Liiothyronine: Hi just been prescribed above due... - Thyroid UK

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Liiothyronine

Jompy profile image
12 Replies

Hi just been prescribed above due to never being symptom free on throxine tho ranges are always normal worried about introducing it?

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Jompy profile image
Jompy
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12 Replies
SeasideSusie profile image
SeasideSusieRemembering

Jompy

Why are you worried? Has your doctor not given you any guidance about starting liothyronine?

If you post your latest results, and tell us what thyroid meds you are currently taking, then members can try and help.

Jompy profile image
Jompy in reply to SeasideSusie

It took me 3 years starting on 25 thyroxine to get to 75 thyroxine cos I hypersensitive to medicstion and it was brand related everything seems settled except fatigue etc don't want another load of side effects of another drug tho I do want to feel better

Jompy profile image
Jompy in reply to Jompy

Will post results shortly

Jompy profile image
Jompy in reply to SeasideSusie

T3 4.9(3.1-6.8) T4 11.5(8-18) TSH 0.294(0.57-3.6)

SeasideSusie profile image
SeasideSusieRemembering in reply to Jompy

Jompy

What meds were you on when that test was done?

Jompy profile image
Jompy in reply to SeasideSusie

75 levo

SeasideSusie profile image
SeasideSusieRemembering in reply to Jompy

Jompy

With those results, your FT4 was 35% through range and your FT3 was 48% through range so you were undermedicated.

Was that on the Levo you had symptoms with, or did you change to a different one?

Is there a brand of Levo you've ever got on with or did they all give you symptoms.

Have you had vitamins and minerals tested:

Vit D

B12

Folate

Ferritin

Jompy profile image
Jompy in reply to SeasideSusie

Yes that was with only brand I can take. I was on 100but ended up in hospital with hyper symptoms cos of that andmy tsh suppressed they won't up levo. I am on b12 and vit d on permanent prescription cos wen my levels ok and I don't take them they drop again. I will look up my last folate and ferritin they were within normal range but low. I also had lots of trouble with brand of b12 they were thinking of injections but said we'd prefer me to manage tablets

SlowDragon profile image
SlowDragonAdministrator

Your very first list you said you had never had antibodies tested.....

Have you had them tested since?

Absolutely essential to know if you have Hashimoto's (medics often don't understand the importance)

So if not had both TPO and TG antibodies tested,get them tested privately ASAP

The fact your vitamin levels keep dropping suggest two things ......

1) you are under medicated

2) coeliac or gluten intolerance which is EXTREMELY common with Hashimoto's

Vitamin D, folate, B12 and ferritin all need to be optimal for thyroid hormones to work well. So these need to be sorted, ideally before adding T3

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If/when also on T3, make sure to take last dose exactly 12 hours prior to test

Your FT4 is too low, you need dose increase in Levothyroxine and get vitamins optimal

Then try strictly gluten free diet

If, after this, if FT3 remains too low ......then is time to add small addition of T3

Jompy profile image
Jompy in reply to SlowDragon

No wont test antibodies. Been tested for celiacs came back negative but dairy and lactose intolerant. Loads of stomach issues too lengthy gall bladder ibs malabsorbtion. Thanks for reply looks like a lot of info will check it out tomorrow too tired right now (default setting of my life)

SlowDragon profile image
SlowDragonAdministrator in reply to Jompy

So you are extremely likely gluten intolerant

Most with Hashimoto’s are not coeliac but need to be on strictly gluten free diet

Medics often have little idea

Changing to strictly gluten free diet is the only way to know, try it for 3-6 months

Testing antibodies first privately and again 6 months after being strictly gluten free

Post folate and ferritin results tomorrow too

Jompy profile image
Jompy in reply to SlowDragon

Sorry did not reply yesterday, it was a day where I did not surface headache stomach etc. Not had ferretin tested for a while but last time 2017 it was 33 ( 11-200) and classed as normal and that was while taking ferrous fume rate from go but after that reading said I cud come off it. Can't find results for folate but did hav it done.