✏️ Have you signed the UK Government Petition f... - Thyroid UK
✏️ Have you signed the UK Government Petition for Thyroid Research Funding?
Less than 3 weeks to go on this important petition! 😧 Please sign to show continuing support for Dr Pete Taylor, who started this petition on behalf of thyroid patients [Link to sign is in the first comment]
Link to sign Petition: petition.parliament.uk/peti...
*Only British citizens or UK residents can sign.*
Petition Wording:
Give more funding for thyroid research and patients after price hike
A fine of £84 million has been levied for the price hike in liothyronine (T3), which had a significant impact on patients. We request that an amount equivalent to a proportion of the fine (1-5%) is made available for thyroid research and support for patients with hypothyroidism.
Hypothyroidism is one of the commonest conditions in the UK. However 10-15% of patients despite levothyroxine treatment have persistent ill health, although some find their symptoms improve dramatically with liothyronine (another thyroid hormone). Despite being a common problem hypothyroidism has not attracted research funding and there have been no new treatments in decades. More funding for research and patient support might revolutionise the treatment and lives of many patients.
Link to sign Petition: petition.parliament.uk/peti...
By the way do we have some more facts that show the scale of suffering - need big numbers to get press attention ....who can then help get attention for the petition and spread the word.
I wonder why people are reluctant to vote - there must be more than 32 regular visitors to the Thyroid forum
This poll is only a way of drawing attention to the petition, so it doesn't really matter whether people vote on the poll, as long as they sign the petition!
I’m lucky enough to have been prescribed levothyroxine and Erfa ( used to be Armour but the reformulation in 2009 made all my symptoms come back again) but the price of Erfa has shot up as well. I’m a self financing patient and have gone from about £30 per month for NDT to now £199 per month plus £100 consultation fee, plus private blood tests, plus levo and prednisolone it adds up to around £1000 x 2 yearly…I have to be well enough to work full time in order to pay for all that!
have signed thank you and shared everywhere humanly possible. We need someone with a platform to lead.., wonder if anyone has ever contacted Penny Lancaster?
Send it to her and hubby ! Get the story to the press- di we know any friendly journalists or fellow sufferers?
Could the link be added to some of the FB forums there may be more traffic for additional signatures - I know there are def more than 11,000 people who suffer from Thyroid conditions who I’m sure would sign if they knew about it🤔
Absolutely, yes. Anyone who is on any thyroid FB group can add the petition link there. And it's worth doing more than once, because things can so quickly disappear from view on busy FB pages.
The petition is just for hypo- why not hyper too...that would capture more votes for research in tyroid illness. I suffer with Graves- I have signed the petition.
The petition does have indirect relevance to those with hypER, as many end up hypO and on replacement hormone eventually.
Ohhh I said No and went to sign it but then received an email telling me I'd already signed it 😅
