Hello everyone! This is my firts post here. I've been diagnosed with fibromyalgia 3 years ago, but i had this pain all over for 10 years now.. But 3 years ago had the flu and left with more severe pain on my whole skin rom head to toe is just unbearably painful burning prickling, and just a touch, a hug, my clothing and shoes causes serious pain like sand paper and even cold air or wind not to mention my bedsheets..and its been like this for 3 years. My pain specialist said im a "1 in a million" probably because he never met someone with such an ugly widespread allodynia and pain.even my scalp and face skin is aching and so painful to touch i cant be kissed or hugged not to mention have a normal love life, i also suffer with vulvodynia(painful sore burning and constantly irritated uncomfortable vulva) my life is seriously not worth living.I don't know who to turn to i dont know what to do, My MRI tests showed nothing apart from some neck problems, but that doesnt explain the extent of my symptoms... i had nerve conduction tests which showed nothing..i wonder if i might have small fiber neuropathy, but i havnt had a biopsy, and my neurologist will only see me 6 moths later probably to tell me he cant do anything, can i request a biopsy for small fiber neuropathy? As it hasnt been ruled out yet??my whole body is a prison for my soul with all the severe suffering from these pain problems i think about death every day and i seriously wouldnt mind to die if i had to right now ..My life is a hell sorry about this long post, but want to know if anyone ever feels the way i feel as it is seriously debilitating and depressing to live like this.I'm 27 female and I have no friends, and cant socialize. I take imipramine, for the pain but it does nothing for the pain just helps me sleep at night. hugs and xxx please soemeone tell e there is hope for me.
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