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clinical trial for gene therapy
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
Slattery
in
Macular Society
1 year ago
Human Betaretrovirus and PBC - can antiretrovirals fix us?
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Wilderswimmer
in
PBC Foundation
1 year ago
Clinical Trials for Mushrooms
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
dmt1121
in
Advanced Prostate Cancer
1 year ago
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Sulforaphane, Acrolein, and Parkinson's
I spend a fair amount of time re-researching things I have researched previously. With my bad memory, frequently I think I am finding something new when I am not. I just came across (again) an article on Acrolein and Parkinson's and remembered that a Broccoli Sprout beverage can clear Acrolein and
I spend a fair amount of time re-researching things I have researched previously. With my bad memory, frequently I think I am finding something new when I am not. I just came across (again) an article on Acrolein and Parkinson's and remembered that a Broccoli Sprout beverage can clear Acrolein and
Bolt_Upright
in
Cure Parkinson's
1 year ago
losing my mind
My depression and anxiety is getting worse, now I feel like I’m suffering with some paranoia. I have severe OCD and it’s torture right now. I’m crying, I have no one to call being a Saturday, I have next to no support. I’ve just started Wellbutrin three days ago, and idk what to expect of this. I’m
My depression and anxiety is getting worse, now I feel like I’m suffering with some paranoia. I have severe OCD and it’s torture right now. I’m crying, I have no one to call being a Saturday, I have next to no support. I’ve just started Wellbutrin three days ago, and idk what to expect of this. I’m
Celestialbird
in
Anxiety and Depression Support
2 years ago
📚 Research 101: What do I have to do in a clinical trial?
The activities involved in a clinical trial are different for each trial. Before a trial starts, an independent regulatory body looks at the benefits and risks to make sure they are appropriate and makes sure that there is no unnecessary harm or discomfort for participants before it starts. Once the
The activities involved in a clinical trial are different for each trial. Before a trial starts, an independent regulatory body looks at the benefits and risks to make sure they are appropriate and makes sure that there is no unnecessary harm or discomfort for participants before it starts. Once the
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
Room with no windows or doors …alas hopefulness
I am struggling with my anxiety for decades. Suffered a lot, missed out on a lot and frustrated plenty as well as angry. one of the first things I told my therapist maybe 20 years ago was that I felt like I was stuck in a room with no windows or doors. No way to get answers, no escape from my circumstances
I am struggling with my anxiety for decades. Suffered a lot, missed out on a lot and frustrated plenty as well as angry. one of the first things I told my therapist maybe 20 years ago was that I felt like I was stuck in a room with no windows or doors. No way to get answers, no escape from my circumstances
Thankfulforhelp22
in
Anxiety and Depression Support
2 years ago
How to move on
I'm 33 years old and I've been struggling with depression and anxiety since I was 10. I had a life with a lot of traumatic experiences and, although I have access to treatments I still don't feel like I'm getting any better. I'm stuck inside my body, I find hard to get up in the morning, find it hard
I'm 33 years old and I've been struggling with depression and anxiety since I was 10. I had a life with a lot of traumatic experiences and, although I have access to treatments I still don't feel like I'm getting any better. I'm stuck inside my body, I find hard to get up in the morning, find it hard
SadMinnie
in
Anxiety and Depression Support
2 years ago
Information on clinical trial of large doses of B12?
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
clinical trial RBN-2397-19-001
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Cynthgob
in
Advanced Prostate Cancer
1 year ago
BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
A shared story of SCA3
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
wobblybee
in
Ataxia UK
1 year ago
Tube removal and FET
Hi guys, Had a HSG done yesterday and it confirmed I have a hydrosalpinx. Devastated as we were prepping for FET next month. Had a laparoscopy in Feb which didn't highlight a hydrosalpinx so it must be fairly new. Planning to go for surgery to remove my tube with the hydrosalpinx. Just wondering
Hi guys, Had a HSG done yesterday and it confirmed I have a hydrosalpinx. Devastated as we were prepping for FET next month. Had a laparoscopy in Feb which didn't highlight a hydrosalpinx so it must be fairly new. Planning to go for surgery to remove my tube with the hydrosalpinx. Just wondering
RaintoRainbows
in
Fertility Network UK
2 years ago
The Worst State of Depression.
I've had
clinical
depression
and anxiety from 5 years. I am taking medications with good compliance. I also got my medications changed twice. But from 2 weeks, my depression and anxiety has crippled me. It has grasped me tightly. I am literally numbed to the core. Unable to do a thing.
I've had
clinical
depression
and anxiety from 5 years. I am taking medications with good compliance. I also got my medications changed twice. But from 2 weeks, my depression and anxiety has crippled me. It has grasped me tightly. I am literally numbed to the core. Unable to do a thing.
Docmalik71
in
Anxiety and Depression Support
2 years ago
Supporting Children Suffering from Narcolepsy
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
1 year ago
Emotional rollercoaster
I joined the forum only a few weeks ago, at a time I was very severely struggling with major depression. I had little hope, but I was near my all-time low and desperately needed to try something. Anything. Since I joined, I have received countless kind words, helpful advice and reading suggestions,
I joined the forum only a few weeks ago, at a time I was very severely struggling with major depression. I had little hope, but I was near my all-time low and desperately needed to try something. Anything. Since I joined, I have received countless kind words, helpful advice and reading suggestions,
Sylvain-
in
Anxiety and Depression Support
2 years ago
Coping with heat
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
JeanieBeanie
in
Cure Parkinson's
2 years ago
KEYNOTE-B96 Clinical trial
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Vilinew
in
My Ovacome
1 year ago
ORION -4
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Sizzlerman
in
British Heart Foundation
1 year ago
depression, anxiety, panic
depression, anxiety, panic and fear of becoming that bi polar high guy that spends all my money. It never ends. Like there is no hope. Considering giving guardianship to my son because I can’t be trusted with my finances. There just seems to be no “in between “ place ever.
depression, anxiety, panic and fear of becoming that bi polar high guy that spends all my money. It never ends. Like there is no hope. Considering giving guardianship to my son because I can’t be trusted with my finances. There just seems to be no “in between “ place ever.
Redbeard53
in
Anxiety and Depression Support
2 years ago
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