Meet the woman who can't stop fainting (and she is a member and volunteer for STARS)

Jane has struggled with dysautonomia for a long time. She decided to tell her story to the Aberdeen Press & Journal to show people what a wretched condition it is, especially when there are few specialists and little support available. Whilst having her photograph taken for this article, her legs crumpled under her. This was caught on video and Jane has agreed that we can share it with you all.

pressandjournal.co.uk/fp/ne...

I am sure some of you may recognise yourselves in this story.

4 Replies

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  • I'm 17 nd I faint pretty much every week somtimes more than once a week , I'm under investigation but they have not worked out what is wrong yet , it is totally time consuming nd it has totally taken over my life and it's not just harming me physically but mentally as well , but everywhere u go I just can't seem to get a diganosens , My symptoms are very much like Janes so I'm very pleased that she has shared her story , it's a great help for ppl who made have the same condition but just not getting diganosed , I really hope with the bel of this story I will get the awnswres I need

  • I'm 17 nd I faint pretty much every week somtimes more than once a week , I'm under investigation but they have not worked out what is wrong yet , it is totally time consuming nd it has totally taken over my life and it's not just harming me physically but mentally as well , but everywhere u go I just can't seem to get a diganosens , My symptoms are very much like Janes so I'm very pleased that she has shared her story , it's a great help for ppl who made have the same condition but just not getting diganosed , I really hope with the bel of this story I will get the awnswres I need

  • Unfortunately it is not just patients in Scotland who struggle to find a diagnosis but also there are many areas in the UK where members also find problems being referred to an electrophysiologist, a heart rhythm specialist who understands syncope and the havoc it can cause. If you would like advice please email info@stars.org.uk

  • Hello Jane. I've watched your video. Did your specialist teach you some exercises like squatting down and clenching all your muscles if you feel a faint may occur? Also hydration with two or three litres of water a day may help. Imperial College Hospital, London has a wonderful syncope clinic and nurse.