Can anyone help. I've been misdiagnosed I think. Ive been diagnosed with M.E, Fibromyalgia and CFS. I think I have Lupus.

[Jacqueline_J]

Can anyone help or related. I've been diagnosed with M.E, Fibromyalgia and CFS. That might sound bad enough but looking through my medical history and illnesses i've had I think i've been misdiagnosed ? I've had arthritis, hepatitis a, periocarditis, during my second pregnant I had obstetric collastiss, I've had on and off reactions to the Sun especially when my arms and legs are covered in the sunshine I come out in a burning spotty rash, I've also had that on my face. My list of symptoms are endless with the M.E and Fibromyalgia and CFS. I can't find a reason for my hair loss & severe water retention, resulting in some day's I have to take 80 mg of frusomide, I also have constant sores in my mouth and nose my teeth have decayed. I'm in constant pain constantly tired and basically i've had enough. I've now stopped taking prescription medications as they don't help. Please can anyone relate.

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Hi

Lupus is very commonly misdiagnosed so it is possible. Have you ever had any blood tests? They aren't always conclusive as roughly 10% can show false negative but it's a starting point.