Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for October 2019

Can Prolia trigger vasculitis

I was first diagnosed with Wegeners in November 2010 - sinus and lungs. Was on life support for 18 days. A small shadow appeared in 2015 in my lung and...

I was first diagnosed with Wegeners in November 2010 - sinus and lungs. Was on l...

•5 years ago

Ears

Hi my son has had MPA for three years . He is 14 years old . He is doing well apart of his ears. He's taking mmf and one mounth ago he stopped cortisone. What...

Hi my son has had MPA for three years . He is 14 years old . He is doing well ap...

•5 years ago

MRI Aorta without contrast for TAK diagnosis

Hi, I am due to have an MRI Aorta for suspected Takayasu Arteritis. On the referral form, it says ‘with contrast’, however, I really want to avoid contrast...

Hi, I am due to have an MRI Aorta for suspected Takayasu Arteritis. On the refe...

•5 years ago

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A dedicated website for anyone living with, or affected by ANCA-vasculitis.

ANCA Associated Vasculitis - The Patient Journey You will have to scroll down to watch the videos https://www.myancavasculitis.com/

ANCA Associated Vasculitis - The Patient Journey You will have to scroll down t...

Moderator•5 years ago

Merseyside Cheshire & North Wales VSG Meeting 28/11

Our next meeting will be on Thursday 28/11 at 12.30 at the Linda McCartney Education Centre in the Royal Liverpool Hospital Prescot St Liverpool L7 8XP Our...

Our next meeting will be on Thursday 28/11 at 12.30 at the Linda McCartney Educa...

•5 years ago

North East Vasculitis Support Meeting on the 16th of November is back on! Presentations will be taking place at the Freeman Hospital

Please follow this link for more detail and to contact Margaret https://www.vasculitis.org.uk/events/north-east-support-group

Please follow this link for more detail and to contact Margaret https://www.vas...

Moderator•5 years ago

Be the first to reply

The next meeting of Cambridgeshire Vasculitis Support Group is on Saturday 2nd November 2019 at the

Details can be found if you follow this link https://www.vasculitis.org.uk/events/cambridgeshire-support-group

Details can be found if you follow this link https://www.vasculitis.org.uk/eve...

Moderator•5 years ago

Be the first to reply

End Of British Summer Time!

Don't forget the CLOCKS everyone- One Hour Back (to any Non-Brits, please ignore this). An extra hour in bed😀 but....Longer nights😢. To all of you who have...

Don't forget the CLOCKS everyone- One Hour Back (to any Non-Brits, please ignore...

•5 years ago

Churg Strauss Syndrome

I have been recently diagnosed with this type of facilities and am under treatment through Addenbrookes Hospital at the moment.I a have been reduced it steroid...

I have been recently diagnosed with this type of facilities and am under treatme...

•5 years ago

Bloating and water retention from prednisone, I need some help with How to get rid of the symptoms

I have severe bloating and water retention from 80mg a day of prednisone . And I just need to know how to get some relief? I’ve never had it affect me quite...

I have severe bloating and water retention from 80mg a day of prednisone . And I...

•5 years ago

Can any one share any thoughts on these weird symptoms

Hi Guys Right this sounds like hypocrontact I have felt rubbish for 4 /5 weeks Had diverticulitis I thought it was my heart but they could not advise why I...

Hi Guys Right this sounds like hypocrontact I have felt rubbish for 4 /5 wee...

•5 years ago

Raynauds and Vasculitis

Hello all, I have was diagnosed with raynauds some years before my Vasculitis diagnosis but had very few episodes. These last 2 weeks I have had 2 quite bad...

Hello all, I have was diagnosed with raynauds some years before my Vasculitis di...

•5 years ago

Flu

I have HUVS do you know if it is safe for me to have a flu injection. Thank you

I have HUVS do you know if it is safe for me to have a flu injection. Thank you...

•5 years ago

Is anyone taking cyclosporine and what has their experience been?

I am currently taking 200mg of cyclosporine daily and weening myself of Prednisolone for adult onset xanthogranuloma I have noticed that I've become more...

I am currently taking 200mg of cyclosporine daily and weening myself of Predniso...

•5 years ago

Welcome to the new style VUK website

If you have recently visited the website you will have noticed it now has a new look. The new website is now much more mobile and tablet compatible plus it...

If you have recently visited the website you will have noticed it now has a new ...

Moderator•5 years ago

Cerebral Vasculitis to Vasculitis Dementia

I’ve had Cerebral Vasculitis which has now been in remission for 10yrs and still have memory problems but I’m becoming confused and it’s harder to organise...

I’ve had Cerebral Vasculitis which has now been in remission for 10yrs and still...

•5 years ago

Diagnosis of Erosive Osteoarthritis

Hi all, I was diagnosed with this condition in my hands and was advised by a consultant in Rheumatology and Autoimmune Connective tissue disease, to start...

Hi all, I was diagnosed with this condition in my hands and was advised by a co...

•5 years ago

Azathioprine

Hi I’m due to start Azathioprine tomorrow for my GPA vasculitis. Over the past year I have been on Methotrexate and mycophenolate unfortunately I could not...

Hi I’m due to start Azathioprine tomorrow for my GPA vasculitis. Over the past y...

•5 years ago

How does one contact the community administrator of PMR

I have been blocked by PMR community for no reason . I would like to contact Candy. How do I do that? Thank you.

I have been blocked by PMR community for no reason . I would like to contact Can...

•5 years ago

Finding the right specialists

Hi I have been tentatively diagnosed with cnsv, However, I am constantly told my tests are inconclusive even though I am responding well to treatment for cnsv....

Hi I have been tentatively diagnosed with cnsv, However, I am constantly told my...

•5 years ago

Does nucala work for egpa

Is anyone with egpa taking nucala and is it working?

Is anyone with egpa taking nucala and is it working?

•5 years ago