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Experiences with
Deep brain stimulation (DBS)
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To have or to have not
So it was determined that I would be a good candidate for
DBS
. I was scheduled for September. With much trepidation I was admitted to the hospital and prepped for the surgery. Everything went well and in two week I was scheduled to be turned on.
So it was determined that I would be a good candidate for
DBS
. I was scheduled for September. With much trepidation I was admitted to the hospital and prepped for the surgery. Everything went well and in two week I was scheduled to be turned on.
Sadiesadie
in
Cure Parkinson's
13 years ago
Letting Go-The daughter of a Parkinson's patient urges her Dad not to give up.
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Maryt1967
in
Cure Parkinson's
13 years ago
HI DOES ANY ONE GET VERY BAD PAIN IN THE FACE ???
Face swollen My GP can see my face HAS ANY ONE WHO HAS A
DBS
HAD BAD PAIN WHICH THEY PUT DOWN TO THE
DBS
. CAN
DBS
GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
Face swollen My GP can see my face HAS ANY ONE WHO HAS A
DBS
HAD BAD PAIN WHICH THEY PUT DOWN TO THE
DBS
. CAN
DBS
GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
export
in
Cure Parkinson's
13 years ago
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DBS
Abstract BACKGROUND: The effects of constant-current deep brain stimulation (
DBS
) have not been studied in controlled trials in patients with Parkinson's disease. We aimed to assess the safety and efficacy of bilateral constant-current
DBS
of the subthalamic nucleus.
Abstract BACKGROUND: The effects of constant-current deep brain stimulation (
DBS
) have not been studied in controlled trials in patients with Parkinson's disease. We aimed to assess the safety and efficacy of bilateral constant-current
DBS
of the subthalamic nucleus.
Hidden
in
Cure Parkinson's
13 years ago
When all you have is luck... but then you loose hope for luck
Did a bilateral
DBS
within 4months of our first visit. I thought then as I do now that this man was a hero and my saviour. The surgery que for Rezai was in 2010 2 years, it is now 3-4. Placement occurred in April 2011. I had amazing results.
Did a bilateral
DBS
within 4months of our first visit. I thought then as I do now that this man was a hero and my saviour. The surgery que for Rezai was in 2010 2 years, it is now 3-4. Placement occurred in April 2011. I had amazing results.
NoSringsAussie
in
Cure Parkinson's
13 years ago
Newly diagnosed and a concept called 48...
The next part of my story is what troubles me, I got home and went on the internet, I accessed PUK site and the first image I saw was from a feature they had been running for a few weeks on
DBS
. It was shocking to see, and I felt sick.
The next part of my story is what troubles me, I got home and went on the internet, I accessed PUK site and the first image I saw was from a feature they had been running for a few weeks on
DBS
. It was shocking to see, and I felt sick.
Hidden
in
Cure Parkinson's
13 years ago
Many pieces-no puzzle
- PD could be further investigated with urgency please, as a malfunctioning recycling system -they are beginning to perform
DBS
inside an MRI with the patient asleep. That's off the top of my head.
- PD could be further investigated with urgency please, as a malfunctioning recycling system -they are beginning to perform
DBS
inside an MRI with the patient asleep. That's off the top of my head.
paulaw
in
Cure Parkinson's
13 years ago
DBS Wires
Those with
DBS
, would you comment on your experiences with the leads--that is, do you feel them? do they interfere with any daily activity? Would you do it again?
Those with
DBS
, would you comment on your experiences with the leads--that is, do you feel them? do they interfere with any daily activity? Would you do it again?
Jash
in
Cure Parkinson's
12 years ago
DBS Programming Coming Up
I have doctors appt. on January 23 for
DBS
programming. Is there any thing I should say or do to make sure I it is a successful visit? This will be my 3rd or 4th and im not real satisfied the results. I have heard how important the programmer can be. Is this true? I want better results.
I have doctors appt. on January 23 for
DBS
programming. Is there any thing I should say or do to make sure I it is a successful visit? This will be my 3rd or 4th and im not real satisfied the results. I have heard how important the programmer can be. Is this true? I want better results.
jeffjennings
in
Cure Parkinson's
13 years ago
My DBS Story
On the way down to Phoenix for my surgery, I was re-reading about
DBS
.
On the way down to Phoenix for my surgery, I was re-reading about
DBS
.
SherriW
in
Cure Parkinson's
12 years ago
A Good Article about DBS
Refers to treatment of psychiatric ailmentss using
DBS
but addresses the procedure for Parkies. The article was from the Wall St. Journal: http://online.wsj.com/article/SB10001424052970204555904577164813955136748.html A good 2 minute video is included free of charge :)
Refers to treatment of psychiatric ailmentss using
DBS
but addresses the procedure for Parkies. The article was from the Wall St. Journal: http://online.wsj.com/article/SB10001424052970204555904577164813955136748.html A good 2 minute video is included free of charge :)
Beachdog
in
Cure Parkinson's
13 years ago
MY KNEW NEUROLOGIST DIAGNOSIS. ???
Adanced parkinson's disease Bilateral STN
DBS
Dopamine Disregulation Syndrome Hyper Somnolence. Can any one tell me what she is talking about . your EXPORT.
Adanced parkinson's disease Bilateral STN
DBS
Dopamine Disregulation Syndrome Hyper Somnolence. Can any one tell me what she is talking about . your EXPORT.
export
in
Cure Parkinson's
13 years ago
Poem 5Have had 3 procedures of DBS and awaiting programming
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
FifteenyearsPD
in
Cure Parkinson's
13 years ago
DBS - what event changes everything
A friend just had
DBS
, Until this past spring she had maintained an absolute unwillingness to consider the procedure. Then when the flowers bloomed she did a 180 and her decision was absolute and irrevocable. My friend is a few years ahead of me but not so many.
A friend just had
DBS
, Until this past spring she had maintained an absolute unwillingness to consider the procedure. Then when the flowers bloomed she did a 180 and her decision was absolute and irrevocable. My friend is a few years ahead of me but not so many.
pkell
in
Cure Parkinson's
13 years ago
Fox FactorNot a big fan Micheal J Fox
I am kind of thankful because the
dbs
surgery worked well for me. Before that in order to walk I would have to take about 5 different med 5 to 6 times a day. or I be in a wheelchair. It would come out of the blue , I d feel my hands getting stiff then 5 minutes later I was done.
I am kind of thankful because the
dbs
surgery worked well for me. Before that in order to walk I would have to take about 5 different med 5 to 6 times a day. or I be in a wheelchair. It would come out of the blue , I d feel my hands getting stiff then 5 minutes later I was done.
Captsteve
in
Cure Parkinson's
13 years ago
Does anyone suffer from an insatiable sweet tooth
Before I had
DBS
I had lost 50lbs since Dx. Then
DBS
and I stacked that 50 right back on and I can't get rid of it doesn't matter how hard I try. Even if I consume 1000 calories a day. Anyone else have similar problems and/or solutions. Thanks
Before I had
DBS
I had lost 50lbs since Dx. Then
DBS
and I stacked that 50 right back on and I can't get rid of it doesn't matter how hard I try. Even if I consume 1000 calories a day. Anyone else have similar problems and/or solutions. Thanks
NoSringsAussie
in
Cure Parkinson's
13 years ago
Parkinsons Disease With A Small Injection Of Humor.
DBS
is forming like storm clouds on the horizon... Deep Brain Stimulation, or
DBS
for short, is a rather new procedure designed to stimulate the brain cells that are not working properly and support the cells that are.
DBS
is forming like storm clouds on the horizon... Deep Brain Stimulation, or
DBS
for short, is a rather new procedure designed to stimulate the brain cells that are not working properly and support the cells that are.
jeffjennings
in
Cure Parkinson's
13 years ago
How did I get turned off?
Somehow both of my stimulators (
DBS
) were turned off on saturday (I think) and I had a miserable 4 days before the doc turned me back on. The thing is I don't know how this happened after 7 years . I didn't leave the house . Very bizzare and scary to see how sick I really am
Somehow both of my stimulators (
DBS
) were turned off on saturday (I think) and I had a miserable 4 days before the doc turned me back on. The thing is I don't know how this happened after 7 years . I didn't leave the house . Very bizzare and scary to see how sick I really am
Rick
in
Cure Parkinson's
13 years ago
DBS??
Hi need ur input on this.... my family thinks I shud consider
DBS
and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it....
Hi need ur input on this.... my family thinks I shud consider
DBS
and hopefully it will help me get a better quality of life... Personally I am petrified and am not sure if I shud do it....
SuKas
in
Cure Parkinson's
12 years ago
Is any one on Rotigotine ?
I also have a
DBS
which is not working on one side .my doctor says its my Parkinson's not the patches .i don't agree. PS first time I have ask a question. I could go on tell me what you think.
I also have a
DBS
which is not working on one side .my doctor says its my Parkinson's not the patches .i don't agree. PS first time I have ask a question. I could go on tell me what you think.
export
in
Cure Parkinson's
13 years ago
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