Trying to figure it out

[HannahJG]

Hi Everyone,

I'm Hannah, I'm undergoing investigation to find out what's going on but I suspect something autoimmune/connective tissue as I've had a million arthiritis tests and nothing has come from them.

I have mild hypermobility, chronic widespread joint pain and stiffness, reduced mobility, muscle pain and spasms, reynauds, IBS, breathlessness, fatigue, trouble sleeping, frequent minor illnesses (cold & sore throat) and pins and needles and loss of sensation in my hands and feet.

I find heat and pacing and grading activites help but any further advice would be welcomed. My doctor has instigated blood tests to check inflammation levels but I have no idea what else would help come to an explanation or diagnosis, are there any posts explaining people's diagnosis stories?

I'm feeling a little lost, and given this is the first time in years a doctor has taken me seriously I want to get the most out of it.

Thanks,

Hannah

[Tibby43]

That sounds like lots of inflammation, pathogens have obviously entered your pathways xx I had the same Symptoms I have multiple autoimmune illnesses. Look at our information really about inflammation as you need to get that down x it’s easy to say find a good dr but it’s not as easy as that x are you okay with your dr? You poor thing this must be so overwhelming and scary it really was for me right now knowledge is power when you are not well xx