Hi. just joined this group. I have bronchiectasis and while it is still mild I am noticing some symptoms such as disgusting taste in my mouth and extreme tiredness at times. I have spent time since the diagnosis looking for clinical trials and future research to give me some hope for the future. I looked at stem cells which u can have done privately at the lung institute in USA, however have read some red flags being waved for this treatment as it is said it is just interested in the money. The American lung institute don't recommend this treatment and say stem cell treatment is still 20 years away.
There is a lady who had this treatment but I cant find any recent posts on the website health unlocked regarding her condition.
There is a clinical trial going on now on Clinical trials.gov but as yet there is no data results.
I do wonder about treatments such as removal of damaged bronchial area and /or shunts but I cannot find anything(I am probably unaware of the significance of such treatments as I am not a doctor) but am hoping these will eventually be considered when and if problems which such treatments are overcome.
Anyone with any information regarding new areas of research or information about the treatments discussed would be very welcome.
Many thanks Sue Harris.