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anaemia
I’m hoping it’s the
anaemia
and not the polymyalgia coming back 😤😤
I’m hoping it’s the
anaemia
and not the polymyalgia coming back 😤😤
Gardendaffodil
in
PMRGCAuk
1 year ago
Cambridge Anaemia Clinic
I have heard of the Cambridge
anaemia
Clinic . Has anybody on here used it please. I have seen it recommended on other sites. Thanks
I have heard of the Cambridge
anaemia
Clinic . Has anybody on here used it please. I have seen it recommended on other sites. Thanks
smg1950
in
Pernicious Anaemia Society
11 months ago
Vitamin b12/Folate deficiency
Hi all, Firstly can I say how helpful I’ve found this forum with the issues I’ve had with my health recently. I’ve recently been diagnosed by my GP with b12 and folate deficiency. I had a blood test (in the UK) and was told my level was 125 (not sure what unit of measure). It was suggested I had a
Hi all, Firstly can I say how helpful I’ve found this forum with the issues I’ve had with my health recently. I’ve recently been diagnosed by my GP with b12 and folate deficiency. I had a blood test (in the UK) and was told my level was 125 (not sure what unit of measure). It was suggested I had a
Madman070578
in
Pernicious Anaemia Society
6 months ago
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Blood work
I recently got my blood tested so I could check for ferritin levels and my ferritin was at 329. I had gotten my blood test a year ago when I first saw the doctor for RLS but they’d didn't test ferritin levels at that time. My doctor just messaged me about my new results and said my results showed elevation
I recently got my blood tested so I could check for ferritin levels and my ferritin was at 329. I had gotten my blood test a year ago when I first saw the doctor for RLS but they’d didn't test ferritin levels at that time. My doctor just messaged me about my new results and said my results showed elevation
Tbone87
in
Restless Legs Syndrome
6 months ago
How much folate is everyone taking?
How much folate is everyone taking?I’m now currently twice a day, will be moving to three times a day. When I was injecting once a day, I was taking one 5mg of folic acid. Now that I’ve increased my injections, im wondering if I should increase my folic acid.
How much folate is everyone taking?I’m now currently twice a day, will be moving to three times a day. When I was injecting once a day, I was taking one 5mg of folic acid. Now that I’ve increased my injections, im wondering if I should increase my folic acid.
qwertystar
in
Pernicious Anaemia Society
6 months ago
Panpharma B12 Depot out of stock at Apohealth - now what do I do?
Hi I made the mistake of ordering Panpharma Vitamin B12 from Apohealth recently but when it came the box looked a bit different and I realised I'd not ordered the "depot" version. I had cobalamin not hydroxy. So, annoyed with myself, I sent them back. I kept forgetting to reorder. Came to do it
Hi I made the mistake of ordering Panpharma Vitamin B12 from Apohealth recently but when it came the box looked a bit different and I realised I'd not ordered the "depot" version. I had cobalamin not hydroxy. So, annoyed with myself, I sent them back. I kept forgetting to reorder. Came to do it
FancyPants54
in
Pernicious Anaemia Society
6 months ago
Vitamin D and Anemia: Insights into an Emerging Association
Found an interesting study. The conclusion sold it for me. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4659411/ CONCLUSION Vitamin D is associated with anemia in various study populations and recent evidence suggests that the association may differ by race and is likely specific to anemia of inflammation
Found an interesting study. The conclusion sold it for me. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4659411/ CONCLUSION Vitamin D is associated with anemia in various study populations and recent evidence suggests that the association may differ by race and is likely specific to anemia of inflammation
WideBody
in
Restless Legs Syndrome
6 months ago
Hypothesis II
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Anaemia Test timing
Hi, I have an
anaemia
test kit from Monitor My Health. Does it matter what time of day I do the fingerprick? What about eating or drinking, does that matter? I know I need to get it in the post asap. Thanks for any help from those more expereinced with these tests 😊
Hi, I have an
anaemia
test kit from Monitor My Health. Does it matter what time of day I do the fingerprick? What about eating or drinking, does that matter? I know I need to get it in the post asap. Thanks for any help from those more expereinced with these tests 😊
Hidden
in
Thyroid UK
11 months ago
Confused by GP's answer
I was initially diagnosed with Pernicious
Anaemia
in 2017,received 5 of 6 loading injections - went for 6th injection, asked how I felt, I said alive and was then told I didn't need any more injections.
I was initially diagnosed with Pernicious
Anaemia
in 2017,received 5 of 6 loading injections - went for 6th injection, asked how I felt, I said alive and was then told I didn't need any more injections.
Doddlebug
in
Pernicious Anaemia Society
1 year ago
Will NHS GP accept results of Medichecks IFAB test if positive?
FBCs fine - no
anaemia
or macrocytosis although higher MCH (31.6 range 27 - 32) than previously. GP dismissed the idea of further investigations as B12 is within normal range and no
anaemia
even though I pointed out Hashimotos and PA can go hand in hand. More background in my previous post.
FBCs fine - no
anaemia
or macrocytosis although higher MCH (31.6 range 27 - 32) than previously. GP dismissed the idea of further investigations as B12 is within normal range and no
anaemia
even though I pointed out Hashimotos and PA can go hand in hand. More background in my previous post.
Realtiger
in
Pernicious Anaemia Society
1 year ago
EPO and IV iron infusion
She is getting EPO injection once in two weeks to treat
anaemia
. She was given iron infusion shots (500 mg)two months back. She was feeling very energetic just after two weeks. Now her haemoglobin has again came down again.
She is getting EPO injection once in two weeks to treat
anaemia
. She was given iron infusion shots (500 mg)two months back. She was feeling very energetic just after two weeks. Now her haemoglobin has again came down again.
Mentoslfc
in
Kidney Disease
7 months ago
Undiagnosed Hashimotos update.
They ran more bloods, including, for pernicious
anaemia
, celiacs, and rheumatoid indicators.
They ran more bloods, including, for pernicious
anaemia
, celiacs, and rheumatoid indicators.
Rosieunwell
in
Thyroid UK
6 months ago
ALS and B12
I ran across an article that was interesting, if for no other reason, for its quite detailed description of B12 deficiency. Scroll down to the heading, "Vitamin B12 levels and MND/ALS". https://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-4-298
I ran across an article that was interesting, if for no other reason, for its quite detailed description of B12 deficiency. Scroll down to the heading, "Vitamin B12 levels and MND/ALS". https://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-4-298
WiscGuy
in
Pernicious Anaemia Society
6 months ago
Shot in the Dark
I had iron deficient
anaemia
in 2020. Feel like I’m going mad!
I had iron deficient
anaemia
in 2020. Feel like I’m going mad!
marillo
in
Thyroid UK
6 months ago
Excellent explanation about B12 and malabsorption: may be due to other things besides pernicious anaemia
https://www.easy-immune-health.com/b12-malabsorption.html This article explains so well about B12 being malabsorbed; may not always be PA; could be H Pylori or other things. Explains everything really well. I have read: 'Could it be B12?' by Sally M. Pacholok and Jeffrey J. Stuart and it reflects similar
https://www.easy-immune-health.com/b12-malabsorption.html This article explains so well about B12 being malabsorbed; may not always be PA; could be H Pylori or other things. Explains everything really well. I have read: 'Could it be B12?' by Sally M. Pacholok and Jeffrey J. Stuart and it reflects similar
Hidden
in
Pernicious Anaemia Society
11 months ago
Iron profile
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
Baz33
in
Restless Legs Syndrome
6 months ago
medical records
It’s a bit basic but it takes me back to the 1970’s and shows I was first diagnosed with pernicious
anaemia
. I hope this is of some use. Best wishes x
It’s a bit basic but it takes me back to the 1970’s and shows I was first diagnosed with pernicious
anaemia
. I hope this is of some use. Best wishes x
Hedgehogs15
in
Pernicious Anaemia Society
7 months ago
Sitagliptin
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
CORFUORBUST
in
Restless Legs Syndrome
6 months ago
Bruxism, botulinum toxin, Hashimoto, anxiety, tension
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
Margimet
in
Thyroid UK
6 months ago
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