my son was offered a transplant but d... - Kidney Transplant...
my son was offered a transplant but due to phobias he refused it he knows he needs help to overcome his fears where can we get it ?
I'm sure this is not uncommon. I had my transplant in October 2012. Prior to the call, I was quite nervous about it all. I was happy on CAPD dialysis, and wasn't sure that I wanted a transplant. When I got the call, I was remarkably calm about the whole thing. Even when I got to hospital, it all seemed very matter of fact. I wasn't nervous at all, even though I knew I was going to be operated on. Now 9 months later, I wouldn't have had it any other way. I have my life back for which I am eternally grateful to all concerned.
I would have thought there should have been some one at your son's hospital who could have helped him get over his phobia. You need to investigate this further. Hope you get it sorted. Good luck!
Hi sparkles, I had a double lung transplant twelve years ago but unfortunately my kidneys started to pack up because of the anti rejection drugs so eventually I needed a kidney transplant and four years ago |I had one from my twin sis. For both transplant I had help from both the hospitals and cannot believe they would just offer your son a kidney with no help and back up. Please ask at his hospital for help. angie
Mungo and Angie12 thank you for your feedback we will ask at the hospital about this as we honestly feel we need some help as his fear of any invasive treatment is so severe and very real..I hope that things continue to go well for you both ..thanks again
Hi Sparkles, How old is your son? If it helps the NKF have ' buddies' that can be contacted to talk/share things that they have been through so that as well as talking to his hospital he can talk to others who know what its like. Our helpline can assist on this. Or if he uses social media there are also facebook sites where people share experiences.
HELPLINE
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Hi my son is 28 he has been on perineal dialasis at home for 14 months he continues to work full time.he was offered the trans. 2 -3 months ago and when he refused it he had his name taken off the list he said until he feels he can cope emotionally He has always bee needle phobic but has realised since having his tube put in he is also terrified of anything penetrating his skin
Hi sparkles it might be worth asking his Renal Homecare nurse/ Community Nurse if he could talk to someone about this,
Hi sparkles i had my transplant in 2011 and before i was on peritaneal dialasis for 2 years untill it slowly stoped working for me i had been desperitly trying to get on the transplant list for three years before but due to other health ishuse was un able i had not realised how hard it is to go on this list and how well you need to be to get on you must ! now start to realize to have got on the list for transplant how lucky you were for there are so many despritly ill people who can not get on the list let alone be offerd the chanse to have a transplant again you must realize that dialasis is only a tempery gap and can stop working at eny time and you will become so despritly ill iam sorry to be so blunt with you and i do undersand your fears we have all had the same fears and phobiers you must ask your specialist nurse and doctors for help and try to speak to counselers and forams on the web also try the uk national kidney federation for help you can go to there meetings who will help and try despretly to go back on the list and have your trasplant trust me you will feel on top of the world again and free to do the things you use to do again you will never be sorry i hope to have been of help and you get the confidence you so despiratly need good luck and god bless i will pray for you