Update on health issues

[Sweetpea1157]

Hi everyone, how is everyone doing, hope you're all well. It's been a while since I've posted anything here , just thought I'd give you a quick update on my health issues, still got lumps on neck, collar bone and above my left breast just about 2cm under collar bone, this has been going on now for over 3 years, and still none the wiser , have been recently to a private GP who said he thinks it could be sarcoidosis, did ace test which came back positive at 86 the norm being around 40 - 45 , been treated like #@#* by NHS, as most of you here have experienced , is there anyone here who has similar problems or have confirmed sarcoidosis please. Will give more details tomorrow as getting late , night night and Godbless everyone 🌈💕🌺🌷😴

[radd]

Sweetpea1157,

Oh poor you,

I have no experience of that but you may receive more subject related replies if you change your post title to 'sarcoidosis'. Also offer brief info of thyroid condition & meds just to save members searching in case problem was to be thyroid/meds related.

Hope you slept well 😊

[Sweetpea1157 in reply to radd]

Hi radd , thank you for reply , sorry took so long getting back to you, but been very unwell as of late , will take your suggestions on board, unfortunately am not sleeping well at all , due to the pain and the lumps, will be updating profile and putting up new post with your suggestion, thank you again for that , hope you are keeping well and I will be back in contact soon 😏

[SlowDragon Administrator]

If not already on strictly gluten free diet, Have you had coeliac blood test done

Like many autoimmune diseases, Gluten free diet may improve symptoms and is always worth trying

Essential to regularly retest vitamin D, folate, ferritin and B12

When were these last tested?

What vitamin supplements are you currently taking

[Sweetpea1157 in reply to SlowDragon]

Hi SlowDragon ,sorry for delay getting back to you , have a varied diet including gluten free, my last blood test was taken on the 7/6/21 ferritin was 148ug/L range 13- 150 , folate was >20ug/L range>2.9 , vit d was 118nmo/L range 50 - 200 , vit b12 was >256pmol/L range 25.1 - 165 , supplements I am taking are vit d , magnesium , Selenium, and vit c , will be updating profile and putting up new post as suggested by radd in the next few days as am feeling very unwell and exhausted. Thanks again for 🤗

[silverfox7]

I had a friend with it. Sadly she is no longer with us but it didn’t seem to hamper her at all. I can remember a few lumps near lower neck. She was a doctor but just carried on as normal. My neighbour also had it but had a very good doctor who kept an eye on things. But again, no issues as such.

[Sweetpea1157 in reply to silverfox7]

Hi silverfox7 , sorry not got back sooner , so sorry to hear about your friend, unfortunately doctors ignoring my symptoms, but I do have a private doctor who is trying to help me, but don't see him often as have to save for fees , but as said , because the NHS docs were ignoring me , was basically forced to seek private help . Hope you are well yourself, will be updating profile and adding new post explaining more clearly what is going on in the next few days , take care 🤗

[silverfox7]

Thank you for your reply