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Need advice on clinical trial RO7656594
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
Yadifan
in
Advanced Prostate Cancer
23 days ago
update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
23 days ago
What is Your Opinion on Docetaxel Added to Doublet Therapy for Early Oligorecurrent Metaststic M1a Prostate Cancer?
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
103532
in
Advanced Prostate Cancer
25 days ago
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Losing so much weight
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
LaRue44
in
Advanced Prostate Cancer
25 days ago
When is PARP introduced?
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
positive-thinking
in
Advanced Prostate Cancer
26 days ago
Recurrence :(
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Kjpip
in
My Ovacome
26 days ago
Losing my pubic hair
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
skiingfiend
in
Advanced Prostate Cancer
26 days ago
Update: NEPC Treatment
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
antisocialsocialwrkr
in
Advanced Prostate Cancer
27 days ago
Support in your local community.
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
Denzie
Volunteer
in
Lung Cancer Support
28 days ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
29 days ago
surgery before chemo
hi all My mums been diagnosed stage 3 HGSC - and the treatment plan has been determined to be surgery before chemo. My understanding was that chemo first was preferable - has anyone else had it in this order? (know I should trust the doctors but am overthinking a bit here! ☺️) thanks in advance
hi all My mums been diagnosed stage 3 HGSC - and the treatment plan has been determined to be surgery before chemo. My understanding was that chemo first was preferable - has anyone else had it in this order? (know I should trust the doctors but am overthinking a bit here! ☺️) thanks in advance
georgiageorgia182
in
My Ovacome
30 days ago
Ascites coming back,primary peritoneal
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
SupportingmyMum
in
My Ovacome
1 month ago
When should chemo restart post interval debulking surgery?
Hello ladies I am almost 5 weeks post surgery now and my consultant is happy to restart me on chemo now. Just wondered what experiences others have had in terms of coping with the ongoing recovery & chemo side effects. Thank you 🤗
Hello ladies I am almost 5 weeks post surgery now and my consultant is happy to restart me on chemo now. Just wondered what experiences others have had in terms of coping with the ongoing recovery & chemo side effects. Thank you 🤗
Kazzh
in
My Ovacome
1 month ago
Total hysterectomy with oopherectomy recovery advice needed please!
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hailun
in
Endometriosis UK
1 month ago
tired
Hi not been around for a while but I need some advice as you have all helped me before , finished chemo last September then unfortunately had sepsis in November that knocked me for six , and it’s only been 18 months since I lost my husband. This exhausted feeling from chemo does it go xx
Hi not been around for a while but I need some advice as you have all helped me before , finished chemo last September then unfortunately had sepsis in November that knocked me for six , and it’s only been 18 months since I lost my husband. This exhausted feeling from chemo does it go xx
Cazy1010
in
My Ovacome
1 month ago
CHEMO Effects
A friend of mine finished 6 sessions of Taxater Dec 6th. He still has bouts of serious nasuea, which he attributes to the chemo. Anyone have any experience with this?
A friend of mine finished 6 sessions of Taxater Dec 6th. He still has bouts of serious nasuea, which he attributes to the chemo. Anyone have any experience with this?
Joeym1040
in
Advanced Prostate Cancer
1 month ago
Finishing Olaparib PARP after 2 years
Hi All I've been on Olaparib for the past 2 years following frontline chemo (NED) for ovarian cancer (stage 3) and I'm due to finish in May. In one way I'm pleased as I've been very worried about developing MDS/AML following a few scares with my white blood cells dropping. On the other hand, I'm
Hi All I've been on Olaparib for the past 2 years following frontline chemo (NED) for ovarian cancer (stage 3) and I'm due to finish in May. In one way I'm pleased as I've been very worried about developing MDS/AML following a few scares with my white blood cells dropping. On the other hand, I'm
Carpediem68
in
My Ovacome
1 month ago
update
unfortunately the liver mets have returned to Martins liver. It is 6 months since chemo finished. There are multiple small mets. Martin is still feeling well. No fatigue, loss of appetite or pain. His MO said that this is very bad and gave a prognosis of 12 months. He is starting Martin on carboplatin
unfortunately the liver mets have returned to Martins liver. It is 6 months since chemo finished. There are multiple small mets. Martin is still feeling well. No fatigue, loss of appetite or pain. His MO said that this is very bad and gave a prognosis of 12 months. He is starting Martin on carboplatin
Believeit
in
Advanced Prostate Cancer
1 month ago
Skull met has spread
My appointment with my oncologist yesterday made me aware after reviewing the MRI from last week, that the met that was on my skull is now spread into soft matter in my head. I was set to start a double Chemo treatment yesterday , but it was decided the treatment would do no good, and that quality
My appointment with my oncologist yesterday made me aware after reviewing the MRI from last week, that the met that was on my skull is now spread into soft matter in my head. I was set to start a double Chemo treatment yesterday , but it was decided the treatment would do no good, and that quality
docbulldog
in
Advanced Prostate Cancer
1 month ago
SOS From Across The Pond
How does this read? I'm reaching out on a couple of message boards where old folks suffer with advanced osteoporosis: "I'm in bad shape, can’t stand erect, in pain all the time, compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3
How does this read? I'm reaching out on a couple of message boards where old folks suffer with advanced osteoporosis: "I'm in bad shape, can’t stand erect, in pain all the time, compression fractures up & down lumbar to thoracic. It’s been about 3 years in total 11 compression fractures. I’ve had 3
Lisannn
in
Bone Health and Osteoporosis UK
1 month ago
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