cpns13 years ago

Well, it looks like a lot of us are not given enough (or consistent) information about our health. 16% is a high percentage of us that in not having a clear diagnosis will have limited opportunity to help ourselves.

I am included in that number - despite frequently asking what I believe to be clear questions; why I let myself be fobbed off with wooly nonsense I am not sure. I will be more assertive next time and work to regain a little more control in my healthcare

Jeanette_Ish13 years ago

The excuse i get i we don't want to lable you or tag you with anything, if i hear that one more time, i will scream... Not knowing what is going on is what makes it worse, so like you next time i go i will not be fobbed off, and take control of my health

suzy66641 in reply to Jeanette_Ish12 years ago

Good for you Jeanette I used to have the same lame excuses but now I ask whatever I want to know and refuse to be fobbed off.

Just worries me what will happen if I get too ill or old to fight my own battles

Stay well Suzy xxx

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Sarahbv12 years ago

Limited Cutaneous Systemic Sclerosis (CREST).

zenabb12 years ago

Limited systemic sclerosis.

Juno12 years ago

Limited systemic sclerosis.

Whatever12 years ago

limited scleroderma and secondary sjogrens

lynbw11 years ago

limited sclerorderma secondary sjogrens , secondary raynauds

gindy8 years ago

Unfortunately I've got the diffuse kind, I'm hoping that it doesn't spread to my organs but who knows...

Live life for the moment is my motto