Tourettes Action
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European Multicentre Tics in Children Study

European Multicentre Tics in Children Study

European Multicentre Tics in Children Study - A new study will explore the onset and worsening of tics and obsessive-compulsive symptoms in children and adolescents. The study, underway at TANDeM (Evelina Children’s Hospital), University College London Hospital & Great Ormond Street Hospital, will explore the onset and worsening of tics in children and adolescents (aged 3-16 years old). Find out more about the research by emailing Martin Woods martin.woods@gstt.nhs.uk or call 07920246200.

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Hello my name is Amy and I am very keen for help with my Tourettes im 20 and I have had Tourettes since I was 6 years of age I have went to ALOT of different people for help but I got disscharged form my Tourettes doctor when I turned 18 and have had no help since would you beable to advice me any help or any courses that would help me along I live in northern Ireland but my family is keen to travel for the help hope to hear back

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Dear Amy,

Many thanks for your email, sorry for the delay in coming back to you. I’ve been trying to find out some information for you.

I have this email address for people looking for support in Northern Ireland support@tsireland.ie - you may have this already?

I only have a couple of contacts in Northern Ireland of consultants, but they are for under 18’s.

If you are looking for support in terms of behavioural therapies then I can send you the details of people offering help with tics using behavioural therapies online so distance wouldn’t be a problem – one such person is Liz Murray tourettestherapy@yahoo.co.uk.

If you would like more information on the therapies then please email me and I can email them to you Seonaid@tourettes-action.org.uk

I hope this is helpful

Very best wishes

Seonaid

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Hi there

just an update on information - the address I gave you (support@tsireland.ie) is for Ireland not Northern Ireland, but I will get back to you about more information I am tracking down for you. best wishes Seonaid

Reply

Dear Amy,

I've found out that Tourettes Action have a super group in NI and they meet in and around Belfast area. You would be very welcome to go along with your family or friends too. Please contact Julie Collier who can give you more details - Julie@Tourettes-Action.Org.Uk

best wishes

Seonaid

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