Suffering with Bile Acid / Bile Salt Malabsorption

[Jimbob85]

Hello! I’m new here and really hoping there might be some fellow Bile Acid / Bile Salt Malabsorption friends around to talk to. I have been taking Colesevelam tablets for the condition which I was diagnosed with about 18 months ago following 2-3 years of typical IBS symptoms, but the severity increased drastically last year and I was signed off work for 4 months. After extensive tests I was given a diagnosis and can honestly say that the medication improves the condition around 75% of the time, however I am really struggling with the side effects. In particular the bloating which is hugely uncomfortable as well as the tummy noises. These are super embarrassing when I am in a meeting at work and everyone looks over assuming I am about to run off to the toilet! I am also slim so the bloating is very noticeable and I now wear much looser fitting clothing which isn’t my personal taste. I’ve started drinking peppermint tea but today found out that it actually stimulates bile flow!! I would be really grateful and interested to hear if anyone else is taking Colesevelam for Bile Acid / Bile Salt Malabsorption and what your experiences have been. Any advice or help would also be ace as I just want to have a happy tummy once and for all. Thanks everyone. J

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Hi there, I haven't got this condition myself but I know that there are some people on this forum that have mentioned they have it. I hope that you get some replies.

Very best of luck