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Xtandi
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Receiving radiation now, switching from Zytiga to
Xtandi
next week. We’ve been to UPMC Hillman Cancer Center in PGH. Then Cleveland Clinic, now Mayo, with a visit to MD Anderson in there for another opinion. They all say the same and always have. They don’t give us hope.
Receiving radiation now, switching from Zytiga to
Xtandi
next week. We’ve been to UPMC Hillman Cancer Center in PGH. Then Cleveland Clinic, now Mayo, with a visit to MD Anderson in there for another opinion. They all say the same and always have. They don’t give us hope.
Hidden
in
Advanced Prostate Cancer
5 years ago
PSA RISING
Started
Xtandi
. 4 weeks later he ended up with lymphadema left thigh. 10 months later the
Xtandi
is no longer working. First of all his PSA never went below 0.7. Once it reached that number it went to 1.15 then 2.14 and recently 2.95. Had CT scan of chest, abdomen, pelvis and bone scan.
Started
Xtandi
. 4 weeks later he ended up with lymphadema left thigh. 10 months later the
Xtandi
is no longer working. First of all his PSA never went below 0.7. Once it reached that number it went to 1.15 then 2.14 and recently 2.95. Had CT scan of chest, abdomen, pelvis and bone scan.
Hidden
in
Advanced Prostate Cancer
5 years ago
Whats the difference between the Axumin PET/CT and a regular bone scan and CT scan of pelvis and abdomen
in 2014 with Mets to bones and Gleason 9 he has been on Lupron every three months and xgeva, while still on those injections we started Provenge finished that still on shots but then PSA started rising in 2017 so put on Zytiga and Prednisone now Mar 2019 PSA elevated and doctor said no point to do
Xtandi
in 2014 with Mets to bones and Gleason 9 he has been on Lupron every three months and xgeva, while still on those injections we started Provenge finished that still on shots but then PSA started rising in 2017 so put on Zytiga and Prednisone now Mar 2019 PSA elevated and doctor said no point to do
Xtandi
Olivia007
in
Advanced Prostate Cancer
5 years ago
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Where can my husband get a PSMA scan in the US without having had chemo?
He takes
Xtandi
which is currently effective. I have only been able to find PSMA studies that require previous chemo and progression on
Xtandi
. Thanks.
He takes
Xtandi
which is currently effective. I have only been able to find PSMA studies that require previous chemo and progression on
Xtandi
. Thanks.
Grumpyswife
in
Advanced Prostate Cancer
5 years ago
Tickets Available Now for Prostate Cancer Patient Conference
11-11:15BREAK 11:15-11:45Castrate-resistant prostate cancer: Best Molecules for You (
xtandi
, erleada and zytiga) – for castrate-resistant CA Medical Oncologist – Sue Slovin – MSKCC 11:45–12:15Novel combination salvage therapies 12:15-12:45PANEL Q&A 12:45 – 1:45LUNCH Afternoon: Quality of Life
11-11:15BREAK 11:15-11:45Castrate-resistant prostate cancer: Best Molecules for You (
xtandi
, erleada and zytiga) – for castrate-resistant CA Medical Oncologist – Sue Slovin – MSKCC 11:45–12:15Novel combination salvage therapies 12:15-12:45PANEL Q&A 12:45 – 1:45LUNCH Afternoon: Quality of Life
Darryl
Partner
in
Advanced Prostate Cancer
5 years ago
Xtandi for non MCRPC
I simply opted for
Xtandi
simply because the FAA is used to dealing with this drug. Has anyone gone to Erleada?
I simply opted for
Xtandi
simply because the FAA is used to dealing with this drug. Has anyone gone to Erleada?
pilot52
in
Advanced Prostate Cancer
5 years ago
New Chapter: Xofigo!
I think
Xtandi
took care of the rib pain I had. Last two measures showed my PSA stalled at 26. Hopefully the Xofigo will help to drive it back to undetectable. Meanwhile I will continue with the ranch work in a cautious manner and enjoy Spring 2019. Sunshine and flowers to you all!
I think
Xtandi
took care of the rib pain I had. Last two measures showed my PSA stalled at 26. Hopefully the Xofigo will help to drive it back to undetectable. Meanwhile I will continue with the ranch work in a cautious manner and enjoy Spring 2019. Sunshine and flowers to you all!
Shepard
in
Advanced Prostate Cancer
5 years ago
XTANDI worries
My 86 year old Father has been advised to begin taking
XTANDI
. At 62 his Prostate was removed, been in treatment since. Currently PSA is 5, Lupron injections every 3 months. I am worried about side effects, as he lives alone.
My 86 year old Father has been advised to begin taking
XTANDI
. At 62 his Prostate was removed, been in treatment since. Currently PSA is 5, Lupron injections every 3 months. I am worried about side effects, as he lives alone.
Advocatedaughter
in
Advanced Prostate Cancer
5 years ago
First post: Hazy with Xtandi - any experience/advice?
Advanced prostate cancer, Gleason 9, meta to spine; done bicalcutamide, Zytiga, docetaxel (stopped for severe reaction),
Xtandi
for 6 weeks and feeling hazy (slow, hard to concentrate). Last PSA check 0.6. Anybody share experience or advice? Much appreciated.
Advanced prostate cancer, Gleason 9, meta to spine; done bicalcutamide, Zytiga, docetaxel (stopped for severe reaction),
Xtandi
for 6 weeks and feeling hazy (slow, hard to concentrate). Last PSA check 0.6. Anybody share experience or advice? Much appreciated.
Walkingwell
in
Advanced Prostate Cancer
5 years ago
Anyone Familiar With a Research Study JH17U01?
It involves combining
Xtandi
with a drug referred to as LY2157299. Its in phase II. My MO at Northshore referred me. The research is supported by Johns Hopkins and Eli Lilly. Right now it up to my insurance if I can participate.
It involves combining
Xtandi
with a drug referred to as LY2157299. Its in phase II. My MO at Northshore referred me. The research is supported by Johns Hopkins and Eli Lilly. Right now it up to my insurance if I can participate.
Hex40
in
Advanced Prostate Cancer
5 years ago
Xtandi fatigue and back pain
My question is: could this be from something other than
Xtandi
? Does it work to take a vacation? I am worn out going to the store with my wife. Most of you guys haven't seemed to have trouble, or does it get worse with time? Thanks for your input.
My question is: could this be from something other than
Xtandi
? Does it work to take a vacation? I am worn out going to the store with my wife. Most of you guys haven't seemed to have trouble, or does it get worse with time? Thanks for your input.
willshake
in
Advanced Prostate Cancer
5 years ago
How much to interact with care?
He is on Lupron and
Xtandi
but PSA is rising about 2pts a month and is now 20. I always go to his appts with him. I handle all the bills and the insurance issues. I asked his MO about clinical trials on lu 177 vs Xofigo as his next treatment option and was told I should stay off the internet.
He is on Lupron and
Xtandi
but PSA is rising about 2pts a month and is now 20. I always go to his appts with him. I handle all the bills and the insurance issues. I asked his MO about clinical trials on lu 177 vs Xofigo as his next treatment option and was told I should stay off the internet.
Hidden
in
Prostate Cancer Caregivers
5 years ago
switching xtandi to nights ???
I'm taking 4
xtandi
( 160 mg ) in the morning and , as seen on the site ...I'd like to try switching to nights. how should I go about doing that. just wait until bedtime and take 4 more at night and continue with nights the following times.
I'm taking 4
xtandi
( 160 mg ) in the morning and , as seen on the site ...I'd like to try switching to nights. how should I go about doing that. just wait until bedtime and take 4 more at night and continue with nights the following times.
Kaliber
in
Advanced Prostate Cancer
5 years ago
Well..latest (03/22) PSA is up to 1.67 from 1.5(O2/22)...on the high test(concentrated) BIRM for 2 months now. Lupron & Xtandi.
Still feeling better than I did without it....even though it seems like I am feeling the build up of
Xtandi
issues...and now the added issues from Xgeva(a little bone pain in ribs)...Still keeping on keeping on.
Still feeling better than I did without it....even though it seems like I am feeling the build up of
Xtandi
issues...and now the added issues from Xgeva(a little bone pain in ribs)...Still keeping on keeping on.
greatjohn
in
Advanced Prostate Cancer
5 years ago
WHEN IT RAINS,IT POURS
Hey ,my hubby58,has stage 4 prostate cancer.he was diagnosed in July 2017.he has had the casodex,and
xtandi
,radiation and now today we were told that he has lesions on his bones,a spot on his liver,spa is over 41..he also has mestatic cancer lymph nodes swollen..please tell me what can I do to help my
Hey ,my hubby58,has stage 4 prostate cancer.he was diagnosed in July 2017.he has had the casodex,and
xtandi
,radiation and now today we were told that he has lesions on his bones,a spot on his liver,spa is over 41..he also has mestatic cancer lymph nodes swollen..please tell me what can I do to help my
Myhubby58
in
Advanced Prostate Cancer
5 years ago
Appx 2 Months on Concentrated (7x) BIRM and 8 months on Xtandi....Xtandi side effects starting to win (again).
well...when I started
Xtandi
the first few months were okay..then came the leg pains and muscle aches and extreme fatigue...THEN, along came BIRM (regular strength at first)....and everything got much easier.
well...when I started
Xtandi
the first few months were okay..then came the leg pains and muscle aches and extreme fatigue...THEN, along came BIRM (regular strength at first)....and everything got much easier.
greatjohn
in
Advanced Prostate Cancer
5 years ago
XTANDI beginning to fail
What I don't know is what are the next steps for a man with essentially no mets if the
Xtandi
continues to fail. I meet with my Onc on Monday the 18'th and want to have some alternatives to present. Thanks and peace be our journey! Bees
What I don't know is what are the next steps for a man with essentially no mets if the
Xtandi
continues to fail. I meet with my Onc on Monday the 18'th and want to have some alternatives to present. Thanks and peace be our journey! Bees
zenbee13
in
Advanced Prostate Cancer
5 years ago
Advanced PCa Treatment Options for 80 y/o
Urologist recommended
Xtandi
as next level treatment but costs for the medicine here in the PH is exorbitant. Chemo at this time is not a viable option due to age factors. Scheduled for onco visit but would like to hear about about cases of PCa with the same age group as my father.
Urologist recommended
Xtandi
as next level treatment but costs for the medicine here in the PH is exorbitant. Chemo at this time is not a viable option due to age factors. Scheduled for onco visit but would like to hear about about cases of PCa with the same age group as my father.
JoyceR724
in
Advanced Prostate Cancer
5 years ago
Latest outcome from Lu177 treatments
To make the next and last treatment more effective, I docs put me on
Xtandi
, enzalutamide because it makes the tumours express more PsMa avidity so that more Lu177 gathers where the Pca is active. I welcome their expertise to supercharge the Lu177. So far, no side effects from Enza Lootamide.
To make the next and last treatment more effective, I docs put me on
Xtandi
, enzalutamide because it makes the tumours express more PsMa avidity so that more Lu177 gathers where the Pca is active. I welcome their expertise to supercharge the Lu177. So far, no side effects from Enza Lootamide.
Patrick-Turner
in
Advanced Prostate Cancer
5 years ago
Feeling defeated.
Dr Drake placed me on Eligard in December due to a rising PSA on full dose
xtandi
. PSA was 1.7 at that time. Ct showed common iliac and retroperitoneal nodes. Bone scan was negative. Follow up PSA in Jan was 2.5 with testosterone <3. This week PSA is 3.9. Testosterone <3.
Dr Drake placed me on Eligard in December due to a rising PSA on full dose
xtandi
. PSA was 1.7 at that time. Ct showed common iliac and retroperitoneal nodes. Bone scan was negative. Follow up PSA in Jan was 2.5 with testosterone <3. This week PSA is 3.9. Testosterone <3.
Rexwaterbury
in
Advanced Prostate Cancer
5 years ago
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