Where in the World do you currently (permanentl... - Thyroid UK
Why are we doing this poll? Quite simply, curiosity about our membership demographic! This is not 'data collection' for any purpose other than community interest.
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Good idea! Also, even areas of the country/ies to identify good or poor service availability for thyroid issues.
That sounds like a good idea too. I live in Cornwall and will have my first endocrinologist appointment on Monday being recently diagnosed as hyperthyroid.
Good luck-if your GP diagnosed it, ask for a referral to an Endo, as if you read the forum, there are so many parameters that affect the thyroid, it can be a minefield! Good luck.
How were you diagnosed as Hyper ? Do you have test results from that time ? We see many people here who have been incorrectly diagnosed as Hyper.
I have read your other posts and noticed you mention weight gain and cholesterol issues - normally associated with being HypO. PMR can be linked to low B12 which in turn is linked to Metformin use.
From reading here you will often see that Endos are usually diabetes specialists and know little about the Thyroid.
Apologies for hi-jacking this thread. Having once lived in Cornwall my interest was raised ! 🌻
Well, it was my GP who saw that the TSH was incredibly low can’t remember the other numbers. It was she who referred me to the endocrinologist. So, we shall see on Monday what he says. In the meantime he has prescribed Carbimazole which so far has had no effect, good or bad, but think it is too early to say. Also, as you mention I have PMR and steroid induced diabetes along with having had to have an emergency bowel operation last September , the results of which have had a big impact on me. So, my health is not great anyway. Don’t know if he will be able to pick through all the symptoms!
Come back with a new post of your own with an update on recent consultation
Your comment is fine but please take the discussion off to your own thread.
It will get lost and could be very confusing if it carries on in this poll.
Hidden Marz
Hi I have been diagnosed hypothyroid for 40 years, have never had an explanation from my doctor, just put on thyroxin never seen an endocrinologist.
Im the same
It’s not good, I am 81 have several autoimmune diseases, I have just found out my eye drops are no longer available on prescription i have to buy them over the counter. There is no explanation as to why. They just stop things. I am going to speak to my doctor. Hope you are ok.
Hi Lizwillis, that’s good to hear. I was diagnosed in 2002. In 2008. I asked for an endo referral which was refused with the word “they’re quacks” Very professional- not! I eventually was referred in 2018. Which was very fortunate as he also tested my adrenal glands and diagnosed secondary hypoadrenalism.
I hope you get all the help you need.
Unfortunately the poll facility we have here is very, very limited. We can only have a maximum of eight options. So impossible to divide even one of the UK nations into areas/regions. ☹️
Hence it lumping the U.S. and Canada together, even though one has a public health system and the other doesn't, which would make a big difference, I think, if you had the ability to separate them as poll options.
I agree
If you ran a series of 6 polls you could get 48 counties of England in, but not metropolitan and non metropolitan there’s 84 of those apparently.
A bit like a David Hockney approach to making massive paintings by doing lots of smaller ones and amalgamating them, he called the exhibition of them the bigger picture we could have the bigger poll!
Right, so how many polls would we need to cover the whole of the UK (i.e. N.Ireland, Wales, Scotland and England) ?
Had a thyroidectomy in 1993 in Wales. Only see GP like every year or so. Just keep taking the pills!!
Lerwick , Shetland islands so yes Scotland
London/Herts borders
I was diagnosed in 2011 with hypothyroidism then in 2016 with Hashimoto and diabetes.
I was living in Germany at the time and definitely find the knowledge in the U.K. is lacking.
Hi mauschen, I live in England. I also have Hashs. My endo is not at all concerned about my level of antibodies. Fortunately they have reduced to appx 110 since starting Liothyronine.
I am also on Liothyronine. I started at 20mcg plus 75mcg of Levothyroxine. However, due to concerns about my heart disease, the Endo decided that I would be safer on 10mcg.
I am not a good converter which is why my U.K. Endo allowed me to continue my prescription. However, I feel as though I battle against every other doctor to justify staying on my prescription.
I felt better on 20mcg but I understand the risks so I am ok with 10mcg and crocodile legs.
Good to hear that you’re taking Liothyronine. A few years ago I had a private genetic test to check my t4-t3 conversion. This showed I have DIO2 Polymorphism which meant I don’t convert. This was the clicher as to whether Liothyronine could be prescribed. WOW! What a difference! More energy. Lost weight. My hair is thicker and I have eye brows which have been missing for years. The professor who did the report for the test nearly put the mockers on it though as he said I “would only benefit psychologically” from having it. I would like a 5 minutes ‘chat’ with this person!I understand the difficulties with the heart but I hope you’ll feel the benefits soon
Wow! I didn’t know you could have a test for that. My endocrinologist ( in Canada) wants to cut me off of Liothyronine (I was put on it by my endo in Scotland). Will be interesting to see if she’s willing for me to have this test done 😳😊😇 xx
Yes, everyone is concerned about heart disease. So they reduced my levothyroxine from 100 to 88… well, we all know what happened… I packed on some weight… of course easy to pack on .. not so easy to take off… now they’ve increased my levothyroxine to 112 to see if I can get some of this weight off… hmmm.. what about heart disease?? .. how about if I have too much weight on.. I don’t go walking and of course I’m depressed so maybe not such a good idea to reduce the levothyroxine 10 months ago 😔😔😢 but there it is in a nutshell .. I’ve only been living with this for over 45 years .. what would I know about my own body?? xx
I live in Kent in England
I live on the Isle of Man which is not listed, it’s not in the U.K. but is in the British Isles!
Really sorry Lanfairpwllgwyn! The poll feature here is ridiculously limited, with only eight possible options. We would like to have been able to split the locations up a lot more. Rest of World is the best we could do to cover those locations that we can't list individually.
Such a wonderful idea. 👏👏👏
Great poll.
Hello! I live in Texas USA. Was searching for a web here and found nothing. Was desperate, kept searching and found Healthunlocked. This web site is very informative. It doesn’t matter to me what part of the world we’re from we can all relate. Numbers are power!
It would be good if there was a category for the Channel Islands, Isle of Man. Doesn’t seem right that I have to be in the rest of the World category.
Yes, we wholeheartedly agree KatieG12. The problem is that the poll feature here is ridiculously limited, with only eight possible options. We would like to have been able to split the locations up a lot more. Rest of World is the best we could do to cover those locations that we can't list individually.
Bet you’re beginning to wish you hadn’t started RedApple 😉
RedApple explained to Lanfairpwllgwyn earlier that this poll mechanism is extremely crude. Only eight options are possible.
But your reply here can help identify your location - though I'm not sure which you are in!
Ah apologies I didn’t read the full thread. I’m the Isle of Man too. So there’s at least 2 of us. A Doctor commented that there is a high incidence of thyroid conditions on Island. Not sure if that’s theory or fact.
We could do a series of smaller polls and amalgámate the results and get more detailed location info that way
You like collating info 🤣🤣🤣
Does the app know our location? I bet it knows to the nearest millimetre. Pity it can’t be joined up for knowing the general location of members, anonymised of course.
I’m Cambridgeshire for my sins btw
Does the app still work? HU long ago said to use their website in a browser as the app was not being maintained.
Location by use of browser is variable and depends on lots of factors - including how much the host actually wants to identify your precise location.
I am absolutely sure that most sites cannot determine my exact location. (There are technical reasons for this.) Aside from anything else, those that claim to tell me where I am are wrong - sometimes by hundreds of miles!
Wouldn't app location also be dependant on where you are at the time, rather than where you live?
Maybe. But, for example, an iPhone with usual settings for Apple Account, includes home address. So it is theoretically possible for an app to base its assessment of location on that.
But I am pretty sure that such information is not (by default) accessible to apps on IOS. Therefore it would be its perceived location!
Mind, if you take a ship from UK mainland to Northern Ireland, you can jump to Norway or Sweden due to how the shipping companies handle internet connectivity!
sounds like a good idea , I live in Devon , and have been unable to get
a referral to an endocrinologist in over twenty years of suffering with all the symptoms of hypothyroidism ,and ,after all this time I am still only on 50 mg thyroxine mono -therapy and feeling wretched with debilitating fatigue , gut issues , dry gritty eyes , very itchy skin and continuous brain fog ,the list goes on !
Scandalous
I feel for you. I know what it’s like to have a Dr look at you like you’ve two heads because you say you don’t feel well and you’ve no energy etc etc xx
Currently in England but from Cardiff in Wales. can attest had far better treatment in Cardiff than i have currently received in South East England.
Buenos Aires Argentina. Originally diagnosed in the US with hashimotos 23 years ago. I have been living in Argentina 19. It took me forever to find an endo who would listen to me. She's private and excellent. Most here only care about thyroid cancer and diabetes. My doc knows I take thyroid-s and she doesn't have a problem with it. I must have seen 14 endos before I met my current doctor. Never give up. No matter how frustrating it is.
This is one of the few boards which has “sane” common sense information and support for all types of thyroid issues. I mainly focus on thyroid cancer in the US but I have learned so much here. Thank you.
I live in Spain was diagnosed 15 years ago in Germany with Hashimoto's. On 100mcg Euthyroid.
Thanks for this. Would it be possible to include the region of the relevant country?
No - it wouldn’t!
See RedApple replies earlier:
[ Links didn't work - scroll up this thread . ]
Sorry if that wasn’t a sensible question !😩 Clearly touched a raw nerve
Have tried to access RedApple’s replies via the links you gave but for some reason they are not ‘there’. Am getting the ‘Oops - page cannot be found message’.
Me too. They are further up this thread.
I had problems posting so suspect there is an HU issue.
Again.
Thank you. Have now found RedApples reply to that question from 8 days ago.
Unfortunately I didn’t think it was necessary to read the whole thread. Think I’ll keep my head down when there’s a poll.
My apologies
There is another way of getting similar information.
I've started a couple of threads on the subject - one in 2021 and one in 2015 :
2021 : healthunlocked.com/thyroidu...
2015 : healthunlocked.com/thyroidu...
Thanks so much. Have now accessed info by looking back. 😉
This graph will be updated from time to time.
When that happens, I'll delete this reply - along with any replies directly to it.
I lived in Scotland when I first found this website. I have since moved back to Canada. This website has been a godsend as they say x
I live in Canada .. but lumped in with USA
People in the USA might say "I live in the USA but find myself lumped in with Canada". 
We only have eight options available. This poll mechanism is extremely limited.
Our choice is (more or less) to do what we have done, to use one of the 8 for Canada alone, or not mention Canada.
