I’ve suffered Tinnitus since 1994, initially I wouldn’t accept this condition..I tried everything possible to remove my T….
It took many years of stress and anxiety to finally realise that my T isn’t going anywhere and I have to live with it.
I have various coping methods the biggest being distraction, by putting my mind on doing something just as I’m writing this I am not listening to my tinnitus noises..
I find that every May June and July my tinnitus is at its worse as it is right now. I also know that it will improve, just knowing this is a comfort. I try not to stress and be anxious as with time it will get better.
I still wish deep down it would go away and let me live in peace. …
Jean Ashton
Written by
bluebell71
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Hi Jean ,Nice to hear from you and your very positive post .
I think you are quite right that the key to getting a bit better is to do all this self help and keeping very busy. I think maybe the reason your not so good in the 3 main summer months must be due to the heat , as certainly we do have extreme heat just now 🥵 and it can be extremely stressful . Stress is a main factor for keeping tinnitus happy !!!! I too am getting myself better in exactly the same way as you have managed . I find this community site very beneficial and also it is very comforting to know that we are certainly not alone in our journey with tinnitus .
Hi PennyThank you, it is comforting to know I am not totally alone, I have terrible times with my tinnitus, very debilitating. I tend to talk a lot about my T to my husband when it is very loud and hardly mention it when it is quieter.
I somehow accept loud tinnitus in my left ear, I am happy with these noises, however, when it totally fills my mind I do worry how much noise I can stand, then it changes to less noise.
I realise with time it could be weeks of loud noises, I have to wait and it will get better.
I find going outside in the garden helps, talking to people whilst shopping any distraction that takes my mind off tinnitus..
What I find difficult at times is the head pressure I get sometimes , especially late afternoon when I am more tired, if I go to visit my sister late afternoon I know I shouldn’t have gone as the different atmosphere to home makes a difference , It’s such a peculiar thing this tinnitus , on the whole I am coping much better now. It’s been about two years for me.
I have a type of pressure when my head is full of tinnitus and do feel that a change in weather affects it. My T gets louder and louder even after 28years I get a little scared of how much I can stand and how far will my T go…. then it changes thank goodness and gives me a more quieter T.
I find it is very tiring to constantly listen and to speak over the tinnitus that’s why I believe distractions are the best way of dealing with it.
I have a hearing loss in my left ear which meant I qualified for a hearing aid.
When I have T in my left ear only and wear my hearing aid it masks the tinnitus. I have had many maskers over the years, the hearing aid is the best it gives you some relief and almost masks my T completely, happy days.
It’s lovely to share my experiences with you, I hope it helps you in some way.
Good morning Jean and thank you , yes we all have slightly varying degrees of symptoms . I do have to take my poodles out twice a day and it helps me return to normality . Listening to the wildlife and trees rustling and chatting to other doggie walkers . You can almost forget about it. Indoors the acoustics I think are what my head doesn’t like and that’s when pressure can build up . I have my radio on in the background and keep busy doing jobs .good luck to you . From me. Penny
Thank you very much, good luck to you too. Two years ago when I first started this tinnitus and I read about people habituating towards it I remember thinking that surly that can’t be possible, now I am sure I am getting three quarters of the way towards that habituating goal. I hope you do find the same 😃
I believe you can help yourself with habituation. I am quite an anxious person who find lots to worry about. this is my makeup I was born with, finding it hard to relax. Some people do habituate naturally and find their tinnitus bothers them less and less over time, this has been hard for me to do.
I find deep breathing and then feel the tension leave my body through my fingers and toes helps me, whatever suits you to relax your body and more importantly your brain.
Yes apparently tinnitus happens when our nervous system gets a bit damaged . I read the book Tinnitus from tyrant to friend . Have you found any books useful . I too am a worrier and can’t always relax and I’m pleased I have my 2 poodles to focus on . Goodnight Jean love from me Penny
Good morning PennyI can imagine your poodles will give you the perfect distraction, I am trying to convince my husband for me to have a dog, I have a beautiful cat called Cleo.
I will look for the book you mention, I have moments when I’m in the mood to read and enjoy it when I do, I find it a struggle when my T is really loud.
I am terrible with worrying, always worried and anxious it’s the way I am, which doesn’t help at all.
Hello again Jean ,I used to worry a lot more when I was younger , I still do worry but I try to control that by telling myself that worrying never solved anything!!! However I do get terribly anxious and panicky , it doesn’t help living on my own . I keep busy , live by the coast and am retired . I’m sorry your tinnitus is being such a pain , I think some people do have it worse than me , but I do get awful pressure when I get tired and if I walk into a place I’m not familiar with . I have a fear of getting lost so won’t venture out very far . I have a good sister down the road and a few good friends . My son and daughter live about 95 miles away so that’s not good . I rarely see my grandchildren because of the distance . I wish I could help you with your worries . I worry about silly unimportant things. I hate loneliness so take myself out. Today I walked along seafront and bought an ice cream !!!
Hello Jean ,Pleased to hear your having a lovely holiday Jean , so that must be Wales you are , are you there for one or two weeks have you been there before . I went to Swanage with my sister for a week in May , we enjoyed it so much we booked again for next year . I think holidays are a good idea because they really give us a change from our usual surroundings . I hope you feel better soon . It’s been very hot today and this is a bit stressful now this climate change is something to worry about. Love from me. 😊 xxx
Good morning PennyWe are on holiday for a week, trust us to choose the hottest days though, we stayed in our hotel room yesterday afternoon it was too hot…. Seems cooler today we’re going to Bangor and Canarvon.
It’s lovely that you can go on holiday with your sister, I have a sister but hardly see her only at weddings and funerals she is very busy with her family.
It’s a brilliant distraction from our T to go on holiday with everything being different.
My T is okay this morning but I know it will get louder as the day goes on, thank you Penny.
Hi bluebell71 A warm welcome 😎 That's a long time but it sounds as if you've come to terms with T and live well with it. We're all in the same boat here 🚤
Hi, Thank you for the welcome. I have come to terms with accepting my T is forever but I have many difficult times coping with the horrendous noises, then it changes to a more acceptable level.
It’s really good to have this site with it being free of charge, to be able to share the experience.
It seems more like when there is an atmospheric change that I notice my T is worse.I kept a diary last year as my T was very bad and sure enough almost to the week my T became worse.
It’s best not to record, I have had T for a long time now, I find ways of coping…
Hello,I had to look twice to realise that I didn’t write this! because it echoes my own experience- but since 1992.
I have fought it not realising that by doing so it only made things worse but I got by coping with a masker ( left ear tinnitus) and turned up to my stressful work no matter what.
I felt alone, and couldn’t fined peace any wishing I could return to just being “normal”- what ever that meant. I probably still blame tinnitus for every shade of negative feeling I might have never thinking it could be because I just didn’t feel well that day -rather than looking for another cause!
Now, I habituate each day from when I get up until I need my hearing aids for evening tv.
I also meditate ( mindfulness) which has helped greatly with acceptance.
It’s a long road but peace can coexist
alongside tinnitus that is ,if it’s more important to you that the noise.
Thanks for you post and it’s good to hear from a “long timers” as well.
HiWe seem to be having similar experiences with our tinnitus.
Like yourself in the early years I would never give up hoping that one day I would wake up and have a peaceful mind, I have had tinnitus for a long time, the same as yourself, I realise and accept that my T is here to stay.
When my T returns to my left ear only (which I’m okay with) then I will wear my earring aid which helps mask the noises. Happy days 😊
Hi Justin I have noticed that my tinnitus is worse in certain weather conditions, a change in atmospheric pressure seems to change my tinnitus, I don’t understand why this should be..,
I’ve struggled with T for many years and have found a way to accept and cope with it but it hasn’t been easy.
Distraction is the key to taking your mind of listening, giving you a break from your tinnitus just talking with someone watching TV anything that distracts you away from the noises going on in your head.
I think I’ve had mine for about 8 years but it feels much much longer somehow.
Sometimes I think I’ve accepted that it will always be there and other days not so much and I feel like I fight with it.
Acceptance and distraction seem to be the key.
In my early months people would talk about the time when it can simply be ignored.
I still have no idea how to ignore it.
Maybe it’s the same process as distraction but I cannot just ignore it as it’s there screaming away.
I find myself distracted and then for a brief second or two think where has it gone and bang there it is. In those moments I know it was there but just couldn’t lock on or locate it. Hope that makes sense.
It’s interesting (not in a good way I mean) that yours gets louder for a quarter of the year and then calms down.
Do you have any thoughts as to what this could be? Obviously the heat but have you been to somewhere hot outside of that windows and noticed a change.
Could pollen cause a reaction and somewhere hot but different or no pollen is different.
Look there I go clearly I’ve still not accepted mine as I’m always looking to see if there is something I’ve missed.
Thanks again for the message and it’s comforting to know that you can be positive and reassuring.
Hi GrahamIt’s been a struggle to accept my T but having done so means I don’t fight with it anymore. Although like yourself I cannot ignored it but I have found a way to feel more in control.
I have tinnitus constantly sometimes louder than others all year. I recorded in a diary last year when my T was horrendous ( they say not to do that but it’s my way of being in control) and behold this May June and July my tinnitus has been terrible, I’m not sure of the reason for this maybe it’s just my T.
I know it will change it’s taken a long time for me to get to this stage.
I still look for anything that I may have missed too. It’s hard living with T Graham, I’m hopeful that science will find a way for us all to live with peaceful minds.
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Fed up reading this when the answer is very obvious
