Thank you T sufferers for always being there.

[White-noise]

Hi t sufferers i was on this before under bella21. My phone broke and had to renew my email address. I put number 21 as that’s my lucky number and didn’t want t sufferers think that was my age. I’m 53 years young and t has turned my life up side down was diagnosed with it 2015 I still can’t go out the door. Family don’t get it which is another battle. I have hyperacuses to chronic migraines and I’m so so thankful I have this group and I’m back on it. I no every ones mental help has suffered and a lot more health issues. Thank you all for being there all the time.

[Happyrosie]

Hello White-noise. It's so sad that you feel you cannot go out. I do feel for you.Personally, my T is much better (that is, I don't notice it) when I am outside because I don't think about it, and I can listen to the birds, the trees, the wind (and the rain sometimes).

Other people around us do not understand us - how could they, after all? - but more than one in ten people have the T so many of them have managed to habituate, as I have.

Something you might perhaps try: if you google the search term One You. It's part of the NHS and you might find something there there if you fill in the questionnaire.

Good luck and best wishes

[White-noise in reply to Happyrosie]

Hi happyrosie. Thank you so so much for your reply and also understanding how people just don’t get it. I was always there for family things and when I got T and couldn’t go out to places with any kind of noise my family thought that I had became difficult and didn’t want to go they couldn’t see how much it was killing me that I couldn’t go and that they think I would rather be in doors. My head has felt like it’s ready to burst with frustration with their thinking. I feel like putting big bandage round my head and ears to see if that helps them understand. Lol. That has actually made me laugh at that thought. Thank you everyone for being a message away.

[doglover1973]

Hi Bella. Welcome back. I know how you feel. I'm very glad of this forum too. I felt so alone with my T. last year but since January I've enjoyed the company of everyone here . Knowing that there are people who understand has made a big difference to my life .

[rabbits65]

Hi. White-noise. Or Bella 21I’m sorry your suffering so much .

I too have hyperacussis with tinnitus and get giddy sometimes and fullness in the head and ears. So my name is Penny , pleased to meet you. Also it’s nice to know we are not suffering all alone with this absolutely nightmare complaint. I hope to hear from you. 😊

[White-noise in reply to rabbits65]

Hi penny thank you so much for your reply. I’m so pleased to meet you. I no that fullness in my head and ears are torture. My head feels like mush most of the time. The migraines I get cos of hyperacuses with the slightest noise is so bad. Thank you penny for welcoming me back with open arms.

[rabbits65]

Hello it’s me again. It is nice to meet like minded people and that I know you and I can understand what each other are going through . Mine started about one year ago. Mri scan revealed nothing and ct scan was nothing . I hate the fullness feeling. When I try to do jobs in the house I sometimes go giddy and head feels full of pressure . Television I can only cope with an hour at a time. Surly there must be something you and I can do . Walking outside with the breeze is a slight help and my poodles are great company . Indoors the sounds are like a balloon filling at times or my head is in a fan oven . The actual noise of tinnitus wouldn’t be very bad if it wasn’t for the other complaints with it. What can we do to help each other ? 😊

[White-noise]

Hi rabbit65. Sorry for not getting back to you last week. I’m so glad you have you little dogs to keep you company. Iv been thinking what can we do. The summer coming in and not in a bad way the sounds of lawnmowers are on their way to. Iv been saying this for 2 to 3 years that once I get the strength I want to start a support group. That’s my goal. I want to help others with T and for us all to help each other. When BTA sent me link for this forum it was like giving me a precious life saving gift. I felt so alone before hand even when I had a house full of family. Other T sufferers stories have helped me so much. Helping me understand I’m not alone. Thank you everyone for being open and honest. Us T sufferers need that. My head has took me into dark places because of feeling alone. I think dark places can come with tinnitus maybe some T sufferers dont get took to a dark place because everyone is different with T. It’s the dark days we don’t want people to see.

[rabbits65 in reply to White-noise]

Hello White-noise ,Hope you had a nice Easter Day .

I agree with you when you say that T can put us in some very dark places . I just wish there was some way we could get a proper assessment because I’m convinced I’ve got more than just tinnitus . The pressure in my right ear is unbearable . The reason I’m writing now is that bit about you saying you would like to start up a support group and also wish to help people , I would like to help people too. . I feel so isolated at the moment with my condition and don’t know where to go next for help . Had a consultation with an auditory person who thinks I need to go back to my GP because I don’t need hearing aids ... please let me know if you find my post to read on here . Goodnight from Penny

Rabbits65