Ataxia UK | HealthUnlocked

hello my friends, after having had body tremors and shaking hand since I was a small boy, I had an appointment with a Neurologist at my local hospital on...

What is a Molli Suit A comfortable jacket and trousers with built-in electro-stimulation for adults and children living with motor function and other...

I am very confused - what kind of care package do people with ataxia have - I need everyone help - I tell care manager that I have a mobility disability and...

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limited to just autoimmune ataxias or do other types like hereditary and acquired...

Ihave stopped driving my manual car. I have lost confidence as feet don’t always hit the pedals properly. I am wondering those who still drive is anautomatic...

hi there can anyone tell me if they have issues with their neck with ataxia as painful to lift head or just pain around shoulders & the back of the neck, I had...

Twice in last 6 months I’ve experienced a big change in leg strength. Once after plasma exchange (which lasted about 2/3 months), and again this week after a...

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me awake throughout the night, now great no spasms in the night. She has also...

hi don it really has been bad to you I walk like a drunk man and I have to hold the rail walking up stairs get tired legs just walking short distances but we...

The last time I went to see my neurologist a couple of weeks ago, it was someone from the team who I hadn't met before. He did the SARA test on me and was very...

Can anyone tell me, I have issues with my talking it’s not a slur but wanting to speak words out but not being able to, I know what I’m trying to say but I...

Just thought I would share the wee things that helped me last week. I arranged for someone to cut my grass once a fortnight . The council have put an assisted...

One time in my life I could walk, run and play sport. I could row for miles in my friends boat. I could climb mountains with my friend Nigel. But not any...

I read a previous post that someone else wrote about how it feels to have Ataxia.....I cannot find it now! Please can anyone point me in right direction I'd...

I think what was good for you before ataxia is good for you now. The only thing I had to give up was my tight rope walking as i needed two ropes because of my...

I was diagnosed with cerebellar ataxia about 7 years ago affecting my balance speech swallowing and coordination. I am currently finding it increasingly...

i am 46 and it is 8 years i feel some walking problems

I was talking with my wife about this forum & we found that reply’s & advice given & support gained is quicker, more useful than going to physio, IT even...

Researchers from King’s College London, software developers, and a group of people living with long-term conditions have co-designed a new intervention to help...

Hi all, I recently signed up for an app to do a month of wall Pilates to get some exercise and strengthen my core but only did about 18 days. The app I used...

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series Eastenders. https://www.ataxia.org.uk/in-memory-bill-treacher/?fbclid=

If you or someone you know is over 18 and has a confirmed diagnosis of a hereditary form of ataxia, you could take part in a new study on strength and balance...

can anyone tell me why my neck leads to the left recently with a burning sensation & grinding when I turn it. Has this to Ataxia as I’m still unsure of the...

When first diagnosed in 2004/5 I knew is was incurable but wanted to know more. I never heard about this site, maybe it did not exist yet, and was directed...

I have lived with ataxia for 34 years. I am an Ataxia UK Ambassador and former Co-Chair of Ataxia UK and have written a book: Disability Is Other People: My...

Has anyone had a tremor assessment prior to deep brain stimulation?

A virtual Art fundraiser for Ataxia UK. Follow the link just to look if you like but please share with anyone else who might be interested, on social media...