Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,793 members • 6,801 posts

All posts for October 2014

Ulcerated legs

Please could I have advice and support for ulcerated legs it started off 6 months ago with cellulitous then turned more infectiouse told it was ulcerated legs...

Please could I have advice and support for ulcerated legs it started off 6 mont...

Yorkie369

•10 years ago

10 Replies

Handmade Christmas Baubles for Vasculitis UK

Hi lovely people.. a NEW addition to the shop! Handmade baubles, made with mini glass bottles (22mm x 40mm) filled with christmas flowers or candy canes. set...

Hi lovely people.. a NEW addition to the shop! Handmade baubles, made with mini ...

Emperor

•10 years ago

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prednisolone to hydrocortisone

I am switching from prednisolone to hydrocortisone to help with tapering, I am currently on 12mg. Has anybody else tried this and how did you get on?

I am switching from prednisolone to hydrocortisone to help with tapering, I am c...

Maudy1

•10 years ago

4 Replies

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New member seeking help ref my GPs belief that I may have Vasculitis (WG).

Hi, I am a 54 year old male that has been a long term sufferer of Rhinitis (14 months). At the end of September 2014 I had a sudden onset of muscle and joint...

Hi, I am a 54 year old male that has been a long term sufferer of Rhinitis (14 m...

chsskg

•10 years ago

8 Replies

Travel insurance

Many thanks to your replies to my question on health insurance, I've only used staysure before and they won't give me an annual policy just a trip at a time. I...

Many thanks to your replies to my question on health insurance, I've only used s...

annie330

•10 years ago

2 Replies

New to this. can anybody help?

Hey guys. so my dads been diagnosed with Vasculitis. it sucks. i hate it. but whats worse is the not knowing. and the amount of people who say ''what's...

Hey guys. so my dads been diagnosed with Vasculitis. it sucks. i hate it. but w...

LADavies

•10 years ago

7 Replies

Travel insurance

Please can anyone reccommend a company that do reasonable priced travel insurance. Many thanks in advance

Please can anyone reccommend a company that do reasonable priced travel insuranc...

annie330

•10 years ago

4 Replies

Juxtacure hosiery

I have just been fitted up with these for ulcerated legs just wonderd if there is anyone else out there who has been fitted up with these for ulcerated legs...

I have just been fitted up with these for ulcerated legs just wonderd if there i...

Yorkie369

•10 years ago

3 Replies

Good news!

You may have read a recent post of mine regarding my local Health Board's decision to put a stop to my visits to the Vasculitis Clinic at Addenbrooke's after...

You may have read a recent post of mine regarding my local Health Board's decisi...

Howget

•10 years ago

5 Replies

Methotrexate and Migraines

Hi hope you can help. My hubby, who has Rheumatoid Vasculitis, is on Methotrexate 25mg sub-cut (as well as a lot of other meds). He has started getting a...

Hi hope you can help. My hubby, who has Rheumatoid Vasculitis, is on Methotrexa...

PhoebeO

•10 years ago

12 Replies

Hello all

I was diagnosed with ANCA Vasculitis and sensory motor neuropathy in February this year. I have had chemo therapy but had a reaction to cyclophosphomide so...

I was diagnosed with ANCA Vasculitis and sensory motor neuropathy in February th...

Hidden

•10 years ago

7 Replies

New Vasculitis Awareness and Vasculitis UK Christmas Card 2014

Patricia has been very busy today for the Vasculitis UK Website shop Lucy, the shop co-ordinator is ready for your orders. VUK have 2 new Christmas cards for...

Patricia has been very busy today for the Vasculitis UK Website shop Lucy, the...

Suzym2u

Moderator•10 years ago

4 Replies

someone please help me to know more

Would love to hear from someone who has had same symptoms, started with a blood like rash on palms of hands and pins and needles, also my nose broke out in...

Would love to hear from someone who has had same symptoms, started with a blood ...

leah1970

•10 years ago

6 Replies

Halloween Party at The Beehive Heathfield, to raise awareness of Vasculitis

Emma runs the Beehive at Heathfield Sussex and very recently lost her niece, to Wegeners Granulomatosis, so she is organising a Halloween Party to raise...

Emma runs the Beehive at Heathfield Sussex and very recently lost her niece, to ...

Suzym2u

Moderator•10 years ago

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The UK Ghostbusters will again be raising awareness of vasculitis and fundraising for Vasculitis UK.

The Film and Comic Con is a great day out and is not expensive. The UK Ghostbusters will be raising awareness of Vasculitis and are having a Tombola to...

The Film and Comic Con is a great day out and is not expensive. The UK Ghostbu...

Suzym2u

Moderator•10 years ago

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Saturday 25th October Samantha will help raise awareness of vasculitis and for Vasculitis UK when she hosts a coffee morning.

If you live in the Lincolnshire area you may want to go along and support Samantha. Family and Friends welcome. In July this year Samantha was diagnosed with...

If you live in the Lincolnshire area you may want to go along and support Samant...

Suzym2u

Moderator•10 years ago

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West Country Support Group Lunch

Just a quick reminder that the lunch is next Sunday at the Barn Owl in Exeter from 12.00 noon. If anyone would like to join us please let me know so I can give...

Just a quick reminder that the lunch is next Sunday at the Barn Owl in Exeter fr...

DevonLottie

•10 years ago

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Juxtacure. Hosiery

Both my legs are ulcerated. Have had to lots of compression. Bandages. Applied but unfortunately. Was not successfully kept rolling down and made my. Legs...

Both my legs are ulcerated. Have had to lots of compression. Bandages. Applied ...

Yorkie369

•10 years ago

3 Replies

Shingles vaccine

Hi I have GPA , my mom as got to have a shingles vaccine. Am I ok to see her the next day or do I have to stay away for a few days?

Hi I have GPA , my mom as got to have a shingles vaccine. Am I ok to see her t...

Doghouse

•10 years ago

12 Replies

Itchy Dry Skin with Rituximab

I am 4 months into Rituximab treatment for GPA and am experiencing very dry itchy skin. I think this can be a side effect, just wondering if anybody else has...

I am 4 months into Rituximab treatment for GPA and am experiencing very dry itch...

Maudy1

•10 years ago

11 Replies

Polyarteritis Nodosa

Hi. I was diagnosed with vasculitis a month ago (after many years) and I've just received a letter from the skin biopsy saying it is polyarteritis nodosa. The...

Hi. I was diagnosed with vasculitis a month ago (after many years) and I've just...

Bindy68

•10 years ago

3 Replies

churg strauss

mum had an appointment at hospital today and found that the person who was looking after her had left and that he was a registrar and not a consultant. we was...

mum had an appointment at hospital today and found that the person who was looki...

Naz2014

•10 years ago

10 Replies

Thought we would share Prof Justin Mason's inaugural lecture September 2014 "Journey from East Acton to East Asia"

He is a Fellow of the Royal College of Physicians in London and of the Association of Physicians of Great Britain and Ireland, and is the Vice-chair of the...

He is a Fellow of the Royal College of Physicians in London and of the Associat...

Suzym2u

Moderator•10 years ago

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West Midlands Vasculitis Support Group Meeting Sunday October 12th

Prof Raashid Luqmani who will speak about "Getting involved in Vasculitis research", and Dr Anna Mistry who will speak on "The latest drugs and treatments for...

Prof Raashid Luqmani who will speak about "Getting involved in Vasculitis resear...

Suzym2u

Moderator•10 years ago

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Getting off Pred.

I've been diagnosed since 2002 with WG/GPA. Just wondering if anyone else has been able to get off Pred.complelely. My specialist (rheumy) has said I'll...

I've been diagnosed since 2002 with WG/GPA. Just wondering if anyone else has be...

lnem

•10 years ago

30 Replies

I`ve just had a holiday from vasculitis.

I`ve just had a holiday from vasculitis. A few weeks ago I had to take `Pred` for a couple of weeks, after a few days, my wife said " you have turned into...

I`ve just had a holiday from vasculitis. A few weeks ago I had to take `Pred` fo...

Tony-LakeDistrict

•10 years ago

4 Replies

churg strauss

my mum has been diagnosed with Churg Strauss and is under the care of a london NHS hospital. Her condition seems to have got worse over last month - she can...

my mum has been diagnosed with Churg Strauss and is under the care of a london N...

Naz2014

•10 years ago

20 Replies

Immuno compromised ?

I am having ongoing medication after contracting Wengers Vasculitis 2 years ago which include prednisolene & aziathioprine Am I considered to be immuno...

I am having ongoing medication after contracting Wengers Vasculitis 2 years ago ...

Lauriescott1

•10 years ago

6 Replies

Interesting article about immune response.

http://www.dailymail.co.uk/health/article-2777234/How-simple-cold-set-deadly-asthma-attack-Scientists-discover-chemical-send-immune-overdrive.html

http://www.dailymail.co.uk/health/article-2777234/How-simple-cold-set-deadly-ast...

luggsey

•10 years ago

2 Replies

The Addenbrookes Vasculitis Team will be reporting on the results of the MYCYC Clinical Trial.

The Addenbrookes Vasculitis Team will be reporting on the results of the MYCYC Clinical Trial at the next Cambridge Vasculitis Support Meeting. Patients who...

The Addenbrookes Vasculitis Team will be reporting on the results of the MYCYC C...

Suzym2u

Moderator•10 years ago

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Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2014

Ulcerated legs

Handmade Christmas Baubles for Vasculitis UK

prednisolone to hydrocortisone

New member seeking help ref my GPs belief that I may have Vasculitis (WG).

Travel insurance

New to this. can anybody help?

Travel insurance

Juxtacure hosiery

Good news!

Methotrexate and Migraines

Hello all

New Vasculitis Awareness and Vasculitis UK Christmas Card 2014

someone please help me to know more

Halloween Party at The Beehive Heathfield, to raise awareness of Vasculitis

The UK Ghostbusters will again be raising awareness of vasculitis and fundraising for Vasculitis UK.

Saturday 25th October Samantha will help raise awareness of vasculitis and for Vasculitis UK when she hosts a coffee morning.

West Country Support Group Lunch

Juxtacure. Hosiery

Shingles vaccine

Itchy Dry Skin with Rituximab

Polyarteritis Nodosa

churg strauss

Thought we would share Prof Justin Mason's inaugural lecture September 2014 "Journey from East Acton to East Asia"

West Midlands Vasculitis Support Group Meeting Sunday October 12th

Getting off Pred.

I`ve just had a holiday from vasculitis.

churg strauss

Immuno compromised ?

Interesting article about immune response.

The Addenbrookes Vasculitis Team will be reporting on the results of the MYCYC Clinical Trial.

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