I had my first appointment at Guys Lupus clinic a couple of weeks ago and I was very disappointed, I guess I was expecting something different from normal rhuematology depts but unfortuantely not, it's basically down to bloods, which I have just found out are fine. The doctor didn't even take a history in terms of my family/childhood etc. I tried to give him a detailed description of my many symptoms but I really don't know why I bothered if it's just down to the bloods.
The doctor even thought that it was incidental when I said I felt better ( energy, aches, throbbing, brain, head sores etc all better ) after taking a recent course of chloroquine.
I am now giving up on getting a diagnosis and will self medicate as I cannot continue like this, I have found a source for meds but if anyone can recommend please pm me.