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Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
5 months ago
Topamax insomnia?
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
wantokporo
in
Restless Legs Syndrome
11 months ago
help!!! Kind of in limbo with a diagnosis!
I sent him all of my test results and told him all of my symptoms and he concluded that I definitely have pernicious
anaemia
and I need injections every other day along with folic acid daily and consuming potassium rich foods.
I sent him all of my test results and told him all of my symptoms and he concluded that I definitely have pernicious
anaemia
and I need injections every other day along with folic acid daily and consuming potassium rich foods.
Amyflood246
in
Pernicious Anaemia Society
1 year ago
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GP Consultation
One area that I question is that when I mentioned pernicious
anaemia
, he said ‘no, it’s ok, you are not anaemic’🤔 He was also unaware that a change in brand could cause a problem, but was willing to listen when I respectfully pointed out the problems that could occur with Teva.
One area that I question is that when I mentioned pernicious
anaemia
, he said ‘no, it’s ok, you are not anaemic’🤔 He was also unaware that a change in brand could cause a problem, but was willing to listen when I respectfully pointed out the problems that could occur with Teva.
SpringerMom
in
Thyroid UK
7 months ago
T4 to T3 conversion.
I regularly self inject B12 as I have pernicious
anaemia
. I supplement with D3, magnesium and omega 3 oil. For the past couple of months my muscle pain/joint pain has been getting steadily worse. Also numbness and tingling in my thighs.
I regularly self inject B12 as I have pernicious
anaemia
. I supplement with D3, magnesium and omega 3 oil. For the past couple of months my muscle pain/joint pain has been getting steadily worse. Also numbness and tingling in my thighs.
miravet
in
Thyroid UK
10 months ago
Thyroid levels advice for friend with newly dx Hashi and P.A please?
Hi, a friend has been supporting me in getting a Pernicious
Anaemia
diagnosis, as she also has it.
Hi, a friend has been supporting me in getting a Pernicious
Anaemia
diagnosis, as she also has it.
Opal79
in
Thyroid UK
11 months ago
Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
5 months ago
Taking Ferrous Sulphate Exhausts Me, Any Alternatives?
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Sparklymacarons
in
Pernicious Anaemia Society
11 months ago
Better Late Than Never
[i]Pernicious
Anaemia
is an autoimmune disease so inflammation can be everywhere[/i]. The brain is particularly susceptible. So, this can be a complication of PA or any another Autoimmune Disease which we may have. However, the recognition and management of Encephalitis is very poor by medics.
[i]Pernicious
Anaemia
is an autoimmune disease so inflammation can be everywhere[/i]. The brain is particularly susceptible. So, this can be a complication of PA or any another Autoimmune Disease which we may have. However, the recognition and management of Encephalitis is very poor by medics.
Narwhal10
in
Pernicious Anaemia Society
3 months ago
Immunoglobin Blood Test.
I asked if it could be to do with Pernicious
Anaemia
which I have had for 36 years. I am 67 now. Nurse said the GP didn't mention it.
I asked if it could be to do with Pernicious
Anaemia
which I have had for 36 years. I am 67 now. Nurse said the GP didn't mention it.
dollcat
in
Pernicious Anaemia Society
8 months ago
I noticed something.
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
Helliborous
in
Pernicious Anaemia Society
11 months ago
Mrjustatip
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
MrJustatip
in
Pernicious Anaemia Society
11 months ago
Tirosint
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
Da52
in
Thyroid UK
5 months ago
Ferritin success, anyone wishing to try the same ... especially if vegan
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
thyr01d
in
Thyroid UK
11 months ago
My evaluation of which form of B12 is best.
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
what is Transferrin and why is mine low?
Merry Xmas everyone i had a recent full iron panel & blood count done. Everything is ok/in range but my transferrin is low. any idea what it is and it should be the ONLY thing that’s out of range for me? thank you
Merry Xmas everyone i had a recent full iron panel & blood count done. Everything is ok/in range but my transferrin is low. any idea what it is and it should be the ONLY thing that’s out of range for me? thank you
PixieElv
in
Thyroid UK
5 months ago
b12 symptoms
Gp agreed to start b12 injections even though blood test showed no
anaemia
and high serum B12 as 2021 started with pins and needles and left sided headaches which then increased over time to list below but referred me to haematologist because felt uncomfortable to give more loading doses due to lack
Gp agreed to start b12 injections even though blood test showed no
anaemia
and high serum B12 as 2021 started with pins and needles and left sided headaches which then increased over time to list below but referred me to haematologist because felt uncomfortable to give more loading doses due to lack
Fluffyone
in
Pernicious Anaemia Society
6 months ago
update pins n needles in both thumbs
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
9lives
in
PMRGCAuk
11 months ago
B12 and Serum Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Mumof3z
in
Pernicious Anaemia Society
11 months ago
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