Previously on here expressing that i didn’t want to take my meds x

[87wise]

Hi everyone just wanted to update you all as I have since read the comments on my post I have rejoined as I’d left . I’ve sought help through my Tb nurse I’m now receiving the help I need as I’ve been suffered with very low mood and neuropathy in my hands caused by the medication and the guilt of infected a lot of my family members. I can inform you I have continued my medication and have not stoped taking them. I took everyone’s advice and didn’t stop until I got the support I needed. I work for the NHS myself so I know the importance of my medication I’ve just been in such a dark place and didn’t realise that this thing called Tb could affect my life so much with constant pain being told I had anxiety in a&e before I got a proper diagnosis and sent away it’s harder when your sat in your scrubs on Boxing Day begging for help and colleagues thinking your making the pain up ... refusing to take X-rays and bloods it’s hard mentally I’m not gunna lie .My cavity’s are so far not showing any vast improvement it all has got too me . I’ve felt very alone as let’s face it in the UK it’s not the first thing the doctors think it could be and doctors gave a different diagnosis I was on the cancer pathway over here so been through a lot my nurse said she’s not surprised I’ve had a melt down and felt this way I always feel I need to be strong all the time when doing the job I do but I’m human I suppose and I couldn’t cope I hold me hands up . I just wanted to say Thankyou to you all for putting up with my erratic behaviour and helping me realise that this isn’t my fault . I wish the NHS would do regular testing and save people from contracting TB and it becoming advice I’ve only ever had my BCG and never ever testing in my ten year career . Once again Thankyou Sammi xxxx

[Soul01]

Well done for sticking with the treatment.

I sympathise with how you’re feeling. I was misdiagnosed and then due to a mess up with a lung tissue sample, ended up paying for tests to get the diagnosis. I even had to change to a different hospital because the one I was assigned to didn’t fill me with any confidence.

There is a massive gap in treating the whole person. It is all about medication, tests and scans. Very little attention given to the psychological effects of the condition, treatment, etc.

I got through it, feel well and had a good experience at the hospital that provided most of the treatment. Their kindness meant so much to me.

You will get through this and might want to use your experience to advocate for better care for others.

[SN1987]

I am glad for you 87wise… It’s good to have you back. Always here if you need to chat…