Restless Legs Today

[Greeneyedlady54]

Are there lots of folks out there with RLS also. I have just lived with RLS by myself...never really thought about perhaps finding a group where members could share in the good, the bad, and the ugly. Hah!

[SueJohnson]

Welcome to the group! There are 18,872 members of the group and it has been estimated that up to 10% of the population has RLS so you can see there are a lot of folks with it. How much pramipexole are you on and how long have you been on it? Does it completely control your symptoms? You mention that there are many times when you find it hard to wait until your next pill - does that mean you are having symptoms in the daytime? Have you had your ferritin checked?

[Rezcat11 in reply to SueJohnson]

This group has changed my life - from a kind member who was notified about my initial post - deleted because of the level of pain expressed as consideration of desperate action [if you get my meaning] and wrote me a message expressing compassion, empathy, and hope [thank you, Raffs!] to the information provided by posters such as SueJohnson, a godsend of knowledge and wisdom. Thank you for all you do, Sue Johnson!

[Kaarina Administrator in reply to SueJohnson]

At the end of October the HU Activity Report stated there were 18,796 all time members - this total number of followers does not account for unfollows or deleted/banned members. During last month 169 new members joined and 1,937 followers logged in.

[TheDoDahMan]

Congrats! You've just found that group.

[Shumbah]

Welcome you have found the best RLS group on the planet .

All of us we felt like we where the only person on the planet suffering this vile disease until healthunlocked .

You are now in the right place for support and help .

[ChrisColumbus]

Yup - you are not alone! Many forum members can give advice and guidance, but look particularly at posts and replies from Sue Johnson and Joolsg

[Hidden]

Welcome. You're among friends now 😊