Hi All , Doctors Have given me colestyramine ... - IBS Network

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Hi All , Doctors Have given me colestyramine oral powder sachets

angel97uk profile image
8 Replies

has anyone ever had these if so please tell me they work :) i have suffered with this for many years now and its getting worse :(

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angel97uk profile image
angel97uk
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8 Replies

Yes this definitely works if you have diarrhoea.

I did a trial-by-treatment of colestyramine and, because it worked, I was re-diagnosed as having Bile Acid Disorder (BAD) rather than IBS-D - they both have exactly the same symptoms and 50% of people are wrongly diagnosed. You've obviously got a very switched-on doctor.

You may have to fiddle around with the dosage to get it right as it can cause a bit of constipation/wind/bloating if you take too much. I take half a sachet before lunch and dinner, but some people have to take 2 or 3 sachets at a time.

Kayslade profile image
Kayslade in reply to

I have been taking colestrymin for nearly three years now and I have malabsorption and I take two sachets twice a day full one it's helped me amencley don't worry about the camera I have had loads of them I put under sadation it relaxes you good luck

angel97uk profile image
angel97uk

Hi , Thanks for the reply , I have had this problem for nearly 8 years and im 27yrs old. i have been seeing my doctor since 2006 about it but was always told it was just ibs but after getting so fed up with it as it has got worse i knew it was something more than just a simple ibs hence joining this website and doing my own research. I am awaiting to have the dreaded camera :( and they also want to do the camera down the throat aswell but my doctor rang me saying the hospital wrote to them and said prescribe this in the meantime. Its just so embarassing esp when i work full time and i refuse to go at work incase ppl talk etc ( i no we are only human ) but always been self conscious. I lost my mum a little while back and i no this has contributed to it also. Hope this does work as it really affects me in everything i do :((

in reply toangel97uk

I do wish you well with this, it may just be the answer - fingers crossed!

xsnorkelx profile image
xsnorkelx in reply toangel97uk

Hi don't worry yourself about the camera literally only lasts for 3 mins. If you're scared of being sick insist on sedation. I had it without and was fine and I'm a big baby with anything like that but I had a lovely nurse who held my hand throughout which helped.

Please don't worry about the 'scoping' the more tests that are done the better the diagnosis I would hope. I had them done last year and was sedated - that's done to relax the muscles.

trishyb59 profile image
trishyb59

hi i started to take cholestyramine abt 9wks and have had a 50% improvement which is the best i've been in 20yrs. gone from 11/ 15 times a day to 5/7 times a day. i take quarter sachet twice a day . hope things improve for you

Kayslade profile image
Kayslade

Hi have malabsorption and I take colestrymin it works for me been on it three years now and have never looked back I take full sachets twice a day

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