Experiences with

Duodopa

Hello! Is here anyone already using this type of treatment? What are the pros and cons? Thanks for the info!

My husband's neurologist has recommended he get a Duopa pump. His C/L meds don't work as well anymore (lots of 'off time') so this is the next option. The pump is similar to a feeding tube and uses a daily cartridge to deliver C/L in gel form directly into his blood stream, thereby avoiding his stomach

I have used the Duopa system for the past 5 years. While my symptom improvement was clear, with time the entire system, even at its FDA approval was antiquated and (in my opinion) it has been a disappointment with its clumsy ergonomics. From the users (patient's) perspective, the present system is

my daughter has a Duodopa pump which is working well helping her live a reasonably normal life. Dx nearly 15 years she is 51 but has lost a great deal of weight recently. She does not have tremor but quite a bit of dyskinesia. Been referred for gastrointestinal and blood tests.

Does anyone have experience using a Duopa pump to administer Vitamin B1 directly into their small intestine? I have purchased Vitamin B1 HCL in liquid form which is used when a shot is given. From a dosing perspective, I don’t know how a shot of Vitamin B1 translates to a comparable amount taken

He is responsible for Movement disorder patients, particularly Parkinson’s disease (PD) patients undergoing advanced treatments such as Deep Brain Stimulation (DBS), Apomorphine and Duodopa.

He is responsible for Movement disorder patients, particularly Parkinson’s disease (PD) patients undergoing advanced treatments such as Deep Brain Stimulation (DBS), Apomorphine and Duodopa.

Has anyone had any experience with Duodopa. As I already have a PEG I was recommended to think about it?

As vrea sa montez sotului meu o pompa de levodopa de fapt si nu stiu daca ar imbunatati calitatea vietii .Acum perioadele de ON intr-o zi sunt intre 2-3 ore.Imi poate spune cineva cum a decurs montarea sondei , cum se adapteaza cu partea externa a tubului, e un disconfort major, nu este risc de infectie

My doctor feels this is worthwhile. My biggest problem is dealing with Gastroparesis during my off times. Very difficult to schedule my pills and meals. Any thoughts or experience ?

He still take some supplement along with his levodopa through the pump duodopa. Is there anything i can do about his left leg ? Should i show him to a bone specialist ? Thanks for your help

Having a lot of "off's" you can consider DBS or Duodopa pump. I have had a "pump" for about 6 weeks, haven't really come to terms with it, still needs adjusting. Only " Parkie" tablet I take is Levocar to natten Eating problems and medicines not working.

I am curious to find out what everyone's thoughts are on Duodopa ..the intestinal gel

anyway, he also wanted me to consider the duodopa pump. mentioned it was much less invasive, no kidding. any takers? Judy

We are considering the duodopa pump. Any feedback is welcome. Thank you

My friend has a duodopa pump fitted, to treat his Parkinson's.

My husband was recommended for Duodopa(very expensive) by 2 Consultants: after 8month wait and long complex application procedure, the PCT has turned him down. I know there are people getting the treatment in Norfolk - we are in Suffolk. Any helpful info? We will appeal- any tips?

The videos are not just about duodopa but about life with parkinsons. Warning: these are very honest videos showing the effects of Parkinsons for some people. http://www.youtube.com/watch?