What concerns or fears would prevent you from participating in research or a clinical trial for sickle cell disease?
Would you be willing to participate i... - Living with Sickl...
If it does not endanger my already poor health, absolutely! If there are risks to it, if they are well explained and the experimental treatment or research are appropriately monitored, with full medical coverage of any adverse consequences, I’m in.
In a way, that's how I started taking hydroxycarbamide. As part of a study group of haemoglobinopathy patients.
It is very important that we help the medical community and that we take part in research activities as well. In Portugal, as it's a very small market, there aren't any, ever. In the UK, I have already participated in one last year.