Posts - Vasculitis UK | HealthUnlocked

Volunteer•12 years ago

Is this something that doesn't matter at all or would cabin pressure cause problems? If I am having a flare and "bleeding" would flying make it worse or is it...

Is it advisable to fly during an HSP flare?

Is this something that doesn't matter at all or would cabin pressure cause probl...

Hidden

•12 years ago

Vasculitis in Autoimmunity II: Embracing the Future of Treatments, Research, and Care https://www3.gotomeeting.com/register/852832278 Jim

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Vasculitis in Autoimmunity II: Embracing the Future of Treatments, Research, and Care

Vasculitis in Autoimmunity II: Embracing the Future of Treatments, Research, and...

Jim-Bornac

•12 years ago

1 Reply

Thank you for the Photos for the Route Map and the new Website

Thank you for all the photos received to date....all have been very helpful for both the Route Map and the new website....please keep the photos coming in....

Thank you for all the photos received to date....all have been very helpful for ...

I was told I had Giant Cell but now they think it is Takayasu's. Do you support people on this site with takayasu's? I am waiting for the relevent test and...

Volunteer•13 years ago

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Do you support people with takayasu's on this site?

I was told I had Giant Cell but now they think it is Takayasu's. Do you support ...

CathT

•13 years ago

Trying to find out what tests and treatments others have experienced

Do you know a Wegener’s patient that had endocrine problems with the pituitary or thyroid gland, or any female hormone type symptoms?

runnerwithwg

•13 years ago

1 Reply

Has anyone with Vasculitus experienced numbness of the head, tingling of the nose lips and tongue?

rita-stosyth

•13 years ago

4 Replies

Can people go into remission for several years with Churgs?

MarieLowe

•13 years ago

I know it seems like an odd question, but when I was having cyclo treatment for vasculitis, I noticed several rheumatoid arthritis patients being treated at...

Are people with rare blood groups more prone to this type of condition?

I know it seems like an odd question, but when I was having cyclo treatment for ...

karenJB

•13 years ago

Sunday 20th November 2011 11.am - 3.00pm Holiday Inn Impington "Talking About Vasculitis" Dr Sapna Trivedi, Specialist Registrar Addenbrooke's Hospital...

JUST A REMINDER Cambridge Support Group Meeting This Sunday Nov 20th Dr Sapna Trivedi, Specialist Registrar Addenbrooke's Hospital

Sunday 20th November 2011 11.am - 3.00pm Holiday Inn Impington "Talking Abou...

well done John speaking tonight on the webinair. Excellent presentation. Jill

Volunteer•13 years ago

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Lauren Currie webinair

Essex-jill

•13 years ago

since entering this site i am amazed at the wide range of things we suffer from in various forms, oh to feel well again !

hair and nails growing very fast?

since entering this site i am amazed at the wide range of things we suffer from ...

gsmith

•13 years ago

9 Replies

Does anyone suffer from very dry mouth and thirst during the night?

Better immediately when I get up in the morning, but not solved by drinking water, however often, during the night.

Better immediately when I get up in the morning, but not solved by drinking wate...

JanetR

•13 years ago

We need pictures of these things for the new vasculitis Route Map and for the New Website. They are surprisingly hard to come by as doctors and hospitals are...

Does anybody have any good clear photos of symptoms of their vasculitis eg:- rash red eyes saddle nose spots ulcers damaged fingers toes?

We need pictures of these things for the new vasculitis Route Map and for the Ne...

We understand that when University students apply for free prescriptions they are refused because their student loan is counted as income. This makes life very...

Volunteer•13 years ago

11 Replies

Does anyone with vasculitis or know someone with vasculitis who is at University and has applied for free prescriptions and been refused?

We understand that when University students apply for free prescriptions they ar...

Volunteer•13 years ago

This lady is suffering bad side effects but has been told that she needs to be on this as other meds haven't worked. Injection instead of tablets have now been...

Can I ask on behalf of another WG person how people have found taking Methotrexate?

This lady is suffering bad side effects but has been told that she needs to be o...

SusanCh

•13 years ago

19 Replies

Does anyone suffer from chronic cystitis or other urinary tract problems. We are asking this question on behalf of one of our Vuk members

There is a new pdf advisory document available from benefits and work. It was released this last week. DISABILITY CLAIMS FOR ADULTS ON PHYSICAL HEALTH GROUNDS...

Volunteer•13 years ago

14 Replies

A new advisory pdf document is now available from the benefits and work website DISABILITY CLAIMS FOR ADULTS ON PHYSICAL HEALTH GROUNDS.

There is a new pdf advisory document available from benefits and work. It was re...

Volunteer•13 years ago

Some hope please!!!!!!!!: My 49 year old husband was admitted to hospital with sudden onset Kidney Failure and has been diagnosed with WG, he is having ten...

WG Kidney Damage, will other parts of the body be effected by the WG??

Some hope please!!!!!!!!: My 49 year old husband was admitted to hospital with s...

Sharonkaty

•13 years ago

12 Replies

reminder for Essex Support Group

Informal get together for all vasclities patients, families, helpers and carers at Benton Hall Golf and Country club in Witham, essex. Food and drink to be...

Informal get together for all vasclities patients, families, helpers and carers ...

Gma61

•13 years ago

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Peripheral Neuropathy

Long before I was diagnosed with MPA I had very painful feet and toes. I also experience pins and needles sentations. Since being on meds for the last 2.5...

Long before I was diagnosed with MPA I had very painful feet and toes. I also e...

Jackie29

•13 years ago

It is rather late in the day but some Christmas cards we were promised in September have become available by one of our members. These are specially...

Christmas Cards for Sale for Vasculitis UK

It is rather late in the day but some Christmas cards we were promised in Septem...

Volunteer•13 years ago

i can be icy cold in a warm room, comfortably warm on a cold day, also cold on a cold day and warm in a warm room, it can alter over a matter of...

has anyone else had their body thermostat go crazy?

i can be icy cold in a warm room, comfortably warm on a cold day, also cold on a...

gsmith

•13 years ago

13 Replies

PATGW6IMS.

For the last five months i have had shingles & have lost four stone, My Anca Positive Vasculitis seems to be behaving itself. I wounder if anyone else with...

For the last five months i have had shingles & have lost four stone, My Anca Po...

PATGW6IMS

•13 years ago

Is there a group in Northern Ireland?

support

magcor

•13 years ago

8 Replies

I have recently been diagnosed with Vasculitus but also suffer Arthritus and was told that this could of been the cause is this common ?

Dave_Buzzey_B

•13 years ago

Has anyone with WG ever encountered any infertility problems ?

mandijt

•13 years ago

11 Replies

is there any financial help for wegeners sufferers?, old age pension is streched trying to keep warm and maintain transport,

gsmith

•13 years ago

Hiya I had a upset the other week on a thursday, On the sat we were shopping and i was stopped dead on my feet with a sharp pain at the back of my head on...

Head ache

Hiya I had a upset the other week on a thursday, On the sat we were shopping an...

NannyAlli

•13 years ago