Plea for help : Hi. I'm in my 50s and always had... - Tinnitus UK

Tinnitus UK

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Plea for help

BerkeleyB profile image
13 Replies

Hi. I'm in my 50s and always had some issues with my ears . However, over the last 6 weeks I've recently experienced an increased ringing in my ears and balance issues/nausea. It's pretty much 24/7 but worse in the middle of the night or when I think about it too much. I'm currently in the pipeline for an ENT appointment but in the meantime wondered if anyone had any tips or suggestions for living with this unwanted presence in my life!

Thank you and merry Christmas

Pete B

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BerkeleyB profile image
BerkeleyB
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13 Replies
Happyrosie profile image
Happyrosie

Hello Berkeley B. Certainly thinking about T makes it much worse!! As far as nausea goes, it might be wise to get a doctors appointment to rule out anything untoward such as tummy troubles.

But assuming it’s your ears: One possibility is labyrinthitis and another is Benign Paroxysmal Positional Vertigo. In either case it’s really only time that cures it though there have been a couple of posts here that have said some treatments are offered. In my case I was prescribed the equivalent of seasickness tablets and that helps. There are exercises: the website Brain and Spine Foundation has these. As far as T is concerned, have a read through the British tinnitus website.

I’m afraid T is common and doesn’t really go away. Your brain habituates, though.

BerkeleyB profile image
BerkeleyB in reply to Happyrosie

Thank you Happyrosie. It's good to get help.

rabbits65 profile image
rabbits65

Hello Berkeley,I am new to this site , I started my tinnitus in February this year and mine came with giddiness and other symptoms at first . Then the giddy spells got less but my balance isn’t very good. The noise in my head and ears is horrendous , more like a roaring or a feeling that my head is in a fan oven . I was so desperate I paid for two private ENT appointments and an. MRI scan . The scan ruled out anything structural . However , last week my NHS appointment came through that revealed my hearing is normal and also they cleaned wax out of my ears. I find Tinnitus extremely distressing but everyone thinks we should just get on with life and forget it. Surly there must be more help out there ? Also is there any test that can be done to measure the levels of this noise that’s going on mysteriously in our heads .

Can anybody answer this please???

BerkeleyB profile image
BerkeleyB in reply to rabbits65

Thanks for your help rabbits65.

SaywhatIsee profile image
SaywhatIsee in reply to rabbits65

Hi rabbit, do you ? Ive had left ear 45 years, right ear 20 years from a car accident, as a passenger, trying to get out of the front windscreen. Then went to hospital, specialist, 5 mins then passed to the sound office. A single headphone with a dinging vibe, reduced until I could not hear it, on both sides. Issued with a pair of ear plugs, that had a shooshing sound. that you adjusted to the same level. Did not work for me. I am believing that it is a form of damage to the " Information Highway ", between the ears and the brain, so very little is known. So, accepting it does help some people sometimes, but everyone is different, so trial and error unfortunately with what sufferers come up with. Some people on here like to go to bed with a cd of water sounds, waves, whilst they try to sleep, others with the radio. Whilst writing this, my T has gone from a loudish rushing sound to a reduced more solid sound,. Thank you.

rabbits65 profile image
rabbits65 in reply to SaywhatIsee

Thank you to SaywhatIsee .You certainly have been through the Mill .

TinnitusUKPat profile image
TinnitusUKPatPartner in reply to rabbits65

Hi Rabbits. There isn't a test as yet which can measure tinnitus - it's a subjective signal generated within the brain, and as such there isn't a sound to measure.

So, your ears can be clear of wax and your hearing can be normal - and you can still experience tinnitus.

There are ways of helping yourself to habituate to the condition, as members of our lovely community have suggested.

Perhaps a good place to start that process would be our e-learning site, Take on Tinnitus - takeontinnitus.co.uk

With best wishes

Pat

Forum Administrator

rabbits65 profile image
rabbits65 in reply to TinnitusUKPat

Thank you very much Pat , I will certainly look on the website you’ve just mentioned .

Blonde600 profile image
Blonde600 in reply to rabbits65

Hi rabbits65

It is true what you say, this day and age, and with all the technology available and we cant find a cure for this horrid condition, ok maybe a cure is a while off but theres not even anything for relief, there is so much concern about mental health, and Tinnitus does affect peoples mental health. I just find it concerning that theres no money from anywhere to help with research and we cant get anywhere without this.

rabbits65 profile image
rabbits65 in reply to Blonde600

Thank you for your reply Blond600 . How I agree 100% with all you’ve said.

Chakr1 profile image
Chakr1

Hello Berkeley i have had T for the past 2years just want you to know it does get easier, i have suffered with migraines for years and had two episodes of Labryrinthitus excuse the spelling lolI find the more you focus on the T the louder it will become, it took me a fair while to relax into my body i was in fight flight mode for some time but once i trusted by body and basically took one day at a time and focused on the things that bring me happieness that was my key my brian just quietened down i dont notice it when i am engaged with other activitys dont get me wrong i know its there but i take the no big deal approach i know i am safe and not in any danger, please have a read of joey remenyis book neuroplasticity for tinnitus and vertigo its a great book i wish i could of read this straight away instead of listening to theres nothing you can do ! just live with it. Shes also on youtube and also julian cowan hill i think hes called. Hes on you tube and also as a book out too there both very positive stories.

I recovered from my 2 bouts of Labyrinthitus i still have occasional migraines. Make sure you get medical clearance my mri was normal but my hearing test did show mild to moderate earing loss in both ears. I now wear earing aids which does help i have maskers in them too, which to be honest i dont use as much now but they helped me greatly in the early days, i sit here now with my screeching in my head 🙈 but i know through out the day my thoughts will go else were, and my T will settle im going to go and enjoy a lovely walk with my best friend my little dog❤

Merry Christmas 🎅⛄🎄 wishing you all the best, take it easy and be kind to yourself xxx

BerkeleyB profile image
BerkeleyB in reply to Chakr1

Many thanks Chakr1 - this has helped me feel a little more normal. I hope you continue to enjoy what's left of Christmas. Best wishes

rabbits65 profile image
rabbits65 in reply to Chakr1

I found your post extremely helpful and I’ve taken a note of the two books you’ve mentioned . From Penny. rabbits65

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