Do you have chance to get an open walk in shower? I think that would be good for you. Ours not easy and sometimes impossible getting in our out of the bath I know. Ooh do you have a bath step? There are aids aren't there?

In some ways it's nice to have someone wash and care for us if we can get out. However at the same time it's better to stay as independent as we can. In my case food dignity because with all the extra weight I've put on some first been given steroids my body doesn't look as good as our used to and o came balance well anymore. O used to have perfect balance and was good at dancing. I was signed up to do a degree in dancing. Now I just enjoy watching it. And playing smule magic piano. I think feeling like you can do something is good. Magic piano is satisfying because you only have to tap the glowing keys at the right time and out sounds like you're playing a masterpiece. Music is good too although I can't remember the words I still remember the rhythm.

Best healthy wishes Miss68

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Hi Miss68, just thought of something else. How do you cope with going downstairs? My lens shake when o do and unfortunately I am in a top floor flat. I really like it here the location, the neighbors and the helpful shop assistants just down the road. But the steps are a problem some days I can't get out. Do you manage OK?

(๑´• .̫ •ू`๑)

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Hi Hun, no my landlord won’t change it to a shower and I don’t have any aids. I just cope the best that I can. I’m very independent but my son and daughter help me as much as they can. It’s hard when you’re so used to being a strong, working, independent single parent.

Going up and down stairs isn’t easy and like you I do get shaky. However, I just hold onto the handrail and take one step at a time. I’m pretty much housebound at the moment due to the spinal tumour which means I struggle to walk very far. Take care Hun xx

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Take care. Glad your children help. Hole you can get some more care if you need it. I'm renting too and can't afford to move but the stairs are too much. Do you know if it's OK to have a shapely or step lift outdoors? I've been wondering how people manage is they can't move easy on entrance steps. Xx

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Yeah my children are great thanks. I’ve got all the help I need atm but I’m sure if my health gets worse I’ll be able to get more care/help. I have good and bad days when it comes to the stairs. I don’t have any supports outside so not sure what you can have. I think it depends on your landlord. I’m sure if you look online you’ll get some answers. Take care xx

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