How long ago were you diagnosed with ... - The Australian Sj...

The Australian Sjögren's Syndrome Association

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How long ago were you diagnosed with Sjögren's Syndrome?

JohnHU profile imageJohnHU255 Voters

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same time as diagnosed with fibromyalgia 4 months ago

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BeverlyAdministrator

I have had Sjogrens for about 25years

I have been diagnosed with Sjogrens for 20yrs at the age of 21, but had ill health throughout my childhood too.

Debbweb01 profile image
Debbweb01 in reply to IvyChandra

Yes IvyChandra me too always sickly as a child too also as adult, but I try to do my best to laugh and joke about it! If I didn’t I’d cry alone! Godspeed

I was diagnosed with Sjogrens since 1994

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Diagnosed with RA in 1987 and Sjogren's 7 years later. I had dry eyes first, and was told it was Sjogren's but didn't have a proper diagnosis until 1995.

I was diagnosed in 2011 but i did some digging into my previous medical history and had positive ANA SSa and SSb in 2004 but was never told.

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Dry eyes, absolutely no tearing for more than 8 years, and diagnosed just a year ago.

Diagnose at age 22.

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Diagnosed in 1987ish, shortly after RA. Now have Vasculitis, among other things.

I was diagnosed 24yrs ago and was forced to retire earlier than I had planned.

I was diagnosed approximately a year ago.

When I was diagnosed, I was told sjogrens RO was in my blood 10 yrs ago. I had not been told. Shame, really because I suffered very, very, much trying to keep up, perform well at work.

kalona46 profile image
kalona46 in reply to webar4780

That's really do disheartening to hear. I wish you wellness.

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I was diagnosed with Sjögren's secondary to RA a few years ago but rediagnosed with primary Sjögren's last year after my ANA turned clear positive and lip biopsy showed 100% positive. I'm hypothyroid too and, in reality I believe I've had it for most of my life.

Hi I was Diagnosed about 3 years ago! As a child had JRA Juvenile Rheumatoid Arthritis, and looking back had Sojerns too! Always was being tested for diabetes due to always being thirsty and dry mout for many years! Dx’d With RA as adult and APS or Sticky Blood! They said I had APS All my life! Always sickly as a child and hospitalized and released without ever knowing what caused my illnesses! Always a mister! Till I had to loose my leg!

Actually for me it was more than 30yrs ago. Initially it was referred to as "extremely dry eyes" problem as I have Rheumatoid Arthritis and Reynauds and Hashimoto. It has become much worse the last few years.

was Karen Aubrey involved with S.S association years ago. something jogs my memory