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low folate
I don’t have
anaemia
. Thank you
I don’t have
anaemia
. Thank you
Gwelos
in
PBC Foundation
11 months ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
9 months ago
Peripheral neuropathy and neurology's response
It is unlikely that she has functional B12 deficiency with no
anaemia
/normal MCV (it's very rare). I don't know if there can be a toxic effect from the B12 injections. We can see her but it will take a long time as a routine OP. My questions!
It is unlikely that she has functional B12 deficiency with no
anaemia
/normal MCV (it's very rare). I don't know if there can be a toxic effect from the B12 injections. We can see her but it will take a long time as a routine OP. My questions!
LizWilsonpa
in
Pernicious Anaemia Society
13 days ago
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8 week bloodtest
Hi all, I've been on a reduced levothyroxine dose of 125mcg for the last 8 weeks and i stopped taking the iron tablets as my stomach was too painful, so for the past 7 weeks i've been using an iron patch. My dr agreed to retest my iron as i didn't want to be wasting my time and money if the patches
Hi all, I've been on a reduced levothyroxine dose of 125mcg for the last 8 weeks and i stopped taking the iron tablets as my stomach was too painful, so for the past 7 weeks i've been using an iron patch. My dr agreed to retest my iron as i didn't want to be wasting my time and money if the patches
catpurple7
in
Thyroid UK
9 months ago
How much folic acid while on ED injections?
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
Asselchen
in
Pernicious Anaemia Society
9 months ago
hashimotos and hypo/hyperparathyrodism
I also have a diagnosis of pernicious
anaemia
which can also cause hypo/hyperparathyroidism. I do not believe a GP would have enough knowledge in this field to know what tests to request.
I also have a diagnosis of pernicious
anaemia
which can also cause hypo/hyperparathyroidism. I do not believe a GP would have enough knowledge in this field to know what tests to request.
hippy66
in
Thyroid UK
3 months ago
Euthyroid Sick Syndrome
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Sooty101
in
Thyroid UK
9 months ago
Ferritin levels
Got bloods taken last week, the GP who ordered them isn't in until Wed, but I spoke to receptionist who said all had been returned as "normal" levels. I asked her to read out my ferritin and she said it was 64. So I know this isn't "normal" for folks with RLS and I image the GP will put me on iron supplements
Got bloods taken last week, the GP who ordered them isn't in until Wed, but I spoke to receptionist who said all had been returned as "normal" levels. I asked her to read out my ferritin and she said it was 64. So I know this isn't "normal" for folks with RLS and I image the GP will put me on iron supplements
Mikamydog
in
Restless Legs Syndrome
9 months ago
Results of latest trial.
When I first started doing trials I did them for 120 days, then 90. This was based on the average lifespan of a red blood cell which I no longer consider. I found over time that 30 day trials seemed effective sometimes I found the results to be definitive in 7+- days when reducing or eliminating And
When I first started doing trials I did them for 120 days, then 90. This was based on the average lifespan of a red blood cell which I no longer consider. I found over time that 30 day trials seemed effective sometimes I found the results to be definitive in 7+- days when reducing or eliminating And
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
high monocytes
am at end of cycle 3 of o+v Today monocytes 31% I did need neupogen shot - wbc 1.6 and anc .6 does anyone know if this monocyte number is cause for concern, has anyone had this kind of thing before? This no has never been above 20 for me since I started treatment. I have had zero side effects.
am at end of cycle 3 of o+v Today monocytes 31% I did need neupogen shot - wbc 1.6 and anc .6 does anyone know if this monocyte number is cause for concern, has anyone had this kind of thing before? This no has never been above 20 for me since I started treatment. I have had zero side effects.
SurfSurf
in
CLL Support
9 months ago
Megloblastic anemia again
Hi, all. I recently went through a severe sickness that lasted 4 weeks. It was really hard on my body. I got blood tests done every week. I usually do 2 injections of b12 per week for past 6 months. During my sickness I only did 2 out 8 shots. My last 2 blood tests showed megloblastic anemia. Could
Hi, all. I recently went through a severe sickness that lasted 4 weeks. It was really hard on my body. I got blood tests done every week. I usually do 2 injections of b12 per week for past 6 months. During my sickness I only did 2 out 8 shots. My last 2 blood tests showed megloblastic anemia. Could
Iheartb12
in
Pernicious Anaemia Society
9 months ago
Update
Thanks for everyones kind help. I have now asked to be reviewed by Haemotology and have emailed my results to the docter asking for an urgent neck ultrasound. No response as yet. I have randomly been given an appointment for a lung function test. If my windpipe is blocked will this show anything? Keep
Thanks for everyones kind help. I have now asked to be reviewed by Haemotology and have emailed my results to the docter asking for an urgent neck ultrasound. No response as yet. I have randomly been given an appointment for a lung function test. If my windpipe is blocked will this show anything? Keep
JCMartin
in
Thyroid UK
6 months ago
Blood results help please
After my recent GP visit and waiting for several months, I finally have my blood results. It wasn't an easy one though. After a terrible GP apt where I was constantly interrupted and made feel like I'm wasting her time, where she has told me that all hypothyroidism is Hashimotos and refusing to check
After my recent GP visit and waiting for several months, I finally have my blood results. It wasn't an easy one though. After a terrible GP apt where I was constantly interrupted and made feel like I'm wasting her time, where she has told me that all hypothyroidism is Hashimotos and refusing to check
bajmon
in
Thyroid UK
9 months ago
Starting B12 injections, how often?
Hello everybody, I will be receiving my first B12 injection next week. My blood test results were as follows folate 3.4ug/L, ferritin 19.9ug/L and B12 218ug/L before any medication. I started on iron and folate tablets a week ago. What I'm wondering is how often should I be getting the B12 injection
Hello everybody, I will be receiving my first B12 injection next week. My blood test results were as follows folate 3.4ug/L, ferritin 19.9ug/L and B12 218ug/L before any medication. I started on iron and folate tablets a week ago. What I'm wondering is how often should I be getting the B12 injection
Sotired3
in
Pernicious Anaemia Society
9 months ago
Chronic pain , degenerative spinal disease
Every 8 weeks I have a B12 injection for management of Pernicious
Anaemia
diagnosed in 1985. However, the pains shooting into my toes and burning sensation around week 6, drives me crazy. The GP is nice but does not understand my predicament.
Every 8 weeks I have a B12 injection for management of Pernicious
Anaemia
diagnosed in 1985. However, the pains shooting into my toes and burning sensation around week 6, drives me crazy. The GP is nice but does not understand my predicament.
HappyLass1e
in
Neuro Support
7 months ago
Problems with medication supplies
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Wytchylady
in
LUPUS UK
6 months ago
GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
6 months ago
Advice on folic acid
I was diagnosed with pernicious
anaemia
in nov last year . I am 65 years old and also have hashimotos thyroiditis for 30 + yrs. I had been under my gp for low b12 and folate for over a year ( just given folic acid) as my b12 was not low enough to start injections. PA runs in our family though.
I was diagnosed with pernicious
anaemia
in nov last year . I am 65 years old and also have hashimotos thyroiditis for 30 + yrs. I had been under my gp for low b12 and folate for over a year ( just given folic acid) as my b12 was not low enough to start injections. PA runs in our family though.
Charlie27612
in
Pernicious Anaemia Society
1 year ago
B12 - advice on supplementing injections sought
Hi, I was recently diagnosed with pernicious
anaemia
. Initially put on 3-monthly injections. Changed to 2-monthly by GP because of recurrence of neurological symptoms (including frequent scintillating scotomas, migraine and balance issues).
Hi, I was recently diagnosed with pernicious
anaemia
. Initially put on 3-monthly injections. Changed to 2-monthly by GP because of recurrence of neurological symptoms (including frequent scintillating scotomas, migraine and balance issues).
skylark25
in
Pernicious Anaemia Society
1 year ago
A positive tale...so far
He diagnosed me with Autoimmune Negative Pernicious
Anaemia
, and recommend I continue with twice weekly subcutaneous injections, which he taught me to self administer. I gave my GP a copy of the consultant's letter along with a note to say I was going to self inject. Out and proud!
He diagnosed me with Autoimmune Negative Pernicious
Anaemia
, and recommend I continue with twice weekly subcutaneous injections, which he taught me to self administer. I gave my GP a copy of the consultant's letter along with a note to say I was going to self inject. Out and proud!
Myoldcat
in
Pernicious Anaemia Society
3 months ago
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