I'm an avid Facebook user and other social media. I hit the like and love and cry etc buttons on their posts.
Needless to say I also post about my disease because it's important to me. I not only post in English but also in Spanish. I look at the posts and they seem not to get liked or read. So I wonder why people seem not to care about learning of others' diseases. To me Lupus is a big deal. I feel very alone in this fight unless I post to lupus groups or pages.
Anyone feels so alone in this fight?