Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for April 2016

Upper lip spams and nausea

Should I be worried?

Hidden

•8 years ago

2 Replies

Primary cerebral vasculitis

I had the worst 5 month all my life.be on a life support mchine. They was going to switch mechine off.as I lost all movement from neck down.Just started to...

I had the worst 5 month all my life.be on a life support mchine. They was going...

beeryone

•8 years ago

6 Replies

London hospitals specialists

Hi can anybody recommend an hospital/specialist in the London area. I have been under the Leeds general infirmary for 16 years with cerebral vasculopathy. I...

Hi can anybody recommend an hospital/specialist in the London area. I have bee...

Louzoejf29

•8 years ago

5 Replies

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Vasculitis UK stand at the BSR annual Conference 2016

The VUK stand was visited by many doctors and nurses. 😊 We met many old friends and made new friends too. We added many names to the VUK mailing list....

The VUK stand was visited by many doctors and nurses. 😊 We met many old friends...

Suzym2u

Moderator•8 years ago

9 Replies

British Society of Rheumatology Spring Annual Conference April 2016

Just wanted to say Lynn and John have been representing patients and Vasculitis UK at the BSR annual conference in Gkasgow this week. Over 1800 doctors, nurses...

Just wanted to say Lynn and John have been representing patients and Vasculitis ...

Suzym2u

Moderator•8 years ago

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Strange symptoms

Hi All, I am quite new to this site and currently trying to get a diagnosis of my condition, Doctors think Behcets Disease. I would just like to ask a...

Hi All, I am quite new to this site and currently trying to get a diagnosis of...

Suzywhizzo

•8 years ago

15 Replies

First Plymouth Support Group Lunch

A new support group has been set up in the Plymouth area and Elaine would love to see a great turn out for the first lunch! If you would like to attend please...

A new support group has been set up in the Plymouth area and Elaine would love t...

DevonLottie

•8 years ago

3 Replies

Meds side effects

I have been taking Cell Cept, predisolone and Omerprazolone amongst other medicatin for the past eight years for GCA and PMR I have recently had a flair and...

I have been taking Cell Cept, predisolone and Omerprazolone amongst other medica...

NanaB43

•8 years ago

9 Replies

Mixed feelings about recent Manchester Royal appointment

Hi.I have finally had my appointment at the Manchester Royal with one of the female consultants,and I am left with very mixed feelings. Some of hope,'desperate...

Hi.I have finally had my appointment at the Manchester Royal with one of the fem...

Tillyray

•8 years ago

19 Replies

Martin Makin interview BBC East Midlands today, yesterday.

Martin Makin has Wegeners Granulomatosis ( GPA ) and is running in the London Marathon this weekend. He was interviewed on BBC East Midlands yesterday. If you...

Martin Makin has Wegeners Granulomatosis ( GPA ) and is running in the London M...

Suzym2u

Moderator•8 years ago

2 Replies

Tooth extraction

Has anyone taking ADCAL have a tooth extraction if so how was it Thanks

Justjudes3824

•8 years ago

35 Replies

Lansoprazole or Ranitidine

In general , is one better than the other or is it a case of what suites one doesn,t suite another, and with long term use ,as many of us no doubt do use them...

In general , is one better than the other or is it a case of what suites one doe...

jackrussell

•8 years ago

10 Replies

Martin Makin speaking to Radio Leicester today about running in the London Marathon and raising awareness of vasculitis.

This is the link to Martin's interview with Radio Leicester today. Martin is talking about his own story of living with Vasculitis and why he is running in the...

This is the link to Martin's interview with Radio Leicester today. Martin is tal...

Suzym2u

Moderator•8 years ago

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Annoying red, dry patches ...

Hiya, I have Rheumatoid Vasculitis, diagnosed two years ago. I have had dry, red patches on my legs for years and assumed it was a form of psoriasis. When...

Hiya, I have Rheumatoid Vasculitis, diagnosed two years ago. I have had dry, r...

CHARLIE49

•8 years ago

6 Replies

Newbie

Hi I'm new on here, I was diagnosed with hypocomplementemic urticarial vasculitus a few weeks ago. I also have many symptoms of SLE. My rheumatologist told me...

Hi I'm new on here, I was diagnosed with hypocomplementemic urticarial vasculitu...

Jokelby72

•8 years ago

13 Replies

Martin has Vasculitis - Wegeners Granulomatosis and is running in the London Marathon on Saturday.

If you are in London on Saturday , look out for the runner with the Green VUK top and Green hair. Martin is running to raise awareness and to fundraise of...

If you are in London on Saturday , look out for the runner with the Green VUK to...

Suzym2u

Moderator•8 years ago

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Kyri's story - Mansfield Chad Newspaper Nottinghamshire

This is the link to Kyri's story now on line through the Mansfield Chad website ...

Suzym2u

Moderator•8 years ago

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Ongoing weight loss success

Weight plunged overnight from 100.0kg to 99.4kg, after my latest fast day, so I got my next mini bottle of champagne tonight for passing another 5kg mark. On...

Weight plunged overnight from 100.0kg to 99.4kg, after my latest fast day, so I ...

vivdunstan

Volunteer•8 years ago

20 Replies

Any ideas please?

I have CSS and have been taking a maintenance dose of 5mg Pred for the last six months along with 100mg Azathioprine. About a month ago my cough had returned...

I have CSS and have been taking a maintenance dose of 5mg Pred for the last six ...

laidbackreader

•8 years ago

5 Replies

Nicotine & benefits in gastrointestinal tract

Hi all, I was first diagnosed with ulcerative colitis in 2007 & this was later changed to a diagnosis of Crohn's in more recent times. I am also now going...

Hi all, I was first diagnosed with ulcerative colitis in 2007 & this was later c...

Jools52

•8 years ago

15 Replies

Hip Replacement

Just a note of warning. My husband has GPA (Wegener's) since Oct 10, diagnosed Nov 11. He's been on Pred starting at 70mg per day, now down to 5mg per day....

Just a note of warning. My husband has GPA (Wegener's) since Oct 10, diagnosed N...

Nadine99

•8 years ago

2 Replies

Osteoporosis

Anyone have experience of/info on use of Denusamab or Strontium Ranelate for osteoporosis?

Anyone have experience of/info on use of Denusamab or Strontium Ranelate for ost...

EbonyWillow

•8 years ago

7 Replies

You may want to take a look at this - Vasculitis discussed briefly on the This Morning Show

You might want to see this, it was on itv today , this morning, 30 mins into the programme. Vasculitis is talked about. The patient on the phone is probably...

You might want to see this, it was on itv today , this morning, 30 mins into the...

Suzym2u

Moderator•8 years ago

6 Replies

STILL 'Uncategorised'

I filled in the, most recent Poll, regarding my Type Of Vasculitis and still had to answer 'Other'. Just as a quick 'Straw Poll' how many of us have had to do...

I filled in the, most recent Poll, regarding my Type Of Vasculitis and still had...

AndrewT

•8 years ago

14 Replies

East Anglia Support Group

Hi Guys & Gals Is there an east anglian support group that meets occasionally? I've been diagnosed with GPA and am currently in remission but would be good...

Hi Guys & Gals Is there an east anglian support group that meets occasionally?...

Marcus1988

•8 years ago

15 Replies

Yorkshire meetings

We had a really enjoyable meeting at Huntington yesterday. There were 21 of us and Richard gave a very interesting talk about Being in Remission Thanks to...

We had a really enjoyable meeting at Huntington yesterday. There were 21 of us a...

LynneJ

Vasculitis UK•8 years ago

2 Replies

HELP ME TO COME TO CAMBRIDGE VASCULITIS AND LUPUS CENTER! (ADDENBROOKS)

Please help me to get help. 10 months without name of my vasculitis and no treatment exept ASA and kortison. Nothing of them prescripted of my collegues. i am...

Please help me to get help. 10 months without name of my vasculitis and no treat...

Tellu

•8 years ago

3 Replies

Primary angiitis

Need help,feeling very unsure.My neurologist wants me to have a LP.If inflammation is there he wants me to have angiogram and then possibly a brain biopsy.I...

Need help,feeling very unsure.My neurologist wants me to have a LP.If inflammati...

Hidden

•8 years ago

9 Replies

York Support Group meeting this Sunday

Last call for the York support group meeting this Sunday :) Meeting at 1:30pm at the Huntington Memorial Hall just to the north of York. All welcome. See our...

Last call for the York support group meeting this Sunday :) Meeting at 1:30pm a...

RichardE

Volunteer•8 years ago

Be the first to reply

GPA AKA Wegeners granulomatosis

I have had recurring high fevers, rigors, awful joint and bone pain and so much more. My blood tests showed me ANCA positive & it was not looked into. That was...

I have had recurring high fevers, rigors, awful joint and bone pain and so much ...

Jools52

•8 years ago

22 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2016

Upper lip spams and nausea

Primary cerebral vasculitis

London hospitals specialists

Vasculitis UK stand at the BSR annual Conference 2016

British Society of Rheumatology Spring Annual Conference April 2016

Strange symptoms

First Plymouth Support Group Lunch

Meds side effects

Mixed feelings about recent Manchester Royal appointment

Martin Makin interview BBC East Midlands today, yesterday.

Tooth extraction

Lansoprazole or Ranitidine

Martin Makin speaking to Radio Leicester today about running in the London Marathon and raising awareness of vasculitis.

Annoying red, dry patches ...

Newbie

Martin has Vasculitis - Wegeners Granulomatosis and is running in the London Marathon on Saturday.

Kyri's story - Mansfield Chad Newspaper Nottinghamshire

Ongoing weight loss success

Any ideas please?

Nicotine & benefits in gastrointestinal tract

Hip Replacement

Osteoporosis

You may want to take a look at this - Vasculitis discussed briefly on the This Morning Show

STILL 'Uncategorised'

East Anglia Support Group

Yorkshire meetings

HELP ME TO COME TO CAMBRIDGE VASCULITIS AND LUPUS CENTER! (ADDENBROOKS)

Primary angiitis

York Support Group meeting this Sunday

GPA AKA Wegeners granulomatosis

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