My granddaughter has recently been diagnosed with RAS by a Paediatrician at Poole Hospital. When we saw him she had had four blackouts spanning the course of a few months, and they had all been triggered by sudden pain from falling awkwardly or bumping herself - the first one was very frightening, she went blue around the mouth and her feet were blue. Because we didn't know what was happening I started CPR - but as soon as I blew in her mouth she woke immediately and started crying. She cries for a good 5 minutes afterwards and gets really tired. Since then she has had two episodes that have had no pain / shock / fright trigger. She has had another one this week, which started with her just crying as we were leaving the house to go home. Nearly all of her episodes are in the afternoon tea time, and have been at her home.
From a lot of literature I have read it does imply that you should insist on an EEG or other tests to make a firm diagnosis - my daughter has got another appointment to see the Consultant at the end of April - please could anyone else tell me if they were given the tests, or are they only done if the child is having daily episodes? My daughter is worried that this could be the start of epilepsy, and I suppose the tests may rule that condition out. I would even be happy to pay to have them done if necessary. If anyone else could tell me what their experience of diagnosis was that would be really helpful. Thank you.