Experiences with

Ewing sarcoma

Soft tissue ewing sarcoma in my colon with mets to the peritoneum and one on my bladder. Going to do chemo again in Jan to hold them back and give me more time. Has any one used the COC protocol? Any thoughts? Success's? Not giving up the fight, never will. I have 2 young kids who need me.

I would not be a candidate for cytoreductive surgery with hipec as it's a ewing sarcoma and theirs no evidence that it would control the disease. My primary tumour (ewing sarcoma) is on my colon, mets in my peritoneum and a new met on my bladder.

Diagnosed in 2015 with a soft tissue ewing sarcoma, operated to remove the tumour and chemo. In remission for 3 years and bang, back in February 2018 it's reoccurred on a routine ct scan in my peritoneum with mets off it. Not in my major organs thank god.