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Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 5 September 2021 - 5 July 2022
• As first line treatment you must have had either: •
Chemotherapy
only • Surgery and then
chemotherapy
•
Chemotherapy
, followed by surgery, followed by more
chemotherapy
• You must have finished your first line
chemotherapy
treatment between two and 12 months prior to taking part in the survey
• As first line treatment you must have had either: •
Chemotherapy
only • Surgery and then
chemotherapy
•
Chemotherapy
, followed by surgery, followed by more
chemotherapy
• You must have finished your first line
chemotherapy
treatment between two and 12 months prior to taking part in the survey
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 years ago
My sct progress
Here's an update on my sct. I had my donor cells 31 Jan following 6 days radiotherapy and 5 days chemo. My neutrophils have crept up in the last 3 days to 1.15 which is good. However I am really down because of the nausea and am regretting my decision unless this improves
Here's an update on my sct. I had my donor cells 31 Jan following 6 days radiotherapy and 5 days chemo. My neutrophils have crept up in the last 3 days to 1.15 which is good. However I am really down because of the nausea and am regretting my decision unless this improves
Scaredy_cat
in
MPN Voice
1 year ago
Should I ask for a new assessment - fourth edition
Finally got to see the
Chemotherapy
Consultant. She was very nice, very patient and explained everything thoroughly, not just about the
chemotherapy
but the state of my cancer too. I learned quite a bit about myself and my cancer and many questions were answered.
Finally got to see the
Chemotherapy
Consultant. She was very nice, very patient and explained everything thoroughly, not just about the
chemotherapy
but the state of my cancer too. I learned quite a bit about myself and my cancer and many questions were answered.
ginkgo
in
The Roy Castle Lung Cancer Foundation
2 years ago
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Hi! Choices???? RADIATION or......(not radiation!) PCA, Gleason 9, mets in pelvis and (possibly more) Have had chemo 6x doxetaxel
Hi all.Need some guidance from your experiences. Gleason 9, PCA into pelvis. Just finished 6 sessions of doxetaxel Last PSA was 0.21 I've been offered and recommended radiotherapy 6 sessions (1 a week) specifically to the prostate. I'm 50.... I don't like the sound of some of side effects. Has any
Hi all.Need some guidance from your experiences. Gleason 9, PCA into pelvis. Just finished 6 sessions of doxetaxel Last PSA was 0.21 I've been offered and recommended radiotherapy 6 sessions (1 a week) specifically to the prostate. I'm 50.... I don't like the sound of some of side effects. Has any
Mrtroxely
in
Advanced Prostate Cancer
1 year ago
lymph nodes
What is the treatment now, Radiation,
Chemotherapy
, different drug. ?
What is the treatment now, Radiation,
Chemotherapy
, different drug. ?
Papadave
in
Advanced Prostate Cancer
2 years ago
maybe decision time???
I started May 21 with a diag of aggressive Stage 4 with vast mets, skull, clavicle, sternum, entire spine, sacrum pelvis and hips. Spots in lungs, liver, spleen and many large lymph areas upper and lower body. Inital PSA 1065, Lupron, Zytiga, Pred, Zometa. PMSA January 2023 10 avid sights in ribs and
I started May 21 with a diag of aggressive Stage 4 with vast mets, skull, clavicle, sternum, entire spine, sacrum pelvis and hips. Spots in lungs, liver, spleen and many large lymph areas upper and lower body. Inital PSA 1065, Lupron, Zytiga, Pred, Zometa. PMSA January 2023 10 avid sights in ribs and
katartizo61
in
Prostate Cancer Network
1 year ago
Pluvicto
Does anyone have any experience with this drug? Relative is in his 70s and has bone metastases in the pelvis, but has not spread beyond that. Has gone through chemo which helped and other treatments but cancer is still growing slowly. Still walking around but fears being bed bound, losing lots of weight
Does anyone have any experience with this drug? Relative is in his 70s and has bone metastases in the pelvis, but has not spread beyond that. Has gone through chemo which helped and other treatments but cancer is still growing slowly. Still walking around but fears being bed bound, losing lots of weight
TheDude90
in
Advanced Prostate Cancer
1 year ago
possible ONJ-- seeing an oral surgeon for the first time tomorrow morning
My dentist referred me to an oral surgeon as I have a small area of exposed bone behind my right lower molar, and have been on meds for bone mets (Zometa first, now Xgeva) since diagnosis in 2004. I've done well in terms of the bone mets and the women I have met who've had ONJ have generally done well
My dentist referred me to an oral surgeon as I have a small area of exposed bone behind my right lower molar, and have been on meds for bone mets (Zometa first, now Xgeva) since diagnosis in 2004. I've done well in terms of the bone mets and the women I have met who've had ONJ have generally done well
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
Recurrence update
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Barmycharm
in
My Ovacome
1 year ago
Change from Ropinerole to Rigotine patches
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
Ruffabug
in
Restless Legs Syndrome
1 year ago
Nubeqa failing onto C-94676 clinical trial
I was f first offered
chemotherapy
with docetaxal which is the standard of care, go on Abiraterone acetate, or enzalutimide , or enroll in a clinical trial of an AR degrader C-94676 which is in phase1/2 where dose escalation has reportedly been completed.
I was f first offered
chemotherapy
with docetaxal which is the standard of care, go on Abiraterone acetate, or enzalutimide , or enroll in a clinical trial of an AR degrader C-94676 which is in phase1/2 where dose escalation has reportedly been completed.
wagscure259
in
Advanced Prostate Cancer
1 year ago
Vancouver liquid biopsy NGS for lung cancer?
Hi all, I first signed up to this support group when my Mum was diagnosed NSCLC in 2018, she sadly passed away in 2021 after trying Iressa (~1yr), chemo (~1yr), and Tagrisso (~10m). Unfortunately, my ~70yr old uncle who lives in Vancouver had a CT scan last week that showed a change (from one year
Hi all, I first signed up to this support group when my Mum was diagnosed NSCLC in 2018, she sadly passed away in 2021 after trying Iressa (~1yr), chemo (~1yr), and Tagrisso (~10m). Unfortunately, my ~70yr old uncle who lives in Vancouver had a CT scan last week that showed a change (from one year
waterchestnut
in
Lung Cancer Support
1 year ago
Diagnosed Gleason 8 Biopsy 7/2022 Ductal PC sent out added Cribform Architecture. Anyone here with PC w/ Cribform Pattern?
core with necrosis and questionable atypical cells Stage 4 Gleason 8 3 Lytic Lesions (unusual or rare) CT Scan, Pylarify Pet Scan, Bone Scan, 3T 3D guided MRI with write over 07/15/2022 Transperineal Biopsy Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 and Docetaxel
Chemotherapy
core with necrosis and questionable atypical cells Stage 4 Gleason 8 3 Lytic Lesions (unusual or rare) CT Scan, Pylarify Pet Scan, Bone Scan, 3T 3D guided MRI with write over 07/15/2022 Transperineal Biopsy Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 and Docetaxel
Chemotherapy
Shorehousejam
in
Advanced Prostate Cancer
2 years ago
Abiraterone/enzalutamide+PARP inhibitor better than abiraterone/enzalutamide alone for mCRPC, even without BRCA+
A new therapy may be approved next month for all men with mCRPC. Previously, PARP inhibitors were only approved for men with mutations in the BRCA gene (BRCA+) and a few other rare similar mutations. By combining the PARP inhibitor (Lynparza (olaparib) or Talzenna (talazoparib)) with either abiraterone
A new therapy may be approved next month for all men with mCRPC. Previously, PARP inhibitors were only approved for men with mutations in the BRCA gene (BRCA+) and a few other rare similar mutations. By combining the PARP inhibitor (Lynparza (olaparib) or Talzenna (talazoparib)) with either abiraterone
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
6 rounds of chemo before surgery HGSC
Hi everyone, has anyone had 6 rounds of chemo prior to surgery? My mum has high grade serous, not sure which stage, I think she is stage 3 at least, but now I’m worried she is stage 4 because the doctors want to do 6 rounds of chemo instead of 3 before surgery. They have said her gall bladder and spleen
Hi everyone, has anyone had 6 rounds of chemo prior to surgery? My mum has high grade serous, not sure which stage, I think she is stage 3 at least, but now I’m worried she is stage 4 because the doctors want to do 6 rounds of chemo instead of 3 before surgery. They have said her gall bladder and spleen
Shorty18
in
My Ovacome
1 year ago
CA 125… waitting CT
the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments ca 125 was down from 350 to 40, some lymph was "suriver"after that but doctor sent her for watch and wait. after 2 month her ca was up to 95, after 3 month from last chemo 230 and now 5 month after chemo it is 370. if i count
the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments ca 125 was down from 350 to 40, some lymph was "suriver"after that but doctor sent her for watch and wait. after 2 month her ca was up to 95, after 3 month from last chemo 230 and now 5 month after chemo it is 370. if i count
Inguc_is
in
My Ovacome
1 year ago
Rise in CA125
Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back after being told of a rise in her CA125 levels. It was 16, then 22, and now shot up to 92. She's stage 4 borderline, had 6x chemo, optimal debulking surgery, and was declared NED August last year — she's also completing a year
Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back after being told of a rise in her CA125 levels. It was 16, then 22, and now shot up to 92. She's stage 4 borderline, had 6x chemo, optimal debulking surgery, and was declared NED August last year — she's also completing a year
georgialocksss
in
My Ovacome
1 year ago
Imbruvica
I underwent
chemotherapy
(FCR) in 2010-2011. The CLL went into remission. Now my white blood cells are increasing and my platelets are decreasing. I am in very good shape and my quality of life is excellent. My oncologist is considering treating me with Imbruvica.
I underwent
chemotherapy
(FCR) in 2010-2011. The CLL went into remission. Now my white blood cells are increasing and my platelets are decreasing. I am in very good shape and my quality of life is excellent. My oncologist is considering treating me with Imbruvica.
DesertRat6
in
CLL Support
2 years ago
Tailbone Spasms from Neulasta
After my second dose of chemo (Docetaxel), I ended up in the ER with a fever. My white blood cell count was 1.2 K/CMM and Neutrophils were 0 K/CMM (!). Anyway, I was approved for Neulasta and had the injection 24 hours after my 3rd chemo infusion. Six days later I woke up with horrible pain and spasms
After my second dose of chemo (Docetaxel), I ended up in the ER with a fever. My white blood cell count was 1.2 K/CMM and Neutrophils were 0 K/CMM (!). Anyway, I was approved for Neulasta and had the injection 24 hours after my 3rd chemo infusion. Six days later I woke up with horrible pain and spasms
carguy
in
Advanced Prostate Cancer
1 year ago
Chemo brain
Hi does anybody else struggle with what is called chemo brain?
Hi does anybody else struggle with what is called chemo brain?
Platelets2022
in
Leukaemia CARE
1 year ago
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