I’m going to put my 2-cents in concerning RLS. I don’t know how many times it kept me awake for over 30hrs! I had the cleanest floors & cleanest kitchen. It wasn’t the RLS by itself but my legs would become “spastic”They would involuntarily “kick outI”.I ‘m telling everyone who reads this that you are NOT alone! I’ve read so many letters concerning all sorts of medication that is being prescribed for RLS so let me add a bit of knowledge:
1. We are not physicians. Each of us can only share are own experiences. Your first person to go to is your own doctor. The reason I say this is because what medication works with one person doesn’t mean it will work with you!
2. You have to be your own advocate! I can’t stress this enough.Ask questions at your doctor.’s appointment. If you do not understand something speak out. Do not leave your appointment with questions!
3. Research medication that is prescribed to you.Know why you were given it; know if there are side affects.
4. Do you even like your doctor? I changed mine last year when he reduced one of my medications because of my weight. In less than 2 weeks I was in a downward spin. My new doctor immediately put me back on the dosage I needed.(The other day I got a letter stating he was suddenly retiring within days.)
5. Lastly, there is medication out there that will relieve your symptoms.There are quite a few of them mentioned here. Research them & talk to your primary care.. 🐺
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Midnight-Blue
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Your involuntary moments of your legs is PLMD - periodic limb movement disorder. I believe I saw the figure that 80% of people with RLS have it. It is treated the same way as RLS.
Whilst I agree with most of your points- here in the UK, RLS is not on the medical curriculum at any stage. So it's often pointless going to your doctor because they know absolutely nothing about it. They prescribe dopamine agonists routinely without considering trigger medications or taking blood tests. Even most top neurologists have zero training in RLS, unless they trained under someone with a special interest. My MS neurologist admitted that she knows absolutely nothing about RLS.
That makes your second point especially important. Do your own research and be your own advocate.
Hopefully it has resulted in complete cover for your RLS.
Just to say that I have had two GP's and two consultants in the UK that listened and already knew a fair bit about RLS, my local neurologist though admitted that I knew more than he did and apologised. I am on Targinact.
Most doctors only know how to treat symptoms with lab made medications, not how the symptoms may be caused by diets so don't accept your Dr's advice as gospel. Do your own research.
Many of us Americans have always thought that European physicians were as well, if not more, educated in “modern” medicine. I am very surprised that your doctor has little knowledge about RLS. And, you’re not the 1st person from England that has told me this.
I don’t wish to cause any “International”problems but I am curious as to why the medication as well as the knowledge about RLS is not as well known in other countries as it is here. Not that we have found a cure for it or “a quick fix” for RLS, but, it just seems that our doctors are more knowledgeable about it. Wonder why. Any ideas???
First I am not from England, the UK is ore tha just England.RLS is probably known more in the US because it is more common there. US doctors make a lot of their income from selling drugs to treat the symptoms, it doesn't mean that they know the causes and offer cures.
I have cured or eliminated my RLS by concentrating on reducing the systemic inflammation caused by my diet. This involves avoiding processed foods especially thore containing artificial preservatives, thore made from wheat flour and all refined seed oils.
They may not make money on the drugs but because it's a paid for system Dr's have no incentive to cure but every incentive to continually treat symptoms.
There is no cure. Would that there were! One can only control the symptoms. So yes they want to treat the symptoms. And if they just wanted to continually treat the symptoms then they would not prescribe any medicine that might help do that.
You have controlled your symptoms so you don't have them anymore. If you stop eating the way you do they will come back. That is different from a cure,
Also although it works for you and some others which is great, it doesn't work for everyone.
I could give you many sources but here is one from the Cleveland Clinic which is one of the most respected in the US : my.clevelandclinic.org/heal...
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