Zejula: To all the ladies on Zejula... - SHARE Ovarian Can...

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KCWM profile image
KCWM
16 Replies

To all the ladies on Zejula. Just talked to my doctor at Mayo Clinic and she said a new report just came out on Zejula they are calling it the miracle drug for Ovarian Cancer. Getting great results with it.

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KCWM profile image
KCWM
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16 Replies
Cjbloomq profile image
Cjbloomq

Hi, I have been on Zejula for over a year and a half. I have been doing great on it. Keeping CA125 down, 7 right now no further evidence of cancer as of Oct.

Many new drugs coming out too. Best of everything to all.

Imdunn profile image
Imdunn

That is great news!

Rosellen12 profile image
Rosellen12

This is Great! I took for a year before I had to stop eight months ago do to low neutrophils. It has worked for me so far, low CA125 of 7 - 8 & pet scan clear. Hopefully I got a enough to keep the cancer away for a long time. Good luck to all of us in this fight against Cancer

Weemary profile image
Weemary

That is great to know as I will be starting this soon. 👍

lovemy3dogs profile image
lovemy3dogs

My doctor at Mayo put me on Lymparza. Is there much difference? I am BRCA1 +.

Here2Day profile image
Here2Day

Is Zejula ever used with frontline or as maintenance? Or is it used only in the case of recurrence?

KCWM profile image
KCWM in reply to Here2Day

my Mayo doc prescribed it after my reacurrance when I was done with chemo for the second time. I feel good on 200 mg could not take 300 because of shortness of breath, and anemia.

Was in remission 18 months the first time now in remission for 17 months and I think Zejula will help keep cancer away.

Beachperson profile image
Beachperson in reply to KCWM

Do you have the BRCA gene?

Rosemarymemo profile image
Rosemarymemo

Thank you for sharing. I have been on Zejula for a year. No side effects except insomnia. Very blessed. Happy Thanksgiving for all reading this. There is hope for all of us.

Rosemarymemo profile image
Rosemarymemo

I had a reoccurrence more chemo. In remission so my doctor put me on Zejula .

Rosemarymemo profile image
Rosemarymemo

Thanks for sharing. I’m on Zejula and worry if it is really making s difference.

SurvivorSusan profile image
SurvivorSusan

Where can we read this research? I have been looking for it.

Bahamas22 profile image
Bahamas22

It did not work for me. At all

SurvivorSusan profile image
SurvivorSusan

Do you know where we can read this study from the Mayo Clinic?

KCWM profile image
KCWM in reply to SurvivorSusan

Hi Susan, she just said she had just read it a day or two before I saw her.

I will see her end of January. Will ask more about it then.

Mamaw1 profile image
Mamaw1

I will be on drug 1 year in Feb. No far so good

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