Experiences with

Aerolin

I am a 74 year old living in the U.S. - diagnosed with ET CALR 2 mutation in 2021. Was put on Hydrea aka hydroxyurea and low dose aspirin immediately. After about a year, began developing side effects and decided to stop the hydrea - against my doctor's recommendation. No, she is not an MPN specialist

So now I am on seretide 500, aerolin and singulair. Just writing all these to see if anyone else is facing the same situation and has find another solution.

Hi I am new to this MPN group, I live in Australia. I was dx in 2004 with ET with platelets counts of only 853 & put on Hydrea & aspirin far too early as I now know I never met the criteria for medication at that time. I am JAK2 neg, CALR pos what I have learnt that this mean e.g. JAK2neg that I am