Looking for people to help with trial - Tinnitus UK

Tinnitus UK

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Looking for people to help with trial

jbradford42•

4 years ago•13 Replies

nottingham.ac.uk/news/chemo... this was on Twitter if you are interested.

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jbradford42

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13 Replies

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Blue3334 years ago

Cisplatin was one of the three chemo drugs they used for my cancer. I now have severe tinnitus.

jbradford42 in reply to Blue3334 years ago

Sorry to hear that mate hope you’re ok apart from your T. I know how you feel iv have severe T as well mega loud scream in both ears. Proper shit man.

Lesley2065 in reply to Blue3334 years ago

I had cisplatin when i had cancer but not sure if the dosage was high enough to cause tinnitus, this was 24 years ago so Im sure i would have noticed i had tinnitus long before now. First noticed it in 2015 3 months after my mum passed away but i had noticed my hearing in affected ear was getting worse a few months before all that happened so have been wondering if the cisplatin did cause some damage to my hearing and the trauma of losing my mum was just enough to push my brain over the edge.

Were you told cisplatin could cause hearing damage/tinnitus as i certainly dont remember being told.

Hope the treatment was successful though.

Lesley x

ade-the-pade in reply to Blue3334 years ago

Hello Blue. I find this interesting. I know that cancer can be s killer but many survivors report that the subsequent T has ruined their lives. where fo you stand on this,?

Ade

ade-the-pade in reply to ade-the-pade4 years ago

oops! read your next reply which answers this.

Ade

Blue3334 years ago

Finally got rid of cancer but actually I think tinnitus and the anxiety is worse. Cancer lasted 3+ years with a surgery, chemo, a major surgery and a lot of mental crap but at least it's over. This tinnitus never ends and don't think it ever will. The constant squealing, screaming, screeching, pulsating, thumping, and switching sides are there all the time.

jbradford42 in reply to Blue3334 years ago

Just hang on in there lad there is a lot more awareness these days and there is a lot of research ongoing. I’m sure it’s only a matter of time. Good luck

ade-the-pade in reply to Blue3334 years ago

Thanks for your opinion. It helps others to understand the battle we face and have to live with

Ade

Maryanne994 years ago

I don't mind volunteering and doing research just contact me

ade-the-pade in reply to Maryanne994 years ago

well done.! THE MORE RESESRCH THE QUICKER A SOLUTION

ade-the-pade4 years ago

Thank you for this.

Kind regards

Ade

Chilledartist4 years ago

anybody that partakes in this trial deserves everything they get......Notingham, get a grip....the fact your running these trials means you know shit about this condition....LEAVE IT ALONE