Ras and sensory processing: Hi does anyones little... - STARS

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Ras and sensory processing

Mbun profile image
Mbun
4 Replies

Hi does anyones little ones suffer from reflex anoxic seizures and also sensory processing disorder? Just wonder how you cope with both thanks x

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Mbun profile image
Mbun
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Stoney1 profile image
Stoney1

Hi our son doesnt have a concrete diagnosis of RAS, but is under alder hey childrens hospital for breath holding plus, he has seizures with them. There is defo something going on with sensory as well. His consultant has said with his condition he has noticed in clinic other young people with same have autistic traits. Sometimes he doesnt want to be touched, he is now 3, since day 1, the car seat has been a night mare, hates it (I thought is this to do with the touch of seat belt?), bath times, meant to be fun right, wash his hair, it's like he has been murdered, he gets that upsets, getting dressed. I see an occupational therapist in two weeks, to see what she has to say.

Mbun profile image
Mbun in reply to Stoney1

Wow hope you get on ok. Sounds alot like my girl shes 5 we just got diagnosed with ras yet it's been going on since birth but having one every 6 months on average. Although she had 2 within a week recently but 7 months before that. The sensory processing my girl hates loud noises and cries and worries and makes herself sick over panicing at school. Although this year she seems to control the sickness alot now and been told by the peidrican if she can control her aniexty then hopefully will minimize her seizures. Your boy sounds alot like my girl. Hope u get a diagnosis too?

Sezroo profile image
Sezroo

Know you posted a while back but your post came up while I was searching for a link between the 2!! I'm aure my little girls has spd and know that when she was first disgnosed with ras not liking loud sounds was one of the symptoms so I'm wondering if there's a correlation!

Mbun profile image
Mbun in reply to Sezroo

Aww that's great to hear from you. Always wondering if the 2 can be linked