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Experiences with
Interferon
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COVID and Pegylated Interferon
At my last Haematology appointment the Dr told me that
Interferon
helps strengthen the immune system. I have also read that
Interferon
has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required.
At my last Haematology appointment the Dr told me that
Interferon
helps strengthen the immune system. I have also read that
Interferon
has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required.
AnitaJ
in
MPN Voice
8 months ago
Trouble getting interferon?
We have talked about trying
interferon
, but my Dr is convinced that it is extremely hard if not impossible to get the drug right now. Has anyone else experienced a problem getting your hands on
interferon
? I live in North Idaho, so I'm not sure if our remoteness is part of the problem.
We have talked about trying
interferon
, but my Dr is convinced that it is extremely hard if not impossible to get the drug right now. Has anyone else experienced a problem getting your hands on
interferon
? I live in North Idaho, so I'm not sure if our remoteness is part of the problem.
Owl-fan
in
MPN Voice
8 months ago
Starting Interferon - advice please
I am just about to start on
interferon
, lowest dose fortnightly 45mcg. I am interested in knowing what people's experience with side effects has been and how quickly these might have settled down. Also how quickly you started to experience benefits from the treatment..
I am just about to start on
interferon
, lowest dose fortnightly 45mcg. I am interested in knowing what people's experience with side effects has been and how quickly these might have settled down. Also how quickly you started to experience benefits from the treatment..
Mrs_Average
in
MPN Voice
7 months ago
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A weighty issue saga
I have thought about switching drugs, but doctors and specialists don't recommend a change to Peg
interferon
. I don't even know if it
could
help reducing my bloated belly. In the meantime I skip from one diet (+ daily exercise) to the next, because that's all I can do at this time.
I have thought about switching drugs, but doctors and specialists don't recommend a change to Peg
interferon
. I don't even know if it
could
help reducing my bloated belly. In the meantime I skip from one diet (+ daily exercise) to the next, because that's all I can do at this time.
Goosebumps52
in
MPN Voice
2 days ago
Chest pains & hypertension due to Interferon or Hydrea?
I took
Interferon
for the very first time a few months ago and ended up in the hospital 48 hours later with very high blood pressure, chest pains and shortness of breath. We tried reducing the dose over the months that followed, but my body didn't tolerate it well. I had to go on Hydrea.
I took
Interferon
for the very first time a few months ago and ended up in the hospital 48 hours later with very high blood pressure, chest pains and shortness of breath. We tried reducing the dose over the months that followed, but my body didn't tolerate it well. I had to go on Hydrea.
JustKeepSw1mming
in
MPN Voice
4 months ago
starting hydroxy as pathway to Rux
My platelets and white blood cells started shifting so my haem consultant put me on
interferon
which controlled my blood beautifully.
My platelets and white blood cells started shifting so my haem consultant put me on
interferon
which controlled my blood beautifully.
Sanga
in
MPN Voice
3 months ago
New member - Post ET MF (Australia)
In 2017, after recurring migraines and burning in my feet, I started on pegylated
interferon
. It worked well and lowered my platelets.
In 2017, after recurring migraines and burning in my feet, I started on pegylated
interferon
. It worked well and lowered my platelets.
Hatchie
in
MPN Voice
3 days ago
itching skin after showering
I’m on peg
interferon
90mg a week for the last 3 months and bloods are improving, this itching started only 2 weeks ago. Any suggestions much appreciated 😊
I’m on peg
interferon
90mg a week for the last 3 months and bloods are improving, this itching started only 2 weeks ago. Any suggestions much appreciated 😊
Deevie1
in
MPN Voice
6 months ago
Switch from Besremi to Jakafi
I am curious regarding whether others here have switched to jakafi from
interferon
or have otherwise taken jakafi as a front line treatment for PV without MF and how it has worked for them. Another concern with jakafi is I’m not sure how long one can take it. Thanks
I am curious regarding whether others here have switched to jakafi from
interferon
or have otherwise taken jakafi as a front line treatment for PV without MF and how it has worked for them. Another concern with jakafi is I’m not sure how long one can take it. Thanks
mfh7
in
MPN Voice
7 days ago
PV and hypertension
In other news, I was here before Christmas talking about how my
interferon
journey was going (no visible movement in counts after many months) and my consultant asked me to take iron tablets as my MCV was getting too low and I had a few symptoms of low iron.
In other news, I was here before Christmas talking about how my
interferon
journey was going (no visible movement in counts after many months) and my consultant asked me to take iron tablets as my MCV was getting too low and I had a few symptoms of low iron.
Skyehope
in
MPN Voice
3 months ago
Hu days update
Also has agreed for me to choose between anagrelide and
interferon
. Thank you to all of the MPN's your thoughts and questions have helped this newbie to conquer her fears of confronting the medical profession. 👍
Also has agreed for me to choose between anagrelide and
interferon
. Thank you to all of the MPN's your thoughts and questions have helped this newbie to conquer her fears of confronting the medical profession. 👍
Spanelmad
in
MPN Voice
6 months ago
AXSL1 gene mutation
Currently, Rux is took in combination with
interferon
. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although it is still quite large compared to normal people.
Currently, Rux is took in combination with
interferon
. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although it is still quite large compared to normal people.
merlisa
in
MPN Voice
2 months ago
Has anyone on Pegasus interferon had eye retina problems?
When a MPN specialist advises about
interferon
do they talk about this possible side effect. Thank you Irene
When a MPN specialist advises about
interferon
do they talk about this possible side effect. Thank you Irene
Na56
in
MPN Voice
9 months ago
Post ET MF - Advice Please
I would like other treatment options such as
Interferon
& Ruxolitinib to be addressed, and I would be grateful for any advice on how best to approach this. I am also considering asking if he can be referred to an MPN specialist. Thank you for any advice.
I would like other treatment options such as
Interferon
& Ruxolitinib to be addressed, and I would be grateful for any advice on how best to approach this. I am also considering asking if he can be referred to an MPN specialist. Thank you for any advice.
moongazer100
in
MPN Voice
2 months ago
Osteoporosis and PV
(Unfortunately Peg
interferon
caused paraesthesia + after taking it for 18months,so I stopped this medication) I have been advised to take Alendronic acid for the osteoporosis.
(Unfortunately Peg
interferon
caused paraesthesia + after taking it for 18months,so I stopped this medication) I have been advised to take Alendronic acid for the osteoporosis.
Bobadog
in
MPN Voice
7 months ago
Rare Interferon relation to an autoimmune condition
-[i]This post applies to just the rarest of circumstances and does not implicate the well established safety of IFN as we use it[/i]. - I've been checking out trials etc for Sjogren's for obvious reasons. I came across this one which has a clearly presented note on the IFN-autoimmune connection I've
-[i]This post applies to just the rarest of circumstances and does not implicate the well established safety of IFN as we use it[/i]. - I've been checking out trials etc for Sjogren's for obvious reasons. I came across this one which has a clearly presented note on the IFN-autoimmune connection I've
EPguy
in
MPN Voice
6 months ago
Scientists devise novel strategy to seek and destroy leukemia stem cells
Type II
interferon
(IFNy), a substance produced by immune cells, disrupts the leukemia stem cells' ability to divide and spread cancer. However, IFNy also stimulates CD38, a protein that suppresses the immune cells' ability to mount a response against infection.
Type II
interferon
(IFNy), a substance produced by immune cells, disrupts the leukemia stem cells' ability to divide and spread cancer. However, IFNy also stimulates CD38, a protein that suppresses the immune cells' ability to mount a response against infection.
PhysAssist
in
MPN Voice
2 months ago
Advice appreciated.
I’m on 75mg aspirin daily and 90mcg Peg
interferon
fortnightly. Currently doing well and cheerful and in the best of health, with a dog that keeps me on the go, and still taking adventurous holidays.
I’m on 75mg aspirin daily and 90mcg Peg
interferon
fortnightly. Currently doing well and cheerful and in the best of health, with a dog that keeps me on the go, and still taking adventurous holidays.
gilded
in
MPN Voice
6 months ago
MF, considering interferon treatment
MPN team suggesting it might be time to consider
interferon
to see if it will reduce spleen size.. Interested to know if anyone else has had success with
interferon
to reduce spleen size, and anything about your journey starting on medication..
MPN team suggesting it might be time to consider
interferon
to see if it will reduce spleen size.. Interested to know if anyone else has had success with
interferon
to reduce spleen size, and anything about your journey starting on medication..
Mrs_Average
in
MPN Voice
9 months ago
PV treatment follow-Up
I had been seeing an MPN specialist who had discussed
Interferon
but said we did not have to start on Besremi. Based on comments from the community. I went to Silver Center at Cornell in NYC and had a BMB. Results were that I had PV and no early Myelofibrosis. They repeated my genetic blood work.
I had been seeing an MPN specialist who had discussed
Interferon
but said we did not have to start on Besremi. Based on comments from the community. I went to Silver Center at Cornell in NYC and had a BMB. Results were that I had PV and no early Myelofibrosis. They repeated my genetic blood work.
FlTodd
in
MPN Voice
5 months ago
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