How to get a Serum Tryptase test? - The UK Mastocytos...

The UK Mastocytosis Support Group

592 members252 posts

How to get a Serum Tryptase test?

Artemis88 profile image
0 Replies

I believe that I have MCAS and hypermobility syndrome, and I am trying to get both diagnosed. So far, I've not had much luck. I had a reaction the other day which left me with a hoarse voice, difficultly swallowing, sudden tinnitus, dizziness and mild tachycardia. I ended up not seeing anyone because work was panicking about me leaving as I'm the only one there who knows full job currently. I spoke to a GP at my surgery next day though and asked for Epipens which I was given. I also asked if I could request a serum tryptase test and he said he didn't think that they could arrange that and it would be up to the allergy clinic. Except I've looked at the two closest immunology departments, Leeds and Manchester and both say they do not do the investigations for MCAS or Masocytosis and can only be referred once I have a diagnosis. So how do I get a diagnosis without the serum tryptase? I can't avoid to pay for the test privately.

Written by
Artemis88 profile image
Artemis88
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

Help please. MCAS investigation on the NHS?

Hi. Sorry this is quite long but would be grateful if a anyone is able to help. I've been trying...
meromano profile image

Advice please,

Hi everyone, I'm starting to really struggle now. I'm pretty sure I've...
Sotonowl profile image

Anyone had Omeprazole cause Myositis?

Hi, I've had a diagnosis of MCAS, but I had an argument with my rheumatologist because I don't...
Chancery profile image

Might I have Mastocytosis rather than MCAS?

Hi, I experienced a very strange phenomenon last night that I've never had before and it's made me...
Chancery profile image

over the counter antihistamines

Hi all, I was first diagnosed with UP in 2003 by a private doctor, I had the brownish marks on the...
Peleton profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.