First time: Of interest here is that the first... - Tinnitus UK

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First time

Muddo profile image
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Of interest here is that the first onset of my tinnitus was so mismanaged by the medical profession it was a joke. I was treated for depression with all sorts of medications and incorrect treatments. I didn't get off the medication round about for over a year. I was helped by a man whom had the same condition who basically just kept telling me I'd habituate. He told me over and over. I went to groups and saw specialist psych's but no one ever told me about TRT for quite some time. I found after around 6 months the white noise machines I'd purchased just gave me the sh--ts. One night sick of all the noise I just turned it off. Can't remember exactly but as time passed I habituated firstly by just not being so preoccupied with the sound and second by that leading to a desensitised state of mind that then led to even less attention being given the sounds. The gentleman whom had just kept me optimistic was a gent named Bert St----s. I tried to contact my angel of hope some weeks ago for his advice but alas he had passed away last year well into his 80's. He was my champion of tinnitus hope. His assurance was my only tangible and real advice. I feel that without the condition you just can't 'get it'! All the advice generally comes from those with education and not experience. Bert, as I was reliably informed was an even bigger mess than I was at the start. He couldn't give a time to habituate but he never stopped reassuring me that I would.

Anyway, as time went by my attention to the noises was slowly further diminishing and it eventually just pretty much disappeared. It was like chipping away at a really large rock with a tiny chisel. Thing is, you need to stay optimistic and that's the big challenge. Negative or useless thoughts just never stop whirling around in your mind so it's hard to relax and sleeping is in the start a real challenge. I didn't do anything, it all just happened on its own! So, now I'm just trying to be patient and I hope it all just goes that way again.

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Muddo
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Velotin profile image
Velotin

Thanks Muddo , I just hope I have your belief and patience, you’re right that only having T will you know and understand... in the grand scale of things it’s not so serious or fatal but without our minds the body is secondary to meaningful life. Belief in oneself and hang on In there ...

Muddo profile image
Muddo in reply toVelotin

Yes Mate, its the hardest thing you'll ever do! Its just as hard now the second time for me. But I guess I'm approaching it differently now. It's a time game, 1/ get it and have hard time 2/ start to desensitise 3/ stop worrying about it and start to not notice it 4/ habituate. I believe its all about your reactions, if you stay too hyped up it keeps your brain locked on to it. Mine came with a painful illness and thats common, your brain is hyperfocused on the problems, so you have to stop worrying about it for what ever reason you now have it. My habituation level was around 99 per cent but if I focused it was just as loud as before.

I'm in Brisbane Australia where are you?

Mssg profile image
Mssg

Incredible... I so hope this will one day be my story of hope for others.

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