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Rheumatologist Visit: take Hydroxychloroquine and PMR isn't a vasculitis
Okay, I had a major flare over the past few months so upped my prednisone by adding 6 mg for 10 days, then settled back to 8 mg prednisone (3 at night 5 in morning) which has handled the flare. (Tons of stress nursing an ill husband). So I saw my rheumy 3 weeks ago during the flare and told her I had
Okay, I had a major flare over the past few months so upped my prednisone by adding 6 mg for 10 days, then settled back to 8 mg prednisone (3 at night 5 in morning) which has handled the flare. (Tons of stress nursing an ill husband). So I saw my rheumy 3 weeks ago during the flare and told her I had
artfingers
in
PMRGCAuk
2 years ago
Update on possible GCA
I posted two days ago about a headache that would not go away. It’s lasted almost two weeks. Today I had a very comprehensive temporal artery ultrasound. They did both sides of the head and the arteries under both arms. The procedure took an hour. I am so relieved to say they found no swelling anywhere
I posted two days ago about a headache that would not go away. It’s lasted almost two weeks. Today I had a very comprehensive temporal artery ultrasound. They did both sides of the head and the arteries under both arms. The procedure took an hour. I am so relieved to say they found no swelling anywhere
Blackcatlover
in
PMRGCAuk
2 years ago
GCA?
GCA? Have had a headache for the last ten days. I am currently taking 4mg of prednisone and injecting Actemra every four weeks. I upped my prednisone by 5mg of pred for ten days with no improvement. Head feels tight and back of head and sides are sore to touch. These symptoms seem to change, not always
GCA? Have had a headache for the last ten days. I am currently taking 4mg of prednisone and injecting Actemra every four weeks. I upped my prednisone by 5mg of pred for ten days with no improvement. Head feels tight and back of head and sides are sore to touch. These symptoms seem to change, not always
Blackcatlover
in
PMRGCAuk
2 years ago
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Avoid people for 14 days after booster question please
Im sure I read government guidelines posted recently that we should avoid anyone who has had a jab or booster for 14 days. Can anyone remember it please or am I having a senior moment? I am on 12mg Pred and Actemra weekly injections and my home help had her booster today after waiting 28 days to recover
Im sure I read government guidelines posted recently that we should avoid anyone who has had a jab or booster for 14 days. Can anyone remember it please or am I having a senior moment? I am on 12mg Pred and Actemra weekly injections and my home help had her booster today after waiting 28 days to recover
HappyDiamonds
in
PMRGCAuk
2 years ago
Actemra and positive covid
Has anyone tested positive for COVID whilst on Actemra inj.? If so is it o.k to carry on with inj. or should you stop until all clear.
Has anyone tested positive for COVID whilst on Actemra inj.? If so is it o.k to carry on with inj. or should you stop until all clear.
Petcut
in
PMRGCAuk
2 years ago
Test other than template biopsy to confirm gca
Wishing everyone happy and healthy new year 🙏🙏 My , wife could not do template biopsy but she have symptom similar to gca headache, pressure on eye and ear ,from last 6 months ,she is on prednisone .and actemra is stop recently , dr tried mri head,pet scan , lumbar puncture , .esr but ,all are normal
Wishing everyone happy and healthy new year 🙏🙏 My , wife could not do template biopsy but she have symptom similar to gca headache, pressure on eye and ear ,from last 6 months ,she is on prednisone .and actemra is stop recently , dr tried mri head,pet scan , lumbar puncture , .esr but ,all are normal
Rajuguide
in
PMRGCAuk
2 years ago
Where are we heading with GCA?
It might be too close to Christmas for any of you wonderful experts to answer, and really no hurry, but I am wondering what the actual objective is with treatment for GCA? I presumed at first that high dose steroids were given to eliminate the dangerous GCA symptoms and ‘reset’ the immune system
It might be too close to Christmas for any of you wonderful experts to answer, and really no hurry, but I am wondering what the actual objective is with treatment for GCA? I presumed at first that high dose steroids were given to eliminate the dangerous GCA symptoms and ‘reset’ the immune system
Happyexplorer
in
PMRGCAuk
3 years ago
Timing of third vaccination with Actemra
This is not advice but merely an account of how I finally navigated the timing of vaccination 3 in the TCZ cycle, for those who may be in the same boat. Studies are showing that the vaccine is showing efficacy after 1 to 2 weeks. My TCZ jabs are 3.5 weekly, so I went right in the middle at 13 days,
This is not advice but merely an account of how I finally navigated the timing of vaccination 3 in the TCZ cycle, for those who may be in the same boat. Studies are showing that the vaccine is showing efficacy after 1 to 2 weeks. My TCZ jabs are 3.5 weekly, so I went right in the middle at 13 days,
LemonZest11
in
PMRGCAuk
3 years ago
Actemra users
Hi all I have Polymyalgia and gca,I’m on 9mg pred.and just had my 4th Actemra inj. today, and will go down to 8mg pred tomorrow as instructed by my Rheumatologist,what I’m asking is it the norm to be feeling exhausted,shakey,mild headache, drugged up, I’m putting this down to the Actemra (could be wrong
Hi all I have Polymyalgia and gca,I’m on 9mg pred.and just had my 4th Actemra inj. today, and will go down to 8mg pred tomorrow as instructed by my Rheumatologist,what I’m asking is it the norm to be feeling exhausted,shakey,mild headache, drugged up, I’m putting this down to the Actemra (could be wrong
Petcut
in
PMRGCAuk
3 years ago
Dr stop actemra . Still question is it gca ?
My wife was diogonsis gca 6 month back , biopsy could not done . She was on steriod and actemra as per standard chart from 60 to down 15 mg with weekly actemra, no much improvements in headache, pressure , all test were perform mri .,every thing seems ok team of .rehumotologist, neurologist . And eye
My wife was diogonsis gca 6 month back , biopsy could not done . She was on steriod and actemra as per standard chart from 60 to down 15 mg with weekly actemra, no much improvements in headache, pressure , all test were perform mri .,every thing seems ok team of .rehumotologist, neurologist . And eye
Rajuguide
in
PMRGCAuk
3 years ago
10 Years...journey over?
10 years PMR and GCA. Was on Actemra tapered to every 3 week injections. Well my Creatinine took a bump up and though rare, the only reason anyone could figure it happened was the Actemra. So, last dose was Sept 10th. Creat came down, and I feel good. So...after a 10 year journey, no meds, no symptoms
10 years PMR and GCA. Was on Actemra tapered to every 3 week injections. Well my Creatinine took a bump up and though rare, the only reason anyone could figure it happened was the Actemra. So, last dose was Sept 10th. Creat came down, and I feel good. So...after a 10 year journey, no meds, no symptoms
PMR2011
in
PMRGCAuk
3 years ago
I share concerns, I'm sharing some good news!!
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
Grammy80
in
PMRGCAuk
3 years ago
Relapse and dose ?
My wife for gca. , 5 months back Started prednisone 60 with actemra weekly she was improving till 9 mg got flare went up to 10-12.5 and lastly on 40 mg as per dr advice , she felt ok for 2 days , now again symptom headache,pressure on eye started , my question , IS THIS COMMON ? will she have to
My wife for gca. , 5 months back Started prednisone 60 with actemra weekly she was improving till 9 mg got flare went up to 10-12.5 and lastly on 40 mg as per dr advice , she felt ok for 2 days , now again symptom headache,pressure on eye started , my question , IS THIS COMMON ? will she have to
Rajuguide
in
PMRGCAuk
3 years ago
Roactemra Tocilizumab - lab out of stock - advice needed please.
I would also like to know if there is anywhere in the UK that I could order and buy the
Roactemra
injections on arrival? I'll be travelling from Folkestone to Newcastle. I know they are like gold dust but there may be somewhere.
I would also like to know if there is anywhere in the UK that I could order and buy the
Roactemra
injections on arrival? I'll be travelling from Folkestone to Newcastle. I know they are like gold dust but there may be somewhere.
Frenchduck
in
PMRGCAuk
3 years ago
Prednisone dose !
My wife 71 GCA , started treatment 5 month back with 60 mg Prednisone and weekly actemra, she had little improvement , till 9 mg where she got flare , dr advice first to go 10 and than again to 12.5 but she is not improving now dr told to go directly 40mg for week . Any advice ! is this ok . As she
My wife 71 GCA , started treatment 5 month back with 60 mg Prednisone and weekly actemra, she had little improvement , till 9 mg where she got flare , dr advice first to go 10 and than again to 12.5 but she is not improving now dr told to go directly 40mg for week . Any advice ! is this ok . As she
Rajuguide
in
PMRGCAuk
3 years ago
Has anyone in US have a hard time paying for Actemra?
Rheumatologist wants me to take Actemra because pred is causing too many adverse side effects. No sure how it is in other countries but extremely expensive here. My insurance will pay half but I still have to pay over $1600 a month. I cannot afford it. I have contacted different agencies to help with
Rheumatologist wants me to take Actemra because pred is causing too many adverse side effects. No sure how it is in other countries but extremely expensive here. My insurance will pay half but I still have to pay over $1600 a month. I cannot afford it. I have contacted different agencies to help with
nallufl24
in
PMRGCAuk
3 years ago
Dizziness related to actemra or prednisone
I have been on prednisone since april and started also on actemra every other week at the same time. Recently my rheumy started me on actemra every week while tapering off prednisone. I have been dizzy and nauseated almost every day since being on it every week. Anyone else had similar issues?
I have been on prednisone since april and started also on actemra every other week at the same time. Recently my rheumy started me on actemra every week while tapering off prednisone. I have been dizzy and nauseated almost every day since being on it every week. Anyone else had similar issues?
emmamom
in
PMRGCAuk
3 years ago
Dose pack of methyl prednisone while on 4 mg of prednisone
Good morning. I am currently on 4mg of prednisone daily and auto injections of Actemra once a month. This is my sixth year trying to keep my PMR under control. Things have been going well for the last four months. Unfortunately I have two herniated disc’s due to a kayak trip. I have seen a neurosurgeon
Good morning. I am currently on 4mg of prednisone daily and auto injections of Actemra once a month. This is my sixth year trying to keep my PMR under control. Things have been going well for the last four months. Unfortunately I have two herniated disc’s due to a kayak trip. I have seen a neurosurgeon
Blackcatlover
in
PMRGCAuk
3 years ago
Hair falling in gca treatment
My wife 70 years is on prednisone and actemra from last 5 months for GCA treatment.She has too much hair loss. She scare she will become bald after few months .she is depressed. Any one will guide me . Is this a permanent loss of hairs ? is there any way to stop falling of hairs.
My wife 70 years is on prednisone and actemra from last 5 months for GCA treatment.She has too much hair loss. She scare she will become bald after few months .she is depressed. Any one will guide me . Is this a permanent loss of hairs ? is there any way to stop falling of hairs.
Rajuguide
in
PMRGCAuk
3 years ago
Back up to 40 mg pred
I wrote here how I was down to 10mg pred in 4 months. You all said that was too fast and I didn’t want to believe you. My headaches were coming back so rheumatologist upped it to 15. It’s been 6 days and I still have headaches. Today he upped it to 40mg to get the inflammation under control. Both sed
I wrote here how I was down to 10mg pred in 4 months. You all said that was too fast and I didn’t want to believe you. My headaches were coming back so rheumatologist upped it to 15. It’s been 6 days and I still have headaches. Today he upped it to 40mg to get the inflammation under control. Both sed
nallufl24
in
PMRGCAuk
3 years ago
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