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Urso
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Should I start URSO?
Still no symptoms but my consultant now wants me to start taking
URSO
. After reading many posts on here about the horrible side-effects I am reluctant/scared to start taking it in case I feel worse!
Still no symptoms but my consultant now wants me to start taking
URSO
. After reading many posts on here about the horrible side-effects I am reluctant/scared to start taking it in case I feel worse!
Quirky1
in
PBC Foundation
9 years ago
Pain
I have taken
Urso
off and on since then. I had lap-band surgery in 2010 and following that, I've been inconsistent in taking the meds. Thinking I really need to get back on them.... I'm just a bad patient. This pain is a little scary. Thanks in advance for your input!
I have taken
Urso
off and on since then. I had lap-band surgery in 2010 and following that, I've been inconsistent in taking the meds. Thinking I really need to get back on them.... I'm just a bad patient. This pain is a little scary. Thanks in advance for your input!
tntarheel
in
PBC Foundation
9 years ago
Pbc test results help
My test results Docter did not prescribe
urso
or anything. Said nothing would help. He is a liver specialist.
My test results Docter did not prescribe
urso
or anything. Said nothing would help. He is a liver specialist.
luisv187
in
PBC Foundation
9 years ago
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New pbc member
I'm in 500mg
urso
twice a day. In the beginning of medicine it did make me very itchy and fatigue but slowly they are winding down .. I have no diet restriction except alcohol .. I do smoke socially rt now like 10 cigarets a week but I'm Going cold turkey soon ..
I'm in 500mg
urso
twice a day. In the beginning of medicine it did make me very itchy and fatigue but slowly they are winding down .. I have no diet restriction except alcohol .. I do smoke socially rt now like 10 cigarets a week but I'm Going cold turkey soon ..
Sachin1234
in
PBC Foundation
9 years ago
New pbc member
I'm in 500mg
urso
twice a day. In the beginning of medicine it did make me very itchy and fatigue but slowly they are winding down .. I have no diet restriction except alcohol .. I do smoke socially rt now like 10 cigarets a week but I'm Going cold turkey soon ..
I'm in 500mg
urso
twice a day. In the beginning of medicine it did make me very itchy and fatigue but slowly they are winding down .. I have no diet restriction except alcohol .. I do smoke socially rt now like 10 cigarets a week but I'm Going cold turkey soon ..
Sachin1234
in
PBC Foundation
9 years ago
Latest blood results
Hi all got my latest blood results back and although billirubin has come down to 90 and all phos to 225 my alt result has gone up from 185 to 353, been on
urso
for 7 days but not really making much difference,to the bloody itch, after a couple of days of seeming to ease off slightly its now back with
Hi all got my latest blood results back and although billirubin has come down to 90 and all phos to 225 my alt result has gone up from 185 to 353, been on
urso
for 7 days but not really making much difference,to the bloody itch, after a couple of days of seeming to ease off slightly its now back with
clarebear1301
in
British Liver Trust
9 years ago
Pain and loss of strength
i don't have the usual symptoms of pbc eg..itch fatigue.my bloods are only mildly elevated ggt 80at worst was 120.i only take 450 mg of
urso
as more upsets my system(should be on 1000) Can this be down to pbc or am I just getting old?im 55 and went through change as I was diagnosed pbc in jan2013
i don't have the usual symptoms of pbc eg..itch fatigue.my bloods are only mildly elevated ggt 80at worst was 120.i only take 450 mg of
urso
as more upsets my system(should be on 1000) Can this be down to pbc or am I just getting old?im 55 and went through change as I was diagnosed pbc in jan2013
cazz22
in
PBC Foundation
9 years ago
Clinical trials for pbc
Hi, as a non-responder to
URSO
I am to start on a clinical trial program. Any advice or an idea of what to expect would be very much appreciated. Thank you 😃
Hi, as a non-responder to
URSO
I am to start on a clinical trial program. Any advice or an idea of what to expect would be very much appreciated. Thank you 😃
Godfrey1
in
PBC Foundation
9 years ago
Eating issues
However on the whole I've grasped it by the b..L's as it were take my
urso
and get on with life the best I can. However at the beginning I found for example Indian food or big restaurant 3 course meals sent me to bed to recover made me so tired & ill.
However on the whole I've grasped it by the b..L's as it were take my
urso
and get on with life the best I can. However at the beginning I found for example Indian food or big restaurant 3 course meals sent me to bed to recover made me so tired & ill.
teddybear7
in
PBC Foundation
9 years ago
Question ?
I am on prednisolone, mercaptopurine (cytotoxic cancer drug inplace of aza)
urso
, omeprazole and sometimes Questran, if I have issues with over production of bile. I am also concerned that the HRT I use might be causing problems for my liver.
I am on prednisolone, mercaptopurine (cytotoxic cancer drug inplace of aza)
urso
, omeprazole and sometimes Questran, if I have issues with over production of bile. I am also concerned that the HRT I use might be causing problems for my liver.
Alley27
in
PBC Foundation
9 years ago
Urso
Urso
has definitely improved her bloods. If it's indeed alcoholic cirrhosis, would she still have to take
Urso
indefinitely? Many thanks Tim
Urso
has definitely improved her bloods. If it's indeed alcoholic cirrhosis, would she still have to take
Urso
indefinitely? Many thanks Tim
temirzhan
in
British Liver Trust
9 years ago
Urso and nausea
I've been taking
urso
for over 2yrs now and I still get an upset stomach i am so tired of feeling sick I can't stand it. Any advice?
I've been taking
urso
for over 2yrs now and I still get an upset stomach i am so tired of feeling sick I can't stand it. Any advice?
donsheray
in
PBC Foundation
9 years ago
Is this right??
The bile ducts which are blocked cannot be treated via ERCP or any other procedure so will be getting worse depending on the effect of the
Urso
drug. The Doctor said something about managing symptoms - this means the itching etc.
The bile ducts which are blocked cannot be treated via ERCP or any other procedure so will be getting worse depending on the effect of the
Urso
drug. The Doctor said something about managing symptoms - this means the itching etc.
pear-shaped
in
British Liver Trust
9 years ago
diagnosed at same time as polymyalgia, consultant didn't prescribe anything, am concerned. can you help?
Am concerned as everyone seems to be prescribed
urso
(?) but I haven't.
Am concerned as everyone seems to be prescribed
urso
(?) but I haven't.
Wispa123
in
PBC Foundation
9 years ago
GP's ignorance
So at long last I will be getting
Urso
. I have had a liver scan showing my liver is enlarged. Am going for further more detailed scans. I hope that the 10 years of non-treatment whilst being symptomatic has not harmed me significantly.
So at long last I will be getting
Urso
. I have had a liver scan showing my liver is enlarged. Am going for further more detailed scans. I hope that the 10 years of non-treatment whilst being symptomatic has not harmed me significantly.
rainbowsong42
in
PBC Foundation
9 years ago
Urso
I was diagnosed in December and since then have been taking
Urso
. I have severe fatigue and currently signed off work. I read on the tablet information that blood tests should be taken after 28 days to check whether the medication is working.
I was diagnosed in December and since then have been taking
Urso
. I have severe fatigue and currently signed off work. I read on the tablet information that blood tests should be taken after 28 days to check whether the medication is working.
CathieG
in
PBC Foundation
10 years ago
Pbc for real now
Was told I had pbc a year ago but my biopsy showed nothing as of yet,I have done blood test every 3 months sense then.In Jan I was put on
urso
because my levels were increasing and I'm not feeling all that well.
Was told I had pbc a year ago but my biopsy showed nothing as of yet,I have done blood test every 3 months sense then.In Jan I was put on
urso
because my levels were increasing and I'm not feeling all that well.
renee29
in
PBC Foundation
9 years ago
Shaking and joint pain.
I'm afraid I don't have a lot of faith in what's going to be said me next week and I just hope the
Urso
is working and my craziness is down to not knowing if the meds are working. This sounds crazy but that's exactly how I feel.
I'm afraid I don't have a lot of faith in what's going to be said me next week and I just hope the
Urso
is working and my craziness is down to not knowing if the meds are working. This sounds crazy but that's exactly how I feel.
CathieG
in
PBC Foundation
9 years ago
Transplant
Hi I have bn diagnosed for few years now and bn on
urso
which now isnt working so I am now at stage 4. My consultant had referred me to transplant unit but my condition wasnt serious enough at the time however im due bk in 3 weeks to be reviewed again.
Hi I have bn diagnosed for few years now and bn on
urso
which now isnt working so I am now at stage 4. My consultant had referred me to transplant unit but my condition wasnt serious enough at the time however im due bk in 3 weeks to be reviewed again.
evelyn1
in
PBC Foundation
10 years ago
Fatigue
I have been on
urso
for about a month now and the tiredness I think is getting worse. My partner emplyed today that it was a coincidence that since my diagnosis I have got worse. Is it me or can that happen. I feel like I have no one that understands me.
I have been on
urso
for about a month now and the tiredness I think is getting worse. My partner emplyed today that it was a coincidence that since my diagnosis I have got worse. Is it me or can that happen. I feel like I have no one that understands me.
Michelle2015
in
PBC Foundation
10 years ago
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